MANDY PHILLIPS

  • eve replied to the topic PLATELETS in the forum Treatment 13 years, 7 months ago

    Hi Helen and Tom
    Well he is holding his own,went down to 61.4 now 62.2 so not to bad.
    As you can guess from his name ,he has always been Slim,he looks very healthy at 12st 8lb.But 9st 8Lb gives no room for any extra that might come his way.

    My thanks to you both,for your support,it does look if he has turned the corner,had bloods taken…[Read more]

  • eve replied to the topic Myeloma changed in the forum General 13 years, 7 months ago

    Hi jean
    Just a quick reply.
    There should be a notice some were that tells you ,you have every right to see results of test,and bloods are test.Next time get 20 pence out of your purse and give it to them and shame them,how dare they not give you a print out!!!!!!
    At the moment I know the results by phone but every week or so I ask for a print out,Eve

  • tom replied to the topic PLATELETS in the forum Treatment 13 years, 7 months ago

    Hi Eve

    Well I lost lots of weight and it stayed off for MONTHS but it came back and has been slowly climbing to above my pre MM weight 🙂 but I am told by my Dr that it would help if I lost a little bit (and here is him sat with a belly as big as mine lol) (((nearly)))

    Small plates and steady as Slim goes no rush it will come back Trust me…[Read more]

  • tom replied to the topic Kyphoplasty in the forum General 13 years, 7 months ago

    Hi Myra

    Well I haven't had it nor needed it but from what I gather its fairly straght forward and the benafit outways the risks?? or so I believe, just wanted to wish you luck in your choice and wait to see who has and who didn't and why ?

    Love
    Tom "Onwards and Upwards" xx

  • tom replied to the topic Bristol SCT in the forum Treatment 13 years, 7 months ago

    Hi Stephen

    Sounds are Good and the choice is Good but you will need (soon) "Dont stop me now" when your Dash has started he he, then for a time you will want "Silent Night" as you will be sleepy.

    Stay bug free and hope its not long before you are out but the day before you could play "Please release me" ha hx

    Tom "onwards and Upwards"…[Read more]

  • eve replied to the topic Myeloma changed in the forum General 13 years, 7 months ago

    Hi Jean

    Well you know about Slims bloods plus kappa light chains!!!,the bloods only give an indication of the cells,If you ask for a copy of the bloods every time you go,its states the results if they are out of the band they should be in it will show you.This way you can keep your own watch on them.

    Eg haemoglobin 9.2 g/dl (13 to 18 )…[Read more]

  • eve replied to the topic Bristol SCT in the forum Treatment 13 years, 7 months ago

    Hi Stephen
    Like you style,how about staying alive by the Bee |Gees for you next bit of music.
    Its good to see that staff are quick on the ball to relieve any side effects, sweet corn last a few days,must admit its not the nicest of smells.
    Carry on with the music.Eve

  • eve replied to the topic PLATELETS in the forum Treatment 13 years, 7 months ago

    Well its the early hours of Friday morning,and Slim is wide awake,so I am up,with a nice cup of tea.:-)
    NO Platelets this week8-)Monday bloods,Thursday a hospital visit we did not expect,Slim could hardly walk,had to be checked out for DVT,went through GP who sent us to a different hospital.All was ok,
    Today it,s bloods nice and early so with a…[Read more]

  • tom replied to the topic The Rash in the forum Side-effects 13 years, 7 months ago

    Thats great to hear, and it sounds like Henry is doing great.
    Keep it up and keep well

    Love
    Tom "Onwards and upwards" xx

  • tom replied to the topic Of Carfilzomib… in the forum General 13 years, 7 months ago

    ((((hugs)) Jo I hope your Ok xxxx

  • tom replied to the topic Good News X Two in the forum General 13 years, 7 months ago

    Thank you Eliz, and its great news. I aksed Elaine's Consultant if the pill she has to take for 5 years ( next year will be the 5th) and got a letter today from another cosultant for July to ask about treatment after the 5th all clear.

    Aways feel better if the Young Bride is checked out at least yearly 🙂

    Love Tom and Elaine "Onwards and…[Read more]

  • tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 7 months ago

    Lol with Dai and Eve lol unlike Eve am pleased I went to the loo before reading this post ha ha.

    And Peter its story's like yours we need more often, keep going and beat that 12 years your Friends have got to so far 🙂

    Tom "Onwards and Upwards"

  • tom replied to the topic Plasma cell leukeamia in the forum General 13 years, 7 months ago

    Sorry to hear about your Mum passing away, and also pleased that this site gave you all some extra strenth.

    condolences sent to you and your Family and Mums Friends.

    Take care and take one day at a time

    Love Tom xxxx

  • eve replied to the topic Plasma cell leukeamia in the forum General 13 years, 7 months ago

    Hi Its only me,

    What can I say,You new it was coming and I hope you were ready to let go.
    It still comes with lots of emotions,relief you mum is no longer suffering but you have lost you mum,who was an important person in your life.

    My condolences to your Dad sister and yourself,I wish you all well on the next stage of your journey,Love Eve

  • eve replied to the topic Seriously concerned in the forum Carers 13 years, 7 months ago

    Hi Sarah

    It is a different ball game when its your choice,if chemo is refused then palliative care is next step,then it comes to hospice which has a certain policy concerning care.
    IT sounds if Howard has chosen his path.
    It must be awful for Gail,I can look at both sides and see merit in both.Eve

  • eve replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 7 months ago

    Dia LOL still laughing,oops got to go the loo.Eve

  • eve replied to the topic Tiredness /Fatigue in the forum Treatment 13 years, 7 months ago

    Hi All
    Can i put my two pence worth in!!!
    I can not comment on the treatment because Slim has not had it, but and its a big whopping but.Slim had an anti sickness tablet that caused constipation.So much so .I ended up walking out of the hospital with the biggest carry bag of bowel stuff i have ever seen.
    Movicol twice a day Lactulose three 5ml…[Read more]

  • tom replied to the topic The Rash in the forum Side-effects 13 years, 7 months ago

    Hi Sarah and Henry

    Hope the rash is soon sorted.
    And well done that Henry back at work and going to the gym 😎
    Keep up the good work Henry

    Love
    Tom "Onwards and Upwards" xx

  • tom replied to the topic Channel 4 documentary in the forum Side-effects 13 years, 7 months ago

    Hey Folks

    I also am pleased this post has been removed and am sure we all coped with the insensitive way the Poster put it but am sure we have strong folk on here that can and would say to them where to stick the Camera and the MIC Lol.

    Tom "Onwards and Upwards" xxxx

  • Hey you tear maker's Yep I have tears a big strong Docker with tears and am proud of them Like I am with Bridget to have known her (online) has been a blessing for me.

    Her strenth her wisdom and her unselfish manner in the way she helped not only I but many many others, and am sure that those quality's that Bridget had in abundance has been…[Read more]

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