Hi Eva

Thank you for the information,it all helps,we are not private,if we were I think I could argue a good case for having some form of maintenance,When Slim was going through his treatment with CDT,everyone thought he was on his way to remission,as his blood results have always been good,and his kappa light chains were well on there way…[Read more]

Hi Gill

Matty had a long service,but I do remember some were in the middle,she said anyone who had there own believes and thoughts,were welcome to say a pray or have a few minutes silent to pray in what ever they believed in.!!!!

It is very sad,that people cannot gather to say good bye to a person ,in there own way,Gill you do not even have…[Read more]

Hi Benz

Just to say welcome.

Min you should know Tom by now give him a Vodka and ask him to do any impersonation ,he could even sound like me,Ore rite there kid,us scoucers never went to school.

Good job we can laugh,in the position we find ourselves in.Eve

And you Min gave me something to think about and that is
:::http://www.direct.gov.uk/en/MoneyTaxAndBenefits/BenefitsTaxCreditsAndOtherSupport/Bereaved/DG_10018703

I hope this helps Others am sure Gonna show My Young Bride it 🙂

Love Tom xxx

Ha ha Min Lol am sure My Accent Must have come through on my posts ?? would have done if I came from the Emerald Isle as I would be telling myself to "Feck Off" lol.

I have to admit that My Young Bride Elaine the farthest North she has been is the Love Capital of the North "Gretna Green" to have our Marriage Vows Reaffirmed on the day of our…[Read more]

Hi all

Yes Dai I have lost in cyberspace some posts that I thought had gone BUT ??? I put the lost posts down to my Vodka drinking and thats why I lost them :-S

Tom (Not sure if it was him that lost the posts) "Onwards and Upwards"

Hi Benze
As for me I am/was treated in Scuntorpe and Hull but am a Scot from Holytown near Motherwell, but good luck 😎

Tom "Onwards and Upwards"

Hi Helen
Thank you for more information,it all helps,I agree with you,we know it,s a trial,but cannot see it being with drawn if its working.

As you know Slim has already used Thalidomide and Velcade,and in general Is not in the best of health,with lungs and kidneys.So my way of thinking if any drug keeps Myeloma away it must be a good…[Read more]

Hi Dai
I see were you are coming from Dai,and yes randomisation is the last part of the trial,which has been going on for some time,that is one of the reasons they have now introduced Zolinza which has been used for main stream chemo.

As you know information from America is saying a little and often to kill Protein,this is what Zolinza…[Read more]

Hi Everyone
Well Slim has been randomised for no treatment,which in some ways leaves me wanting to ask questions.???????

As Revlimid is now been accepted by the powers that be as a treatment.If Slim came off the trials could he have it as a maintenance treatment????

Is any one on here not on Trials but on Maintenance…[Read more]

Hi Gill

Well you are on the start of another journey,this is the time to be a bit selfish,this is your husband you do exactly what you want,and arrange a funeral that will please you.

my daughter had a humanist funeral for Matty,at Bobbins,I have to say the woman who did the celebration of Matty,s life was excellent,she had phone calls after…[Read more]

Now Look what you did Gill I went on You Tube to listen to "unforgettable" and I admite I have tears.

Gill I admire you Both (yep Stephen) am sure it was hard near the end but you have both faced it with immense strenth/courage and Love, and for that I and many more folk on here and that know you both will be eternally Grateful.

I also am…[Read more]

Hi Vicki and colin

Well done on getting the funding but its a shame it has to be fought for >:-(

The other dose of cyclophosmahide if it is needed then its a case of OK throw it at me I and everyone else that gets near me will suffer for a few days :-S so let them all Be warned 😎

Tell Colin to stay Posative as its the only way to…[Read more]

Hi Tina

Wow you have got it all down to a T and am sure it will all work out keep strong and fit(ish)

Love and Hugs

Tom "Onwards and Upwards" xx

Hi Les

Thats the way to rock 😎 wishing you luck for getting off the velcade and kidneys up and running smooth.

Tom "Onwards and upwards"

Hi Mavis

I do not think you can be to relaxed about constipation,as it will create all sought of problems.
Slim got to the position needing ,Movicol Laculose plus Senna tablets,even now I nag him about his bowels,Movicol Twice a day will help your bowels to work at moving the contents,rather than just getting rid of it,so the bowel will work…[Read more]

hi Cathy
Have you found some peace of mind with the knowledge you have gained????
It is hard Cathy,and upsetting to watch some one you care about going through this,but at the end of the day,is there much choice,you just have to not look to far ahead and think we will get through this,you keep asking questions.

I know there are people on here…[Read more]

Hi Andy
It is madding when you travel a long way,only to find it is a waste of time, lets hope it improves.
Andy since there is a chance Slim might go on maintenance for Zamiza,i started to read up on it with the Myeloma Beacon some interesting trials,one being Velcade and Zamiza,might be worth looking at as Zamiza is a prohibiter, that breaks…[Read more]

Hi Gill

So So sorry that Stephen has died,I know how hard it is to let go,to stop that clock and wish for time to go backward,but it does not Gill,this is the time for your tears,I hope your daughter and Stephens can not only help you practically but are with you,to give you some comfort.

It must have been awful for you,to Stephen this way,I…[Read more]

Hi Mavis

Well I for another one know how you feel with [u][b]"That" [/b][/u]problem am sorry to say, but I was given "Strong Codanthramer" 10 mls at night as and when needed it worked wonders 😀 till I thought I got through the [u][b]"That"[/b][/u] bit but it was still with me. all sorted now though might even be a little bit loos since my…[Read more]