eve replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Tom
We have it in for shelted accommodation as we decided the same thing,Slim surprised me,as it was his surges ten ,we found the council did not want to know own you own property you do not get many points,so the more you have worked and looked after yourself the less you get, a friend suggested Sanctury Housing,they do not mind if you…[Read more]
tom replied to the topic Frank starts SCT in the forum Treatment 11 years, 9 months ago
Hi Jean and Frank
Well Done its here 😀 yep uts scary :-S its not a walk in the park BUT it is a Doable, Trust me i have done it yes i was scared but it had to be done 😛
Just get Frank to use the moth wash more often than it says on the bottle (I used two botlles in three days) and it worked for me little mouth problems after that not…[Read more]
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Babs
Yes it looks a minefield to try and get something. Trouble is I am fortunate enough to be fit (ish) but to be fair I am tired and get a wee bit weary at times? but hey ho Onwards and upwards.
As for using a trolly when shopping I love to take the grandkids as i can push the trolly and love to take them for a walk with the dog cos i can…[Read more]
eve replied to the topic Bed Sore in the forum Related conditions 11 years, 9 months ago
Hi Maureen
You must find it hard with working,have a word with husband,and tell him to make sure they turn him over,and ask can the physo massage his pressure points,or when you go in give him a massage,it,s good for circulation plus relaxing and in general will make him feel better.
When Slim was in hospital an I pad with Skype on it…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 9 months ago
Hi Dai
Pleased the connected you up first time as its a devil if and when they collapse as used to happen to me when i was having Zometa evey four weeks was pleased when it was finished 😀
The Link http://www.youtube.com/watch?v=MdxsqeGS-Ms is and was worth a look it made me Laugh well done you two.
Tom Onwards and upwards 😎
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Folks Thanks for your Inputs 😀
David
Yes I can and do most of those But I dont do the Garden as much as My Body tells me its too much, cook clean and do a fair bit of dog walking as am sure thats what keeps me Mobil and less bone pain 😀
Dai
Yes the DLA is as I have found out More for Mobility, and from what I gather you need to be…[Read more]
eve replied to the topic Michael in the forum End of Life and Grief 11 years, 9 months ago
Hi Sue
Well I was up at 5am this morning and I took 2 tablets,had to get up with frozen shoulder and bad leg,a cup of tea and a piece of toast,so I could take pain killers and I am only the carer. Lol, I have gone down hill,as Slim is getting better,I think the whole 2 years hit me in one go,so may be sleeping tablets are not the…[Read more]
eve replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi Tom
I do not know what you situation is Tom,Dai is right in what he says about the physical side of claiming,but they can not discriminate between physical and the mental ability of the person although they have tried for years,because they do not like paying for a person,eg with early dementia or mental issues.
Tom as you say your…[Read more]
eve replied to the topic Bed Sore in the forum Related conditions 11 years, 9 months ago
Hi Maureen
It makes me angry when I. Hear people having bed sores,the NHS have ripple beds and if he was given the nursing he should of had,a man of his age should not be in this position,I could under stand it if he was frail,as it is very hard to avoid bed sores.
I can only tell you all the time my husband was in hospital,I bed bathed him…[Read more]
tom replied to the topic Mum's beginning treatment on Cyclophoshamide and Bonefos in the forum Treatment 11 years, 9 months ago
Hi Sandie
I hope the MRI has good results for you 😉 as for Mum being Sickie
To be fair I only had the sickness when I had my SCT and it was for a couple of months
I was using Sick Tabs, keep going in that sweetie drawer am sure it is good for us lol.
Take care and love to you both
Tom Onwards and Upwards xx
tom replied to the topic Disability Living Allowance in the forum General 11 years, 9 months ago
Hi folks
Thanks for input , yes Tom you have to be near dead before you get anything. I am of an age (57) that I can draw my frozen pension and if I pack in work can claim the one I pay for now, but my frozen one gives me next to nothing BUT if
I pass away before I reach Retirement age it pays my estate £29 K 😀 so am gonna leave it and see…[Read more]
tom started the topic Disability Living Allowance. in the forum General 11 years, 9 months ago
Hi All
I was going to try again to apply for DLA so I phoned my Dr's Office to ask if he would give me a form to say that I have MM and its a Terminal Illness 🙁 got a phone call today from the Cancer Nurse and was told I dont qualify :-S . I was told that I need to be near unable to walk/Cook and or clean myself or only have 6 months to live…[Read more]
tom replied to the topic Bend and stretch for Cycle 3. in the forum Treatment 11 years, 9 months ago
Well Done that Dai
But am sure you know that we all knew you could and would do it (am sure that makes sence?)
And as This Scunny Lad says Onwards and Upwards
Tom x
tom replied to the topic Bone Marrow Biopsy in the forum General 11 years, 9 months ago
Hi Trish and Peter
Gosh I honestly hate the wait hate it even when I know am going to be Ok cos I fel greatbut the wait (for me) is always the worst.
Fingers crossed
Love Tom Onwards and Upwards xx
tom replied to the topic Sam has relapsed. in the forum General 11 years, 9 months ago
Hi Nicki
Dont forget when you read things online or in papers all MM patiants are differant so I would (and do) just concentrate on the good bits 😎
Stay well and strong.
Love Tom Onwards and Upwards xx
tom replied to the topic Pete's SCT – Done – now the recovery!!! in the forum Treatment 11 years, 9 months ago
Hi Ann and Pete
All sounds good to me you two are doing well 😀 the need or wanting food will be lost for a time am afraid but it will come back (you should see my belly lol) , Its lonely in Isolation but all Pete will want to do is sleep (if he is like me)
Keep well its on a roll now
Love Tom Onwards and Upwards xxx
tom replied to the topic Treatment update. in the forum Treatment 11 years, 9 months ago
Thats More great news for us all 😀
Enjoy and long may it continue
Love Tom Onwards and Upwards xxx
eve replied to the topic MRI scan in the forum Treatment 11 years, 9 months ago
Hi David
Hospital 500 yards,you lucky devil,no problems for you.blood test morning,phone you. Up,and pop over for injection .
Slim had 6 cycles which surprised me as,he had just completed 6 cycles of CDT,only to find after BMB the Myeloma had increased in bone. Marrow but was showing on Kapper Light Chains as in remission,that is why BMB for…[Read more]
tom replied to the topic 2nd cycle of PAD started this week in the forum Treatment 11 years, 9 months ago
As others have said Tom Great Blog, you can now class me as one of your Stalkers ha ha.
Well done and Keep well
Tom Onwards and upwards
tom replied to the topic First time for everything… in the forum Treatment 11 years, 9 months ago
Hi Dai
Well looks like your doing Ok
Am sure you will be Spot on for your next lot of treatment on Monday. But My fingers will be crossed just the same.
Tom Onwards and Fingers crossed Upwards 😀