eve replied to the topic Second SCT underway at last in the forum Treatment 13 years, 5 months ago
Hi Mari
I f I am correct that is a few floors up,turn left out of lift and walk down and it is on your left 2 wards through one door.!!!not very good views from windows,but bigger rooms,and from what I remember they would even do cheese on toast,bigger kitchen.It is roughly half a mile all together from Denmark Hill station.Slim was in there…[Read more]
tom replied to the topic Helps me in the forum End of Life and Grief 13 years, 5 months ago
And am Sure it will help others Thans For sharing.
Love Tom xxx:-D
eve replied to the topic VCD starts Tuesday! in the forum Treatment 13 years, 5 months ago
Hi Pat
AL is similar,it is rarer,I think 600 cases a year,last time I looked and only one hospital Royal Free,there are a few people on here with both Amyloyds plus MM,they usually pop up in related conditions.
It is not knowing that causes sleepless nights,so once you do know you feel you have something to fight,Velcade works for MM.
Its…[Read more]
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 5 months ago
Hi Vicki and Colin
When Colin's Back is not too good then that calls for a lean over and a shoulder charge 🙂 and am sure that will work just as well but it needs plenty of screaming to go with it ha ha.
You two enjoy the week 😎 it aint gonna be warm but it will soon be christmas ha ha
Love Tom "Onwards and upwards" xxx
tom replied to the topic Second SCT underway at last in the forum Treatment 13 years, 5 months ago
Hi Mari and Steve
Am wishing all good things for the SCT I hope its a fast recovery and soon out and getting fit.So head up and straight in 😎
Love Tom "Onwards and Upwards" xxx
tom replied to the topic SCT… update in the forum Treatment 13 years, 5 months ago
Hi Etta and Craig
Its No problem Etta and you are Both more than welcome 😀
Etta am plesed you are starting to feel better, when I was getting better (and I could tell) I used to count the days then the months and each day was getting better (still had the odd off day :-/ but then dont we all 🙂 ) stopped counting the "Good Days" after 6…[Read more]
eve replied to the topic Ivan's SCT in the forum Carers 13 years, 5 months ago
Hi Cathy,
Well Ivan is on his way,it amazing how quickly they recover from what seemed at the time,as will he recover.
Give it time Cathy he will get there,you just make sure you get some rest,when he comes out,it will get harder for you,as cleanliness,washing and cooking will take up you day,so try to have a rest now,if anyone offers help…[Read more]
eve replied to the topic Why/ in the forum End of Life and Grief 13 years, 5 months ago
Hi Judy
It is not unusual to feel this way,after a few months any one will tell you it is part of the grieving process.You want answers and are entitled to ask questions.
I have always made a point of keeping records of blood results as they can tell you a lot about a persons condition.
When you saw the consultant on the Tuesday who told…[Read more]
eve replied to the topic second Sct – funding in the forum Treatment 13 years, 5 months ago
Hi Mari
How are things going???? You must be back at school now.Eve
eve replied to the topic Manchester Infoday 22 September in the forum General 13 years, 5 months ago
Hi
I just wish they would do one south of London,just to far to travel, bad enough having to go to Kings,every few months.So unless it comes my way will not be going to info day. Love Eve
eve replied to the topic Spam/junk in the forum Off topic 13 years, 5 months ago
Hi Everyone
If it is any help to anyone, I tend to look at peoples profiles before I reply:-P
If some one is not prepared to identify themselves,it is questionable,some of the posting is more than questionable Dai,its sick.Eve
tom replied to the topic Colin SCT plan b! in the forum Treatment 13 years, 5 months ago
And may I say a well said that Dai 😀 I for one have (nearly) always said throw it at me and stand back and let me Fight it head on. and if that fails find me something that will work I honestly think its head working that HELPS make you better with the pills.
Now you all stay strong and well and face it for all it is 😎
Love to you all…[Read more]
tom replied to the topic Newly diagnosed with SMM in the forum Newcomers 13 years, 5 months ago
Hi Sarah Jane
A Warm welcome to the site I dont think I have ever "Smoldered" he he but am sure members like Ted will give you the info that you need.
Take Care and stay strong 🙂
Love Tom "Onwards and Upwards" xxx
tom replied to the topic So Sad in the forum End of Life and Grief 13 years, 5 months ago
Dear Gail
I am sorry to read that your Beloved Howards has Lost the Battle with MM, I am sending you My Condolences and a Lot of love and Hugs for you at this sad time.
I hope you have Family and Friends around you to help at this sad time.
Lots of Love. Tom xxxx
eve replied to the topic Newly diagnosed with SMM in the forum Newcomers 13 years, 5 months ago
Hi Sarah
This is just to say hello,sorry I cannot be much use to you,Slim never did smouldering,went straight in with AKF plus hypo-calcaemia,.
Lots of people at all different ages with SMM ,so I am sure you will get some reply,s you could try the under fifty,s lot,you have to ask to join.
Hope you stay smouldering for years and years. Eve
tom replied to the topic ZOLINZA in the forum Treatment 13 years, 5 months ago
Eve and You Slim, time is what it takes am afraid no fast fix for us poor beggars :-S
The Chest is where Most of us suffer mine is bad every now and then and I stopped smoking in 09 😀
Tell Slim not to get Jel just get even, and even Better than I 😎
My Stems will be 3 years young this up and coming December 😎 not telling everyone to…[Read more]
eve replied to the topic ZOLINZA in the forum Treatment 13 years, 5 months ago
Thanks Tom
Time will tell,Slims got a chest infection at the moment,and being sick a lot,every time I think he is picking up,down he goes.At least he is holding his own at the moment
I keep telling him about you,how good you are doing,all that vodka you drink,2 years on and going strong,he,s jealous Tom lol.love Eve
tom replied to the topic Anyone in North East Scotland? in the forum General 13 years, 5 months ago
Only the one Eve Lol
I have a few good friends that came from the Pool 😎 But Jay when he is in drink I cant understand him Nor can his wife of some 40 years Lol.
And Yes it is a Good Job we can and do laugh it keeps chapped lips at bay Lol he he xxxx
You all have a great week end xxx
tom replied to the topic ZOLINZA in the forum Treatment 13 years, 5 months ago
Hi Eve and Slim
I have got everything crossed that Slim has a long and healthy Remission and am sure he will do it
Love iccle ole me that "Onwards and Upwards Chap 😉 xxxxxx
tom replied to the topic Stem Cell Collection – Second Attempt! in the forum Treatment 13 years, 5 months ago
Now thats the way to "Rock" Well done Chris and your Team 😎 and am sure your Story will be a great help for those struggling to Drag the Iccle Stems Out (Colin)
SDo Once again My Friend a very well done and Good Luck for the next round 😎
From one "Onwards and Upwards to another "Onwards and Upwards" 😎
Tom x