Dear Sue,

It's strange, I came on Site to send a message to you, as I was thinking of you and Michael this afternoon, as I was enjoying the sun and a bonus day out. I felt sad that you and Michael wouldn't be enjoying it. I didn't realise quite how grim things were, although I knew they would be pretty bad. I do feel for the really tough…[Read more]

Hi Sandie,

Glad others have put you right about the infusion being every four weeks, not four times a week!! I find it much better than the time contstraints with the tablets.

When I have a Consultant's appointment they always arrange the two things together. Mind you, if yor Mum is reliant on ambulances for transport, as I am, she may…[Read more]

Hi Dai

When they were discussing the serious weaknesses of the NHS recently, I thought we had some stories we could tell them where little things would have meant such a lot! I also thought of some of the experiences you have had. How do we get things to improve? If the motor industry can get its cars under construction through a Plant with…[Read more]

Hi Jean

So glad that Frank has got his date. I send him my very best wishes. If he has an ipad I am sure he will find it very useful for passing the time.
I know, from reading the accounts from others, that Frank has a tough time ahead, but I pray it will lead to a very long remission.

Keep strong. Love.

Mavis x

Hi Chell

The publicity must be good. Will look out for your post re when magazine is being published. Congratulations.

All best wishes to you both.

Mavis

Hi Sandie

Hope my answers can help you! I was diagnosed in 2010, as I said, following a painful colapse and the discovery of a tumour. I was started on bisophonates straight away – it was called Bonefos. I didn't get any sickness from it although I found the timing of taking it a bind! About 18 mths ago they put me on a dour weekly infusion…[Read more]

Hi Nicki

I also send my comiserations that Sam has relapsed and much sooner than you would have hoped. What a good job there are now other treatments on offer. Do hope Velcade works well for him.

So sorry you are having your own health issues when you are needing to be strong. Like Tom says, I hope you are getting support.

All best…[Read more]

Hi Maureen and Ian

Just wanted to give you some encouragement about the mobility bit!!! I have had two occasions when I "crashed out" and became completely immobile. First time was because of a tumour on my spine and I was having to be hoisted everywhere till I had it removed. They warned me I might not walk again, but due to marvellous…[Read more]

Hi Sandie

Sorry your Mum has had to start treatment. I just wanted to give you some positive feedback about lessions. When I had to start treatment last year my Consultant said my body was full of lessions. So much so she had me have an electric bed at home to help me out of bed. However, none of my bones did break, and although my spine…[Read more]

Hi Pat

I really do agree with you, little things do mean a lot. We have so enjoyed two days of sunshine and being able to sit in our conservatory for the first time this year!

Hope you continue to have lots of "little things!"

Love Mavis x

Hi Tom,

So pleased to hear your news. I know how you feel because I got a reprieve this week, till May! Unfortunately I still have to go back every four weeks for Zometa after four months off it because of my dental treatment. Still, I think my poor old bones need all the help they can get. It seems like they keep you on Z omertà…[Read more]

Hi Daily,

Agree with Tom, you are always an inspiration and I think of you as one of the key players on the site so you have got to keep going strong in spite of all the hi coughs.

Love to you and Janet. It is strange, but helpful, to have all these friends we never meet. I find myself having more and more cyber friends. Since tentatively…[Read more]

Hi Robin

Sorry you have had to join us on Jim's behalf and that he has had such a trying time. The important thing is that you now have a right diagnosis. The treatment isn't fun, but many of us are in remission because of it. – myself following an op to remove a tumour from my back, then radiotherapy followed, quite a bit later by CDT for…[Read more]

Hi Dai

Sorry for another blip, but at least they are saying they will proceed to treatment three when time, so not all bad.

Very best wishes.

Mavis x

Hi John

I started on tablet bisphosphonates over two years ago and then went onto infusions of zometa. I have had no side effects from them. The only problem is, if you need invasive dental treatment, which I did, you have to have zometa knocked off for two month before and two months afterwards. This is to prevent getting the disease in…[Read more]

Dear Dai

Glad to hear a more hopeful report from you. Do hope things continue well so you can plan a break later in the year.

Dear Jo.

Sorry to hear you have had a spell in hospital. Do take care and keep knocking the beast back.

Love to you both.

Mavis x

Dear Wendy and Ozzy

So sorry to hear that you have both relapsed. I can imagine how gut wrenching it must be. I do hope that the next lot of chemo works for both of you. And, Wendy, I do hope you get to India.

Just spent the money we would have used to go on a holiday last year, if we could have gone, on a new computer for my husband.…[Read more]

Hi Sue

I am glad to hear you are, at last, getting some support with Michael's care and like Tom, hope you get to visit the Hospice soon. However, now you have got more suppport at home, and you are having a stair lift put in, you may feel happier with Michael remaining at home.

Sorry you still haven't got the answers you need to put your…[Read more]

Dear Sal

I am so sorry to hear of your loss. It is so sad that your Dad lost his battle so soon after starting treatment. I do hope you can take some comfort from the fact that the battle is now over and he is "at peace". I am sure you and your family have lots of happy memories, of times together, to help you at this very difficult and sad…[Read more]

Dear Sue

What a bad time you have had. Like others I can't understand why you haven't had the help you needed before now. Releived that some help is now coming. If Michael doesn't go into the Hospice the Social Services should get a Care Plan in place for you even if you have to pay for some of it. That's why you should be getting DLA.…[Read more]