Hi Wendy

Nearly missed your post!!! It would be easy to say not to worry,but after enjoying so much freedom from MM,it must be very depressing to think you have to start treatment,lets just hope it's a bit of a blip,if you start preparing yourself for it,it will be like livening on a roller coaster,Slim takes the attitude if you cannot change…[Read more]

Hi Daniel

You have come to a good place for information,and you and your dad can be assued people will give you all the help and support they can.

Please get it out of you mind how long,!!! It sounds bad but there is so much treatment these days,as you know it is treatable but alas no cure,it buys time,your dad had a good response first…[Read more]

Hi Daniel and Dad

Am sorry your Dad is having trouble with his back 🙁 How long are you looking?? well truth is no one can say apart from the Dr who will have a good Idea, But my thinking is that it could be a long time as they are getting your dad ready for a SCT 😀

Stay strong Daniel am sure your Dad will be well looked after during…[Read more]

Hi Wendy
Hey I hope its just a Blip young Lady 😀 and your KL drop to normal, its a worry everytime we go to have bloods checked I worry about it everytime the date comes round :-S

Lets Hope all is soon back ro normal when you go Feb 😎

Love Tom "Onwards and Upwards xxxx

Hi Keith

I can understand why you are feeling down and the whole thing must be so tiring ,ask you self how you would feel this time of the year without having MM.most people feel a bit washed out,cold weather rain,and with you the added trips to the hospital,
I would try to look on it as just a blip,we all know how even a cold can effect…[Read more]

Hi Heather
Your Welcome, I am not sure which I have I am just pleased my consultant knows he he.
Love Tom Onwards and Upwards xxx

Hi Megan and Phil

Don't nick it just take a photo of it,cos if you nicked it you would only bump into it at night he he.
Doing good you two keep it up

Love Tom xxxx

Hi Tina
13 weeks is not that long to be fair I am oh lord knows how many months post I am and thirst is a Devil for me. And as for the sleep I also have a nap in afternoon.
It just takes time Tina.

Love Tom Onwards and Upwards xx

Hi Peter

How you doing ? All set for it. It will go smother than that pint we are due .

Tom Onwards and upwards

Ha ha I bet it is, I hope you don't get chemo brain he he

Hi David

You would have been first to put your hand up.David,we all want the same thing,a cure,David Ian sure before your time is done,new trials will be coming along,and I believe passionately this is the way to a cure,saying that it,s Slim who takes the Drugs

My admiration goes out to all myeloma patients,even the ones who decide no…[Read more]

Hi Peter,

Just to wish you good look with SCT,not very nice at the time,but if you achieve extra time it,s well worth it.

A few tips for you,take your own mug in,as hospital vessels not big enough,take old clothiers that can be dumped,I can assure you if you do have any accident s your wife will not want to take your clothes home,physo…[Read more]

Hi Steve

Pleased your doing well and as for getting dizzy if it was me my young bride would tell me I was born dizzy lol.

Keep fighting it steve.
Happy new year.

Tom Onwards and Upwards

Hi Babs

my husband had his SCT,on X1 trials,then was randomised for no treatment,at first,with the knowledge of no treatment follow up,it felt very strange,but now we are looking at it as a bonus after 2 years of constant treatment,he attends hospital once every 2 months for Zometa,and at the moment consultant once every 2 months,this gives us…[Read more]

Hi Maureen

I would not base your knowledge of one department on were you should have treatment,your husband ,s treatment for spinal work,might be different from the cancer unit,some have just designated wards and some are better than others.
My husband had a choice of 3 local hospitals for treatment,we chose the one first attended as he had…[Read more]

Hi Peggy

Sounds if you have had a bit of a do,do not rush getting out if you are not right you will only find yourself back in,in no time.

As for the comb over have a word with a nurse,see if they can find scissors ,must have them in a hospital,they did in my day.

Best of luck hope things start picking up for you.Eve

hi Heather

it is a bit mind blowing when you join this club,lots of information to take in,it,s a learning curve,try not to worry ,you will in time learn all the jargon,and will become an expert on your husbands condition.

my advise is get in touch with Ellen she can put you in touch with someone who you can talk on the phone so you do not…[Read more]

Hi David

And a Happy New Year to you, and a Happy 70th Birthday.
Never suffered leg cramps that often so never looked into it at all.

Hope the post from Michele works for you

Tom Onwards and Upwards x

Morning Megan and phil

I tell you that stand is a Buger to get rid off ha ha, but it wont be long now before you see the back of it.
Re the bleeding after brushing teeth? well I hate to admite it but when I was having mt SCT when moth and gums got sore I never brushed but used Plenty of mouth wash a bottle used to only last me two days at a…[Read more]

Hi Heather and John

Sorry you had to join us but a warm welcome to you both.
I cant help you out on this as I have just had CDT then SCT in 2009.

Am sure some one will be on that has or is having that treatment.

Where is John getting his treatment?

Good Luck in the road to remission.

Tom Onwards and Upwards xx