Hi Jean and Frank

Well I have done well I found my spread sheet when i was having my CTD and it has times I should take the tabs on a day as follows :::::

1) Granisetron, 1tab at 8 am and one tab at 8pm every 7 days

2) Cyclophhosphamide, 10 tabs at 8am every 7 days

3) Dexamethasone, 10 tabs at 8am and 10 tabs at 11 am dyas 1to 4 and…[Read more]

Hi Jean and Frank

Cant answer the Q you asked but Frank just might be like me and Loves to sing when first awake He he.

Love one singing "Onwards and Upwards" xx

Well Thanks jean

I have to admite i have two character refrences that to be honest nearly made me weep I did not know who it was He he.

Not be long Hope I get on and spread the word about Myeloma 😀 "Big Telly"

Love
Tom "Onwards and Upwards" xxxx

Hi Deborah
it does sound strange that your mums consultant did not offer an opinion,but I suppose if the trials are on offer at this hospital,it could be seen to either not supporting the trials,against his own believe.So I think your mum has to be very careful here.
If you go to the home page there is MUKS three trials,plus if you type trials…[Read more]

Hi Rachael

Nor I know about PP thingie's av said if my man is happy am happy 😎 and it has worked for me Lol.

Dont know if you use Face Book but a fair few on here use it http://www.myeloma.org.uk/patient-services/discussion-board/general/facebook/ my pickie has changed but am sure you will spot the fat (ish) face lol

Love
Tom…[Read more]

Michele My Young Bride (Elaine) tells me that and she and you are correct Bloody MM plays havoc with your own common sense am afraid to say 😛
Hope the steam soon helps and you are clear to hear again 😎

Tom "Onwards and Upwards" x

Hi Rachael

Thats great news it all sounds like it is falling into place 😀 and great to hear Kidneys are improving.

I think its a case of making do with the side effects if its clearing a big bit of the MM.

I hope your Mum and Dad enjoy the well deserved holiday 😎

Love to you all

Tom "Onwards and Upwards" xxxx

Hi Ali and Mum

See it gets better 😀 I was told that they would make me sick before they made me better and they did on both counts, and your Mum will be the same.

Give Mum a Hug from me

Love and Hugs to you all

Tom "Onwards and Upwards" xxx

Etta Good Luck with your Line Tomorrow and Hugs sent your way also xxx

Hi Deborah

What a dilema, I thought the consultant could/would advise which way to go?.

I wish your Mum good Luck in the difficult decision.

Love
Tom "Onwards and upwards" xxx

Hi Only me

I have been wondering how things were,take what ever is on offer to get you through your mums death,it is a sad thing to say,but you have a year ahead,of birthdays and lots of things knowing your mum is not there,everyone of us tread this path,and I hope knowing your mum is free from pain makes it a bit easier,it,s your Dad who now…[Read more]

Hi Ali

To me this is were the hard work begins,your mum is going to feel great about coming out,and if she is not careful will over do it.This is were she needs looking after,I found it easy to do a bit of a chart,she will be coming out with lots of tablets to take at different times,plus she needs food and drink put in front of her,does not…[Read more]

Hi Rach

I see you have got some good posts to read 🙂 and am sure it all helps, you wont be able to stop your Mum doing her bit but she will need to rest up and let her body heal.

How long was it before I got fit?? and 10% to be Honest Rach I aint 100% but am good enough 😀 but when I felt Better and knew I was better 😎 would be about…[Read more]

Hi Rach

Sorry to hear about your Mum but a warm welcome to the forum, it will am sure give you and your Mum plenty of advice and help.

My treatment was 5 cycles of CTD then SCT in december 2009 and am pleased to tell you I am in remission and drug free 😀

How is your Mum now? is she at home now??
Ask anything you need to ask and honest…[Read more]

Hello Only Me

I am pleased to read you are getting stronger and your Lovely Mum had the send off that she wanted.

I also has some Counseling just after my Stem Cell Transplant and like you found it a great help. would i do it again? too true i would would i tell people that it worked for me too tue on that also so if you need some more go…[Read more]

Hi Lynne

You are so right re "[u]try not to feel guilty thinking you could have done this or you shouldn't have thought that …. it's a hard road, we can only do our best."[/u] as My Young Bride and I have said that many a time we do the best "At that Moment" and we promised each other we would not say WE/I should not have blas bla as its a…[Read more]

Hi Lynne

I am so sorry for your loss,this Myeloma is a hard road to take,and John,s seems to be harder than most,the last few weeks must have been some of the saddest days tinged with lots of love and memories,my thoughts are with you,and I hope,that as time passes all the good memories will makes you smile.Love Eve

Hi Pennie and Andy
It is nice to hear you are sounding a bit more positive.Do not forget any problems with AA appeal,I hate to say it but things are going to get worse before they get better,sometimes the chemo takes so much out of you.
I had to replace white carpets with laminated flooring,I will let you guess why.:-|

The more chemo and…[Read more]

Hi Vicki and Colin

Well I had CTD then SCT in 09 was feeling weak and tired during and and even when having no treatment, even today I still get tired easy some days and some days I am spot on 🙂 dont get me wrong I cant do a run (dont think I ever could though he he)

Am sure if bloods are OK then Colin might be same as me and just plain…[Read more]

And you I John got you on Face Book now 😀 And Wow it looks like the place will be awash with MM tee shirts Dai.8-)

Hi Keith

Well you have some good answers so all I can say is Good Luck with it all on monday and hope you get something sorted, for me i had no problems re diabetes then or thankfully now.

Keep fit and good luck

Tom "Onwards and Upwards"