How is the Coffin going David? I was looking at the photo's you posted the other nite.

Well done on the saving Money lark Ha ha, but am sure it will be years before its needed 🙂

Tom "Onwards and Upwards" x

Well I have seen your Photo's on "Face Book" and I think you are trying to rub it in Lol.

Have a great Time you two, and dont burn 😎

Tom xx

Hi Mari and Steve

Well I for one knows what your Steve is going through and am sure my young bride Elaine knows what you are going through, the struggle to eat was a worry to Elaine but for me I just didn't care if I ate or not 🙁 But in the end I have ate wayyy too much now am up and running and I know that Steve will be getting to that…[Read more]

Hi Ray

And a warm welcome to you, Just wanted to tell you ask Away no Q is too silly for us lot ha ha.

Good Luck with your Road to remission.

Tom "Onwards and Upwards" x

Hi Sarah and Henry
It is nice just to have that result from the BMB,so we know how you felt,here is were you start doing all the things that you keep putting off,have those holidays,and days out,and just enjoy your second chance.

Live your life,for all those people who are fighting this disease,enjoy it to the full.Love Eve and Slim.

Hi Sue

All the things you say in your post are so true but trust me Sue you will get through it and the counselling is a good way to start, I had a bit after my SCT didn't think I needed it didn't think I was weak to need it? DID I NEED it ?? too true I did, started to feel better before he stopped for coffee 😀 had a couple and if I felt the…[Read more]

Your More than welcome try and stay strong Hugs for you xxxx

Morning Mari and Steve

Well lets hope its faster on the way back up for Steve, its a long wait (or seems it) waiting to get ill before you can get better :-S strange as it is, the sooner they work out how to make you better without making you Ill will be a blessing for everybody 😀

Thinking of you on the Road to remission.

Love Tom…[Read more]

Hi Min

This little one will be for my daughter,her thoughts are never far away,from Matty,she is strong,but at times finds she is over whelmed,It is usually when she does not expect it. Thanks again Eve

Hi Dai and David

Yes Dai you are right,I am impatient,it just seems to go on for ever.

David this maintenance treatment is part of the Myeloma X1 trials,after SCT you are randomised for revlimid or Zolinza,or not treatment,Slim got no treatment.

How are things going with you???? Love Eve

Hi Keith
Good to hear you are feeling better after the large doses of Dex,Slim never had massive doses of Dex,in fact after the pneumonia,they reduced it to 20ml a day on a four day cycle on the trials,so weight loss on heavy steroids still seems iffy.

Slims in remission,and on trials is now receiving no treatment,would love to say he,s…[Read more]

and if this works I copied (am sure its Ok 😀 ) the why the "Way Up" was started.

[b]A brief History of Way Up

In the Spring of 2009, I asked the then Chairman of WAY, Caroline, if there was anything I could do as a WAY volunteer.
Being over 50 myself, it seemed a good idea that I look into doing something for the chronologically…[Read more]

Hi everyone I done the google for you as Min suggested and here is the Link http://www.way-up.co.uk/ just click the link or "Copy and Paste"

I hope it helps for those that need it.

Love Tom

Hi Mari and Steve

Soon be all over Mari,but take it easy that journey alone is a horrible one,I was so tired just going up and down all those steps at the station was awful.

Slim had a driver for meds,could not keep anything down,even now he will not touch stuff he was sick on,cold milk and ice cream seemed to help.I just stocked the fridge…[Read more]

Morning Mari and Stephen

Well done on the SCT its now as you know a waiting game for Steve to get it all put together and start the healing part. Good Luck to you Both and dont forget mari you also need to rest 😀

Love Tom "Onwards and Upwards" xxx

Hi Joanne

Sorry to hear your dad is still not getting better, but am sure when they find one that Fits your Dad he will be doing good then its just trial and error for most of the time.
Cant help with the velcade But wanted to wish you and dad Well

Love Tom "Onwards and Upwards" xx

Hi Tina

Well done on that Collection Girl 😀 am proud of you 😎

As for the RT I haven't had any but my young bride (Elaine) had 25 sessions of it due to breast cancer 🙁 and yep she was tired but it went well skin started to burn a little near the end of the treatment but they gave her cream to use. Elaine is doing great now and is…[Read more]

Hi Balders

A welcome to the site I hope your Mum is soon sorted, am sure some one will pop in and say a few things about the treatment and side effects your Mum is having.

Good Luck on your Mum's road to remission.

Tom "Onwards and Upwards" xx

Hi Sarah and Henry

Wished you well on "Twitter" and am gonna do same here 😎

Well done you two you are now "Onwards and Upwards" enoy the remission I am 😎

Long may your remission last 🙂

Love
Tom "Onwards and upwards" xxxx

Hey Girls as a mere "male" I can only add I was nearly bald before SCT and went Bald then Back to Nearly Bald was my hair brittle/dry ?? I aint a clue (am a male) but Hope you get it sorted and some better answers than I have gave 🙂

Lots of love Girls xxxx