tom replied to the topic Bristol SCT in the forum Treatment 13 years, 7 months ago
Well done Stephen you sound as you are doing good 😀 keep it up and you will soon be out
Keep fit
Tom "Onwards and Upwards"
eve replied to the topic Bristol SCT in the forum Treatment 13 years, 7 months ago
Hi Stephen
Found another song that is fitting,WE got to get out of this place,by the Animals,takes me back to my youth.Eve
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 7 months ago
and if you got here the link worked lol now off for a pint 😉 xx
tom replied to the topic Has anyone seen my missing thread? Hi Ho etc in the forum General 13 years, 7 months ago
I have found it here :::::
http://www.myeloma.org.uk/patient-services/discussion-board/general/hi-ho….-hi-ho…-its-off-to-work-we-go…/#17651
Hope the link works xxx
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 7 months ago
Ho ho I found it Helen and I hope it kicks it back to the top for you xxx
eve replied to the topic Is there anything we can do? in the forum Treatment 13 years, 7 months ago
Hi Sue
I think you have to ask yourself if it had been your own consultant would you feel the same.If the answer is yes,then ask for a second opinion this is your right.!!!!
The consultant is not yours and may be did not feel comfortable having to tell you,it is a decision that is usually made after consulting other people,You need to talk to…[Read more]
eve replied to the topic Back to the dreaded D word in the forum Side-effects 13 years, 7 months ago
Hi Keith
I think I have come out in sympathy,think there is a bug going round,thought i was getting better then went down again,doing my best to keep away from Slim
With both of us being ill,I feel quite vunerable,as not use to this,we are both walking round like two old codgers,moaning every step of the way,dehydration makes your bones ache…[Read more]
eve replied to the topic Cycle 2 – side effects in the forum General 13 years, 7 months ago
Hi Jen
if I am correct your Dad is on Velcade,There is a long list of side effects,so don,t worry to much,when he goes into clinic they usually real off a lot of questions,anything that is abnormal is looked at.
The Dose of Velcade can vary its usually decided by blood test,its a good thing as they check the bloods each time.If any of his levels…[Read more]
eve replied to the topic How long before I start to feel 'normal' in the forum Side-effects 13 years, 7 months ago
Hi Tina
Well i would agree with helen, if you are managing a Motor Home, thats good,Slim cannot manage ours.
As for the burping or hiccups,just keep explaining its because of the drugs people will understand,18 months and SCT Slim still hiccups like a gooden!!:-
P
You are an eager beaver!!!!,just look at it as part and parcel of the course.
Love Eve
eve replied to the topic Revlimid in the forum Treatment 13 years, 7 months ago
Hi Pennie
I have to say I never fail to be amazed.
First as your brother has the knowledge let him help you,,he will be able to tick all the boxers,plus apply for disability blue badge.
It will be nothing like your wages,but you might be able to work from home,plus it will pay for some one to clean,and you can earn more money.
You and your…[Read more]
eve replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 7 months ago
Helen
You did it.Eve
tom replied to the topic Hi Ho…. Hi Ho… It's off to work we go… in the forum General 13 years, 7 months ago
Lolol well done that Helen Lol.
How many folk can say that they are whacked """with a capital F""" lol and get away with it he he well done that Girl 😉 sent home suspended for tidying your desk dunt sound good ha ha 😎
And am with Vicki and Colin you have beaten this MM with a great big stick 😀
Love and Hugs
Tom "Onwards and…[Read more]
tom replied to the topic Colin the sequel SCT in the forum Treatment 13 years, 7 months ago
Hi Vicki and Colin and all you others on this thread 😉
Please take a look and see if I posted on here?? am sure I did but did I click send or just move on to another post?? or is it in cyberspace?? hey ho al do another for you Vicki and Colin 🙂
Great news that you have dates and a plan for when it all should/will get done and I hope it…[Read more]
tom replied to the topic radio therapy in the forum Treatment 13 years, 7 months ago
Not a problem Ian, and the 25 sessions were done with dignity and plenty of drink after lol. we used to travel to the hospital book in then seconds later Elaine would be called in and by the time I picked a book to read Elaine was back out again, yep it is that fast, back to Sunny Scunthorpe drop car off and down to the local club, we were in…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 7 months ago
Hi Etta
Just a thought ? I had my SCT in December 2009 and I was told not to fly for at least 6 months?? so the first holiday abroad my Stem Cells had was end of July.
I know a lot of Consultants and Hospitals differ in treatment and care but just thought I would let you know?, dont know when others have been told when to or when not to…[Read more]
tom replied to the topic radio therapy in the forum Treatment 13 years, 7 months ago
Hi Ian
As I said on Face Book My Friend it will be the only Tan you will get this year in the UK.
Hope all goes well with it My Young Bride (Elaine had 25 sessions of RT in 2009 and Elaine got a bit of a Tan 😉
Good Luck with your Velcade am pleased it worked last and am sure it will work this time again.
Tom "Onwards and Upwards"…
eve replied to the topic Proper fed up… in the forum Side-effects 13 years, 7 months ago
Hi Dai
Well one time I would have just done as I have been told,I have had Slim in to hospital twice since he came out on the first on June,both times raised temp,plus visit to DVT clinic,his nuets and plates are still below normal ,so I think best save than be sorry.:-P
I was told if he is ever sick bring him in:-S ,well if i took him in every…[Read more]
tom replied to the topic Revlimid in the forum Treatment 13 years, 7 months ago
Hi Pennie and Andy
Well 12 years is good am expecting to beat that with my first SCT that I had in 2009 😀
After what you both have been through am sure you will cope pretty good to be fair.
Good Luck to getting Andy back into remission
Love Tom "Onwards and Upwards" xxxx
tom replied to the topic Proper fed up… in the forum Side-effects 13 years, 7 months ago
Hi Dai
Well you sure are fighting this bugger the hard way.
I do hope you soon get the drugs well into your system and they stop beggaring you about.
I think you are correct doing your tem more than the once before going in as am sure it will change through out the day.
Hope the temp is still col and you keep fit My Friend
Tom…[Read more]
tom replied to the topic Start stem cell in the forum Treatment 13 years, 7 months ago
Hi Mari
Yes just the three hours (or was it 5 hours ?? al aks elaine lol) on the bed and got enough (nearly for two) but the beggers put them into three bags instead of two so I was given the lot and i think that why I have done so well I had more than most of cells shoved back in that the fight was easier for me?? 😎
And Honest I have…[Read more]