[mandyphillips41Participant]

Hi Gill

I was diagnosed last October, I am in hospital now having had my SCT today. I was on the clinical trials prior to this and I must confess the side effects I suffered were really rough. My feelings are what choices do I have so after talking to myself, reading other peoples journeys I decided I didn't really have any other choice. I am on day 4 today and have been told that by approx. day 10 I will probably lose my hair and be pretty poorly – I just don't know exactly how long I will be poorly for but I am in here for 28 days so probably feel bad for about 10 – 14 days. So if 2 weeks is what it takes then I decided after the past 7 months I can do 14 days standing on my head.
My understanding is (and again I may be wrong) that there will be no remission without the SCT.. My nurse will be in to see me soon, she is lovely and explains things so well so I will ask her opinion on your question is you would like me to?
Mandy x

[mandyphillips41Participant]

Hi Megan and Tom and anyone else that is following me x

Thanks for asking – yes I had my second stem cells put in today and everything was fine, they bought a portable x-ray machine to my room to x-ray my abdomen to check if I have a blood clot as my ankles and legs are still very swollen – I don't think of myself as a medical person whatsoever but I do think that the swollen bits is water retention anyhow we shall have the results back tomorrow..
Not really looking forward to the sitting/lying in the bed and waiting to lose my hair and get pretty poorly – I am so impatient!!!! I would sooner just be ill now and have it done with 🙂
The staff are really wonderful – nothing is too much for them we are already bonding and becoming friends I feel so relaxed and settled in here already…
Well I don't suppose I will have much to say over the next few days but I will still be visiting this site to read everyone else's progress – so good luck to everyone – much love, Mandy xx

[mandyphillips41Participant]

Hi Eve

Yes I have had my hair cut into a short bob I wasn't brave enough to go any shorter just in case a miracle happens and I don't lose it – ha wishful thinking. I am already stuck in my room not allowed out for at least 2 weeks.
Yes it's still the old hospital but the new one Is in the process of being built as we speak and it will be located just behind this one.
I will keep posting through my progress for people behind where I am up to.
I am very positive at the moment but I am sure that anyone suffering this will know good & bad days go hand in hand
Best wishes to everyone!
Mandy x

Sent from my iPhone

On 23 May 2013, at 09:03 AM, <noreply@myeloma.org.uk> wrote:

Dear mandyphillips41

eve has posted to a discussion you're monitoring:

Subject:
RE: STEM CELL TRANSPLANT

Message:
Hi Mandy

Nice to hear from you also good that you are being positive.

I originate from Liverpool,I remember the Royal is it the same old hospital,???? It was a good hospital 40 years ago, I had a baby in the Royal,we had a saying . Book your bed and then get pregnant..?

Make the most of your freedom why the still allow you out of the room,it will be awhile before everything kicks in,handy to have Internet connection,to keep in touch with loved ones and friends,including your new cyber friends.
Have you had your hair cut in advance,do not want to go plugging up Liverpool. Drains.

Why not keep us up to date on here as people who are approaching this might help them.

Keep in touch.Eve

Click the link below to view the discussion:
http://www.myeloma.org.uk/patient-services/discussion-board/side-effects/anxiety/#27793

To view eve's profile, click the link below:
http://www.myeloma.org.uk/index.php/profile/326/

Regards
Webteam
Myeloma UK

[mandyphillips41Participant]

Hi everyone, well I am on day 4 of my 28 day stay in the royal hospital In Liverpool – so far so good. I have had the intensive chemo on Tuesday and yesterday I had some of my stem cells put back in. I will be having the remaining put in today. I am still very swollen – face, ankles & feet. The doctor is prescribing me with an injection today which he says will reduce the swelling.
All in all things seem to be going well and I am on the 10th floor of the hospital so the view over Liverpool is really good.
So after the rest of the transplant today it's basically a case of waiting to lose my hair and start to feel poorly but I am feeling very positive and very strong – I just hope I stay like this
Hope everyone else is doing well.

Mandy x

[mandyphillips41Participant]

Thank you Tom.. I love this site, everyone is so positive and supportive:-) [i][/i][b][/b]

[mandyphillips41Participant]

Hi everyone, hope you are all feeling ok at the moment. Well I had my operation last week and I must say it was a great success, I have no pain from the fractured vertebras at all.
But, would you believe I now have pain from muscle spasms, the hospital have given me some diazepam to help relax my muscles, they also increased my oxycodone to 110 mgs twice a day and also put me back on the gabapentin. However I now have a date for my stem cell transplant and it is Monday 20th May so only 11 days to go. I am feeling excited and scared at the same time. I think my biggest fear is losing my hair.. I am not a vain person (well I didnt think I was) but the more I think of this the more stressed I am getting. I have a wig ready and some scarves and bandanas!!
How did everyone else feel/cope with this? I cant imagine it is an easy thing to get on with and I suppose that I have been lucky so far that I havent already lost it.
Anyway onwards and upwards at least I have my date now so I can get on with it, the sooner its done the sooner I can recover.
I will keep you all posted, thanks so much for the previous encouragement it really did hep me

Mandy x

[mandyphillips41Participant]

Thanks so much everyone for the understanding and encouragement Not had a very good week with sickness and anxiety but maybe it's because I go for my operation on Monday to repair my Vertibraes at least once that is done the pain will hopefully subside leaving me stronger for the SCT. Thanks again, it's amazing to know other people care and it does leave me feeling reassured. Mandy x

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