Hi Newbies

As a very oldie on here may I suggest instead of joining on some ones post,you start your own post,telling people who you are,what hospital you go to and what treatment you are having,plus of course any problems. This will help people to help you in person!!!!

When I first came on here,some one posted. WHO THE HELL ARE YOU!!!!,I…[Read more]

Jan

That’s the way to go!!! No regrets enjoy what you have and never give up hope.

The fact is no one knows what lies in the future,just enjoy and never give up hope,it will take people a long way,and every day is a bonus. Love to you all.

Hi Kaye

It was my husband who died,and it was a long slow death,so when you are not expecting it,it’s harder,grieve hits you very quickly and brings out all sought of emotions.

It is very hard for anyone to speculate what went wrong concerning your mum,if you write or ask to see her consultant I am sure he would explain why it was not picked up…[Read more]

Hi Kaye

I am so sorry for your families loss and for the way the Myeloma progressed without being spotted,I personally think people should learn all they can,and not have this blind faith in doctors,at the end of the day,they are just trained people,and family should ask questions,even if it’s only for your peace of mind.

When people are…[Read more]

Hi Tom, sorry to hear this, I hope this next round of treatment achieves a longer remission and few side effects.

Good luck and very best wishes.

Take care

Karen
xx

Occupations have been talked about concerning Myeloma,

If you think about it chemicals exist in basic materials for every day use,for example wrapping on food,which is put into a microwave !!,

Jobs that you have done in your life ,Farmers service Men,anyone who came into contact with Chemicals,I think why there is no direct research into this is…[Read more]

Hi Jan

How are things,!!! I do not post so much now but look in to see how everyone is doing,and looking at your post I thought you needed some surpport at this stage you are at!!!!

The doctors are telling you to prepare yourselfs, and it’s not a bad way to go,because if this does happen at least it will not be such a shock as last time,and…[Read more]

Aye, it is a tricky bugger and no 2 cases are the same, which makes it even more difficult.
Wishing you well.

Karen

Done! Good luck! x

Hi Tom, just read this, I get pains in the same part of my spine, ribs and sternum, I am still on Zomorph, I was told I will always have some pain as there was a lot of bone damage (late diagnosis), so I just have to control it. I had my sct in January 2013, so if my appetite goes or I am more tired, or pain is worse, I worry that it’s coming…[Read more]

Hello Everyone,well it’s 6am,and today I am coming to the end of a journey!

Last day to make sure every thing goes right,visited Slim yesterday,and took masses of Sunflowers to line his coffin,if you have followed this journey you will know how much we enjoyed France and the fields of sunflowers,they represent a big part of our lives together,all…[Read more]

Hi Gill

Reading your posting,you could have been talking about Slim, Stephen and Slim must have come out of the same mould. Lol

One of the people from the past described Slim as a gently giant,that was her memory as a little girl.
I had to stop and think about the way she saw him. The last four years took there toll as he fought to stay alive,…[Read more]

Hi Mary

We have lovely nurses on this site Ellen and Maggie,the number is at the top of the page plus it’s free,talk to them,they can send you booklet plus give you lots of information.

When someone is first diagnosed,it’s very hard to take in all the information,I had never heard of Myeloma,try not to go looking on the net until you can have…[Read more]

Thank you all for your condolences

Although expected it still seems so unreal.at the moment I am ok as I have said earlier I have no regrets,it’s a comfort to me that Slim lived and died just the way he wanted to,many people specially in death,do not get the death they wanted,plus many things are left unsaid.

Slim wanted a non religious…[Read more]

Dear Eve,
So sorry to hear that Slim has passed away.
Thoughts are with you at this very sad time.
Karen x

Hi all land thanks for best wishes, and thanks too Peter for chin up 😉

I have still not had my protien results, I have had my copy off the doctors letter from the consultant, has my blood results, but says progressing paraproteins (sorry if spelling wrong), I am sure they would contact me if a problem.

Update on sore on my back, I seen a…[Read more]

Hello Martin

With the amount of damage to your back,I would expect you to have been in sever pain and needing medication for it!!!

The consultants must have done a Skelton ex ray plus MRI,scan which show the damage,if it’s pain from that area ,there should be some relief as chemo does the job of removing cells,but if it’s the bones crumbling as…[Read more]

Hi Angeline

I have to ask how long is a piece of string!!!instead of thinking how long will it last,think how long you are going to have your Dad.

People choose there own time and own way to die,embrace it and do all you can,it might sound a bit old fashioned ,these days we hide it away,in hospitals homes or hospice,I am not knocking it,it…[Read more]

Hi John

You do not give much info on your dad age treatment and so forth!!!!!
So it’s a bit hard to reply????

I can say when you have Myeloma you just want to get on with treatment,people react different to treatment even to the point of treatment being changed!!

Your dad asking for a month off means he is having problems find out what the…[Read more]