tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hey Helen
You know its no problem we like you are here to help as and when its needed 😉
Am a big believer enjoy Today as we dont know what Tomorrow might not bring, and i was used to say that before MM bit my iccle ass (as if little lol)
If you or anyone one wants a Longer chat my Email is t.lappin1@ntlworld.com your all free to use it…[Read more]
tom replied to the topic Last Chance Saloon in the forum Treatment 11 years, 9 months ago
Hi Keith
Hows you doing today? Hope your doing Ok
Tom Onwards and Upwards x
tom replied to the topic Good response to Velcade in the forum Treatment 11 years, 9 months ago
Well Done Ozzy thats the way to roll and long may it continue.8-)
Enjoy your Break am sure you all deserve it 😎
Tom Onwards and Upwards x
tom replied to the topic Garry's SCT journey in the forum Treatment 11 years, 9 months ago
Hi Louise and you very young and fit Dad 😎
I had CTD and that worked for me in 2009 leading up to SCT in December 2009 and I sit here In remission and Drug Free 😀 and that proves all the bad stuff is worth it 😉
Unlike our Friend Dai I only had three Bags 😛 and was also fitted with the multi in the groin, am sure that way is better…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Your welcome Ann and how is Pete today ? am sure his mouth is still not good but it will given time. am sure he wont feel like eating yet by now? that also will come back am pleased to say.
Love to you Both
Tom Onwards and Upwards xx
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 9 months ago
Hi Jean and Frank
Its a bugger when they tell you fibs I prefer the truth up front and straight, I might not like it but if its the truth there is nothing i can do about it.
I can tell you Jean not to worry but you will so al say worry but dont wast time worrying too much Frank will be OK 😀 .
Dai
It must be an MM thing as as and when…[Read more]
tom replied to the topic New to this in the forum Newcomers 11 years, 9 months ago
Hi Jane
A warm welcome from Iccle ole me, this place is a comfy warm and soothing place, pull up a chair and put some comfy slippers on as you are now on the long road to remission and i hope its a smooth one.
I am 57 and had my CTD in 2009 leading up to a SCT in December 2009 and am now in remission and drug free 😀
Ask away but dont…[Read more]
tom replied to the topic Bad news in the forum Off topic 11 years, 9 months ago
Lmao David its great to see Life just rolls on with a great Big Laugh well done and you two keep it up.
Ps Well Spotted Tina I also wondered what Lol (might have been Dex lol)
Tom Onwards and Upwards x
tom replied to the topic Bone Marrow Biopsy in the forum General 11 years, 9 months ago
Hi Trish
Well tell Peter Good Luck from me please and I hope it runs a smooth course and is gentle on him.
Stay well Peter
Tom Onwards and Upwards x
eve replied to the topic Bed Sore in the forum Related conditions 11 years, 9 months ago
Hi Maureen
I use to just draw the curtains and get on with it,I cannot tell you how many times I went in ai 8am and he had been ringing for a commode,I use to go out to the sluice room disinfect the commode help him,then took it out cleaned and disinfected it again,then a nurse would pop her head round and ask what he wanted half a hour…[Read more]
eve replied to the topic Another new 'member' in the forum Under 50s 11 years, 9 months ago
Hi Jane
Nice to hear from you,take it your under fifty to introduce your self on there,people might miss it,you might like to go to newcomers,people are more likely to see it.
Helps if you tell a bit about yourself as some actually meet in hospitals and might be of use to you if you are worried about anything. Eve
eve replied to the topic Last Chance Saloon in the forum Treatment 11 years, 9 months ago
Hi Keith
You sound a bit down,let's not think about what the doctor said,lets just think I am going to jump the hurdle, if its any help to you when Slim was being taken to ITU a young doctor,said we're taking you to ITU I cannot promise you will not die,he had not even asked,luckly he cannot remember .
They do not know everything Keith,what…[Read more]
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Aww bless, w know its going to happen but it's still hard, mouthwash I can tell you you can't use too much.
Pete will lose weight for some time due to not being able to eat, plenty of ice cream and ice pops did well for me during this time.
Love Tom Onwards and Upwards xxxx
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 9 months ago
Hi Dai
It's great when one can get the vein first time, we had one Mature Nurse who used to crack it every time but she told me it was because she used to work on a baby ward and some time she had to get one in on the head of the poor child.
And as for the cats whisker am sure we would all be happy with that if it went in first time ha ha,…[Read more]
tom replied to the topic Bone Marrow Biopsy in the forum General 11 years, 9 months ago
Hi Vicki,Trish and of course Peter
Sorry it's a relapse situation but am sure the veil adze will kick it into touch.
Stay well and keep us posted
Love Tom Onwards and Upwards xxxx
eve replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Helen
I thought something might be up,as no postings,I find I miss things if I do not look in daily
I am sorry,are you not tempted to start treatment while its low !!! The reason I ask this is the was an article about people who had CDT then Velcade having better remission time might not mean anything though.
It,s a strange place to be…[Read more]
tom replied to the topic Trying to tell us something? in the forum Treatment 11 years, 9 months ago
Hi Jean and Frank
Well that's a blooming bugger, I have said many a time our NHS is the best (as long as its between Mon/Fri)
I bet you are both well pead off.
Stick with it and him upstairs ain't saying anything as he dunt know yet 😉 xxx
Love Tom Onwards and Upwards xxxx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Mavis
Well am for that bit over 67 and am sure the big man will allow it haha.
Yes it is a bugger to be ill enough to claim it and to be fair I wouldn't want to be that ill.
Eve
Am sorry but if those daisies won't push themselves up they stay where they are lol (av never been a gardener) but am ok for a Onesie Party hehe .
Helen am…[Read more]
eve replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Everyone
Mavis you are allowed to be cantankerous when you are over 65 I cannot wait,I am practising now,what,s this about Helen which Helen is out of remission.????
When I said about chances of Tom not reaching 67 I was talking about betting odds,would you not call it a sure bet,but saying that 2 years ago when Slims Myeloma was in…[Read more]
eve replied to the topic Frank starts SCT in the forum Treatment 11 years, 9 months ago
Hi Jean And Frank,
I will not tell you not to worry,because you will,but if you are unsure of anything ask the nurses or if you think about something once you come home,ask on here,there are enough people on here,who have all gone down that path.
Remember Jean,after about six days,old clothes you can throw away,tell him not to get…[Read more]