tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 5 months ago
Hey you two a good row is good it clears the air (think of thunderstorms, how good the air feels after one)
My Young Bride and I have struggled a fair few time of her trying to help me up of the floor many a time.
Good Luck with the Pain relieve hope that is soon sorted out.
Love to you Both
Tom xxxx
tom replied to the topic Another joining the Stem Cell Transplant Brigade! in the forum Treatment 13 years, 5 months ago
Hi Lyn and Pete
Trust me you two the light is at the end of the tunnel I had my SCT in December 09 not a good month even if i did miss Santa ha ha, but it was well worth it.:-D
Would I do it again No problems as it has made me fit (ish) and in remission and drug free in a couple of years still down the line 😎
Just take one day at a time…[Read more]
tom replied to the topic RE: Newcomer… in the forum Newcomers 13 years, 5 months ago
Hi Jennifer
Mine is just a welcome as I went straight into MM 🙁 dint have chance to smoulder (or I dont think i did)
Stay Strong and Good Luck on Alan's road to remission.
Love Tom "Onwards and Upwards" xx
tom replied to the topic Zometa – is this available on NHS in the forum Treatment 13 years, 5 months ago
Hi Gill
I had Zometa for two years after my SCT then it stopped so I think two years was/is the norm and I have never paid for any treatment even before it became free for cancer sufferers. My Dr had a Nurse fetch my stuff up to the clinic and if i needed any thing else my Nurse Heln woulg go and fetch it 🙂
Hope its soon resolved
Love…[Read more]
tom replied to the topic 12 months since my stem cell transplant in the forum General 13 years, 5 months ago
Gosh Wendy now where has that 12 month gone??
Happy Birthday Stem Cells, you have a great host so behave 😎 Long may it last Wendy.
Love and Hugs to you and those iccle stem's
Love Tom "Onwards and Upwards" xx
tom replied to the topic Paraprotein news in the forum General 13 years, 5 months ago
Hi Andy
You are getting their slowly am afraid but getting their non the less 😀
Keep them going the correct way and Trust me you wont need a brollies as I am told you dont get wet inside a Pub??? well I do but it is the inside 😀
Have a great Time and relax with a pint or two.
Tom "Onwards and Upwards" x
tom replied to the topic Good News in the forum General 13 years, 5 months ago
Hi Eve
Well am pleased you will be in contact so you can sort me out if I get Nawtry Lol.
You two have a great time and I promise I will behave (fingers crosssed he he)
Catcha Lata
Iccle ole me xxxx
tom replied to the topic A BIG Hello in the forum Newcomers 13 years, 5 months ago
Hi Amanda and Bob
Welcome, I hope you get out of this site what I have over the years 😎
Let us know where Bob is being treated as am sure we will have some in here that are have been treated their and can give you more advice.
Ask away and hope your road through the MM is a smoth one.
Tom "Onwards and Upwards" xx
eve replied to the topic Revlamid infection in the forum Side-effects 13 years, 5 months ago
Hi Bill
Just been catching up on site and noticed your posting.
I do not know about infections with Revlamid but I do in general once you start chemo,you do have more chance of infection as your body is at low ebb so more prone to infections.
My husband contacted Septic Pneumonia,that put him in hospital for 22 days 9 in ITU ans left him…[Read more]
eve replied to the topic Good News in the forum General 13 years, 5 months ago
Hi Jo
I was so fed up with not having a break,and waiting on the results,I thought good or bad we will do something.So we went to France in the Motor Home only down to Le Treport,came home Thursday,saw consultant Friday,had booked a last minute cruise last week to the Fjords in Norway,leaves Dover Sunday just 7 days,So happy days.:-D 8-)…[Read more]
eve replied to the topic Myeloma XI Trail in the forum Treatment 13 years, 5 months ago
Hi Amanda
Welcome to the site,this site can help in lots of ways,at the moment both of you must be in shock and information coming out of your ears.
As your husband starts this journey,my husband has just finished the first part after having a SCT and is in full remission.which we hope to enjoy for as long as possible.8-)
My husband is on…[Read more]
eve replied to the topic second Sct – funding in the forum Treatment 13 years, 5 months ago
Hi Mari
I have not been on for a while and you soon loose touch with present day situations,so I did not know how things were going.its a pitty it was not done during the school term as this would have been far better for you,but who gives a s–t about the patients not the men in the grey suits,they do not even give a s–t about there staff,It…[Read more]
eve replied to the topic Paraprotein news in the forum General 13 years, 5 months ago
Hi Andy
I would love you to come on here and say my pp are down I can look forward to SCT,and I can understand your frustration,Slim has taken a long time to get were he is now.We have the added problem,that month by month we could not tell if it was working,only the BMB were giving us a true reading,with the experts telling us this is very…[Read more]
tom replied to the topic second Sct – funding in the forum Treatment 13 years, 5 months ago
Hi Mari and Steve
Well done on the collection 😀 but its a shame to hear that to help stay alive after the first fight you then have to fight for money? gosh I wish I could Spit on here Yes Spit as thats what I want to do, the money we throw across throw across the world for half of that money to end up in corrupt hands? oh Rant over :'-(…[Read more]
tom replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 5 months ago
Dear Gill and Stephen
Well you Know I am truly sorry it has come to this stage, and as sure as eggs are eggs My young bride (Elaine) and I will have to go through this 🙁 I just hope as and when it comes we both can face it with the strenth and dignity that you and Stephen have and are facing Head on.
I admire Stephen for his decision and…[Read more]
eve replied to the topic Not Looking Good in the forum End of Life and Grief 13 years, 5 months ago
Dear Gill
What can I say,drinking champagne last night,with are good news,that no Myeloma cells have been found in Slims bone marrow,and reading your news on Stephen,we are not so many worlds apart,I know you are my future,which I intend to leave behind as long as possible,and Min is your future,a year down the line.So this is are Myeloma World…[Read more]
eve replied to the topic Good News in the forum General 13 years, 5 months ago
Thank you everyone for your good wishers,we are so looking forward to going to NZ and going off in are motor home,and of course the cruise which will be a first.
When this Myeloma struck it took so much away from us,but I still felt lucky that we had done so much with are lives before Myeloma Land.
I always feel that some good must come out…[Read more]
eve replied to the topic And the GOOD news is in the forum Off topic 13 years, 5 months ago
Hi David
What a bummer,I have thought for a long time,you were preparing yourself for something,but I did not think this!!!!,do you think there might be someone sitting up there looking down,saying well you are having things to easy,I,ll give you some thing to think about?????
Well you show them David,if you can get through the Myeloma,the…[Read more]
tom replied to the topic And the GOOD news is in the forum Off topic 13 years, 5 months ago
Your More than welcome David but I think I must be the rough cut one he he.
Good Luck with the scan and the heavy drinking sesh and am sure I have seen many a over 65's drinking and dancing way past when the young uns have gone to bed 😎
Stay Well and Vasbyte 😎
Tom "Onwards and Upwards"
tom replied to the topic Good News in the forum General 13 years, 5 months ago
Well done that Eve and Slim 😎 way to go folks, and Thanks for sharing that great news it is great to read good news as often as you can, yes we are sorry for those that have sadly passed away and our thoughts are with them.
Well done you two now get orf and Enjoy 😎
Lots of Love and Hugs
Tom and Elaine xxxxxx