MANDY PHILLIPS

  • eve replied to the topic Calling Eve in the forum Off topic 11 years, 10 months ago

    Hi Everyone

    Well we made it,and when I learn how to put pictures on here,you might see some.

    Has taken a fair time to get over the flight home,at the moment Slim is doing better than me,he,s waiting on consultant for the ok,it's a bit of a worry every 2months wondering if its all ok,as Slim is one of these people that it no longer shows…[Read more]

  • eve replied to the topic Velcade in the forum Treatment 11 years, 10 months ago

    Hi Maureen

    My husband did 6 cycles after CTD failed for him,tolerated it very well,went on to SCT and is now in remission .hope every thing goes well with your husband.

    Time soon passes,the worst thing was having to go to the hospital bloods in the morning then home and back again twice a week,use to look forward to the week off.Eve

  • tom replied to the topic First time diagnosed in the forum Newcomers 11 years, 10 months ago

    Hi Paul
    A warm welcome to the group, it's not an easy task Paul but you can do it, I did it in 2009 bit rough at times but trust me well worth it.

    Good Luck in your road to remission.

    Tom Onwards and Upwards

  • tom replied to the topic Yes it has bombed in the forum Treatment 11 years, 10 months ago

    Hey Keith
    You know am sorry it never worked 🙁 you have been through the mill with it.

    I hope the CDT works for you, just to let you know it was my first attack on mm was that and it put me into remission, I hope it works the same for you.

    Good Luck with it.

    Tom Onwards and Upwards

  • tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago

    Hi Lesley

    Your more than welcome, now don't forget any question you feel you need to as then fire it in here ????nothing is too much to ask you now you are here will always have an ????to bend.

    Love Tom Onwards and Upwards xxx

  • tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago

    Hi Lisa and Mick

    We have a few on here doing great and not having a SCT and I think the Dr's are nw thinking that its best if we don't have one ? .

    I was a bit washed out during my CTD but it came back,not same as I used to be but doing good.
    Stay well .

    Love Tom Onwards and Upwards xxx

  • tom replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago

    Hi Lesley

    Its not a walk in the park to be honest BUT it is doable as we say I have had mine since 2008 (ish) CTD then SCT in 2009 and am now Drug free and doing well8-)

    Stay fit and take it one day at a time.

    Love Tom Onwards and Upwards xx

  • tom replied to the topic Phil's SCT Journey in the forum Treatment 11 years, 10 months ago

    Hi Megad and of Course Phil

    Well Done you two, sat at home as proud as punch and so you should be 😀 .
    Now I need to say this first, Now you are home Phil its not all done Please take your time and keep your temp checks regular as it will take you a few more months before you feel the difference, if like me I woke up one morning and knew Just…[Read more]

  • eve replied to the topic So Alone in the forum End of Life and Grief 11 years, 10 months ago

    Hi Sue

    How are you,??? Just to let you know,we are thinking about you,do not worry if you cannot reply,everyone understands.Love Eve

  • eve replied to the topic Dry tongue and mouth in the forum Side-effects 11 years, 10 months ago

    Hi Tina

    Would agree with Tom,you have along way to go,Slim has the same problem,try sucking sweets helps with moisture ,Slim is getting a bit better,but sometimes he goes to speak,and because his mouth is so dry,he does not make sense.Always carries drinks with him no matter were we go.Eve

  • eve replied to the topic Relapsing in the forum General 11 years, 10 months ago

    Hi Jo

    How are things going??? The Velcade is not so bad,just all the hospital visits !!!

    Hope you are managing to get out and about,and results going in the right direction Love Eve

  • eve replied to the topic I feel so frightened in the forum Newcomers 11 years, 10 months ago

    Hi Lesley

    It is very frightening

    when you get that final answer,but we felt after months of not knowing what my husband had a sense of at least we know now,although I did burst in to tears at the doctors surgery anger was the next feeling why did the doctor not listen to me when I told him how ill Slim was,it took another doctor in the…[Read more]

  • Hi Stevo

    Its been a long time since I took them and used to take 10 Tabs @ 8 am and another 10 Tabs @ 11 am, was I bad with them ?? Lol I once asked the young bride (elaine) if i was bad on dex? and she just tapped my arm and said "Its over now your better! and walked away ? am sure that means I was Bad lol.

    as the Ladies say its like having…[Read more]

  • Hi Steve

    When are you taking the Dex,should be early in the morning as possible,it did make Slim argumentative,so certain he was right,plus became anxious at my driving luckly he did realise it was the Dex,It gave him a good appetite for a few days,so that was good.
    The bad thing about it,is it mask infections,so you have to be careful and…[Read more]

  • tom replied to the topic Harvesting for SCT in the forum Treatment 11 years, 10 months ago

    Hi Peter

    Well av seen a manky Butchers dog more than once to be fair Ha ha, well you will lose a bit but trust me it will come back with a vengance lol

    I hope your Young Bride has a great Birthday and am sure you should be doing something on the 17th that will keep you out of bother.

    Catcha Later and Take care

    Tom Onwards and Upwards

  • tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago

    Not a Problem Lisa hope Hubby (dont know his name? ) is soon better and bear in Mind the treatment and side effects differ from each of us.

    Where is Hubby (name) being treated?

    Love Tom "Onwards and Upwards xxx

  • Hi Peggy

    Am gonna Google "Smeegle" he he ?

    Hope ur home now and all settled in? sorry you had a bad time but am sure you will get better soon, stick with it, it works.

    Love Tom Onwards and Upwards xxx

  • tom replied to the topic Bendamustine Bombed? in the forum Treatment 11 years, 10 months ago

    Hi Keith
    Well you like to have a bit of a rough time dont you ? am sure i told you Nice and "Smooth" with a bit of Vodka and a few nuts keeps my Blips (thats what yours is am sure) at bay 😀
    Am sure you aint gonna let it beat you Keith am sure you have more fight in you its getting near spring and am sure that helps us all M8.

    If you do…[Read more]

  • tom replied to the topic Just got a diagnosis in the forum Newcomers 11 years, 10 months ago

    Hi Deb

    A warm welcome to the "Scary" place ?? well its not that scary its a great place for advice/help and a place to near cuss with all the problems that are thrown at us due to the MM.

    I wont ask you not to worry because you will, I will tell you we have loads of Members here that have gone through what you are now going through and…[Read more]

  • tom replied to the topic Finished CDT in the forum Treatment 11 years, 10 months ago

    Hi Lisa and Hubby

    Am sorry Hubby is having too many infections? (what kind of infection?)
    As for the CDT I was on that in 2009 it made me tired that tired that I went on sick during my 4th cycle 🙁

    Lisa always keep an eye on his temp and stuff as the Dex can hide an infection, am sure you have been told to ring the ward that he was being…[Read more]

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