[marijaParticipant]

Sorry everyone if it looks like Ive replied several times but felt I had to reply to you all individually. As you can see Im very new to this site! Has made me smile today though

[marijaParticipant]

Hi wendy
I'm am scouting around on this site with interest. I recently had CTD and stem cell harvesting and am debating whether to go ahead with transplant yet or not. I was interested as to what you said about FLC. on diagnosis my lambda flc were only 64, now after CTD they are 237 with PP less than 2. I wondered whether CTD caused the increase in my FLC, not sure if you would know this but also interesting what your Dr said about myeloma being active when FLC reached 600? The reason I am debating whether to have a SCT at the moment is because as happened to you remission could only be short and from what I have read there are lots of side effects after STC. I am currently feeling well with one bone lesion and no pain just tiredness.

Maria

[marijaParticipant]

Hi to you two

Thank you for your reply and support. I apologise for not responding sooner but life has been a whirlwind since diagnosis. As an update I have had CTD and stem cells harvested and now deciding on whether to proceed with transplant yet or not. I do read this site on a regular basis and hope to give more input myself. It is certainly not an easy journey having MM but I have found lots of support out there although it can be a very lonely illness. I hope you are both well.
Take care
Maria

[marijaParticipant]

Thank you very much for your reply and I would like to firstly apologise for my very slow response. Unfortunately since diagnosis everything has been a complete whirlwind. As an update I have managed CTD and stem cell harvesting and on course for a transplant but havent decided whether to have this yet or not. I hope you are well and hope to be more active on this site in future

Maria

[marijaParticipant]

Hi Jo

thankyou for your reply and I apologise for my very slow response. As an update I have had CTD and stem cells harvested and am now inline for a transplant in which I am still considering whether now is the best time. Its certainly a journey I never would have envisaged for myself but I have managed so far and have realised that this will be a long journey. Thank you for your support.

Maria

[marijaParticipant]

Hi there Andy

Im sorry for such a delayed rsponse. Since being diagnosed life has been a whirlwind. Just an update for you, I have had CTD and stem cells harvested and currently in line for a transplant in which I am trying to decide whether the time is right at the moment. I shall keep in touch and read this site regularly. I hope you are keeping well?

Maria

[marijaParticipant]

Hi Tom
sorry for such a late response. Life has been a complete whirlwind since diagnosis. Just to give you an update I have had CTD treatment and stem cell harvest and am due to have a transplant but havent decided as yet when I should have this. Thank you so much for your reply and support and I promise I will try to keep in touch.

Maria

[marijaParticipant]

Hi Ange

sorry my reply is so late. Since diagnosis everything seems to have been a bit of a whirlwind. To date I have managed my CTD treatment, have had stem cells harvested and am trying to make a decision about transplant! I wondered how you are getting on? We seem to have a bit in common with having a 13 yr old, working in hospitals etc.. Hope you are well.
Maria

[Author]

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