[markdParticipant]

Dear Kevin
Thank you so much for your kind thoughts and offer and sharing your experience. I’d love to ask questions as they come up and also be a source of support for you if you ever need it. Like I said to K while I am getting incredible support it feels weirdly lonely because others can’t possibly understand what it is like.
Thank you very much
Mark

[markdParticipant]

Hello K
It sounds like we are in a similar position (although I am in wet and windy London!!!). I do hope things go well for you.
I know what you mean about lonely- i too am happily married and my wife is amazing but I find it very hard to talk about very much.
I am also determined to be positive and take every step one at a time.
Do keep posting and I will too and I send lots of support to you.
Mark

[markdParticipant]

Dear Rebecca, Graham, Shaun, Paula, Jane. Thank you for all the messages which make such a difference. As Jane says just reading the stories helps me to understand more and more and it is very comforting. Thank you so much for taking the time to respond. It makes such a difference to someone trying to get their heads round this new reality. Sending very best wishes to all.

[markdParticipant]

Thanks so much Shaun, really appreciate your message and good to hear you are doing well. Would love to talk more by email if you are up for that….I’m mark.davies67@gmail.com

[markdParticipant]

Hello. I just wanted to say that these notes really give me hope and comfort, thank you. I am very up and down at the moment as a relatively new smoulderer. I hope you are all doing ok. Very best. Mark

[markdParticipant]

Thank you so much for your responses. I’ve shared them with my wife as well. Incredibly helpful and one of the great things about this is the way people are so willing to share their thoughts and experiences to help others – and it really does help. Thank you so much.

[markdParticipant]

Hi there, thank you so much for this reply and your reply to my other post: I really appreciate you taking the time to send these responses. It helps so much. It’s definitely the bit between my ears I am finding most difficult!

To be honest the consultant didn’t say anything about water so I will now take that up! I have never drunk enough water so will use your tip about getting a jug going in the morning.

On the hand gel, I guess this is to avoid picking up infections (obvious really isn’t it). Ive had a cold for weeks which has been worrying me. It raises a question for me that I’ve been puzzling about: although I am smouldering and therefore don’t need treatment, will I experience symptoms? As you can tell I am pretty confused!

 

Thanks again, so much, for your response. I can’t say how much the words you and others have offered me mean to me.

 

Mark

[markdParticipant]

Thank you Rebecca and Nicky for your posts. I really appreciate it. I’m still in a bit of a state of confusion but your words are so helpful.

thank you so mich

mark

[markdParticipant]

Dear C

thank you so much for your response – it was so helpful and kind of you.

Everything you say makes such a lot of sense. To be honest since finding out about this on weds after an initial couple of days finding stuff out this weekend I have just been trying to forget about it – I’ve been laid low with a cold or flu so it’s been a funny time. Feeling a bit better today and reading your note made a big difference.

thank you so much and very best wishes to you

mark x

 

 

 

[markdParticipant]

<p style=”text-align: left;”>Dear Rebecca</p>
<p style=”text-align: left;”>Thank you so much for your reply and such incredibly helpful advice. I’m so grateful to you. What you say makes so much sense. My head has been all over the place but reading your and the other response has been so helpful. I feel like I am thinking a bit straighter now and also feel a lot less alone for which I am so grateful.</p>
<p style=”text-align: left;”>So so much of what you say resonates with me. And your quote about worry is so powerful.</p>
<p style=”text-align: left;”>I wish you all the very best. And thank you.</p>
<p style=”text-align: left;”>Mark</p>
<p style=”text-align: left;”></p>
<p style=”text-align: left;”></p>
<p style=”text-align: left;”></p>

[markdParticipant]

By the way I should have also said, I am thinking of you and sincerely hope the ultrasound doesn’t come up with something unpleasant. The way you told your story is really inspiring and gives me hope and energy. I try to think optimisitically though in reality I am just coming to terms with this.

So grateful to you

[markdParticipant]

Thank you so much for your responses. It is so good of you and has really helped me. I’m 48 and to be honest I dont know what to think. But I’m very scared.

the consultant seemed slightly as though I was over reacting and maybe that is a good thing. But being told you have cancer seems a pretty frightening thing!

I had the bone marrow biopsy and it was really unpleasant. My MRI scan was ok he said and there is no need for treatment. I go back to see them in three months. I am really puzzled and lost (and of course being a hypochondriac now have all sorts of symptoms!!

i am wondering about what to do in relation to telling people and about work. I just feel like I can’t cope!

[Author]

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