Hi Dai

This C Diff seems to really have got you "on the run"! (Excuse the humour!!) So sorry it keeps coming back. It's this downside of antibiotics that they keep warning us about. We do need another breakthrough like when penecillin was discovered. I wonder if there is research into this?

Glad you are soon to be back driving. I…[Read more]

Hi Sarah

I had six rounds of CDT and this banished the PP completely so for the time being my only treatment is a four weekly infusion of Zometa for bone strengthening. Like your Mum, I have decided not to go down the SCT route and feel very comfortable about it.

You don't even have to get down to zero PP to be able to have a drug free…[Read more]

Hi Andy

Like the others, I am gutted thst you can't find a donner match. However, I'm glad the drugs are working. The donner transplants don't sound like a walk in the park, so maybe, with your battered bone marrow, going other routes may not be such a bad thing, IF they can find a combination that whacks the blasted MM into touch.

Very…[Read more]

Hi Sarah

So sorry you and Henry are experiencing the down side of the NHS just at the time when you need it to be at its best. I know that feeling of frustration and feeling powerless to change things.

I really admire Henry for keeping on working. I do hope you don't have finacial pressures as well as everything else.

I do hope and pray…[Read more]

Hi Vicki and Colin

Somehow I have missed all your batles witht he SCT thus far. Just wanted to sign on and say that I do hope things get steadily better for you and that a really long remission make it very worth while. I have just been reading of one of nine years.

Lots of love to you both.

Mavis x

Hi Jo

Good to hear news of you! Do hope this next round of treatment gives the old MM a run for its money!! They keep saying that MM is on the verge of becoming a chronic disease let's hope it is for us even if it is a real drag at times!

Much love.

Mavis x

Hi Carol

Just caught up with this post. So sorry to hear that you have relapsed. What we all dread. Never the less you sound as if you are coping well now you have got over the initial shock. Well done! I do hope the PAD works well for you. From all I've read, I wouldn't worry that you are putting off thughts of having another SCT after…[Read more]

Hi Kerry

Sorry Melvion is having such a hard time of it, and you too, as you give him such wonderful support.

Is there the possibility of another Surgeon, elsewhere, doing the operation on Melvin's spine? We have some marvellous ones at LGI (Leeds) They did the operation to remove the tumour on my spine (T10 I think) and built some racking…[Read more]

Hi Babs

Welcome to the Site, but sorry you have had to join it! You are well on with the journey, and should be able to get planning now for some enjoyable happenings. None of us would chose life with MM, but we are all committed to making the best of our lives as we can, and we can spur one another on.

Lots of love.

Mavis x

Hi Kes

Welcome from me too, and as others have said, we are all here to support you all we can.

Goodness, as you have got through to round five of CDT you are doing well. Those last weeks go very quiclky. I remeber counting the days off: nineteen, eighteen etc!!! Just be warned you could have a bit of a dip as the chemicals work their way…[Read more]

Hi Sue

So glad to hear Michael is now home. I lit a candle for Michael, at church this morning, and prayed for a miracle that you could all have some lovely days together.

Love to you all.

Mavis xxxx

Hi Sue

Couldn't sleep well last night – unuisual for me, so was thinking and praying for you and Michael a lot. Do hope Michael is calmer now. It is a time when he could naturally feel frightened. Hope you are able to spend time with him, – and perhaps other members of the family. Is it your daughter in the photo with you?

Lots of love…[Read more]

Hi Eva

How do you get on the myeloma listserve? I haven't heard of it before,

Lots of love.

Mavis x

Hi Susannah and Michael

Just to let you know that i am still rooting for you. Do hope the antibiotics are beginning to do their job and that Michael can be home soon – there is no where like it.

I guess all of us MMers think about our end, from time to time and wonder which way we will go. I am sure we all hope and pray for a gentle…[Read more]

Hiya!

Crept into under 50s group to read your post.

Sorry things aren't going so well for Melvin – ion fact it sound pretty horrible.

Do hope that pain is beginning to be got under control. I am also a great one for recommending asking to see the specialist pain team if you haven't already.

Lots of love to you both.

Mavis x

Hi Lizzy

Welcome from me too. Sorry your Mum has had such a bad time to begin her MM journey with. I do hope she is coming out of the dark tunnel.

The one good thing about the treatment of MM is that there are so many paths to try. Many of us have found CDT, a more traditional treatment, very successful, so don't despair that your Mum…[Read more]

Hi Jo,

Just postine here as it may go straight to your email list to say, look at Dia's posting if you haven't already done so!

Lots of love and all blessings.

Mavis xxx

Hi Everyone

Thank you so much for all your good wishes. It is good that we can share joys and soorows here. Good too that there are a good number of us in remission. It must encourage our newer members just when they are really bowled over by the diagnosis.

Lots of love to all my cyber friends – get well and keep well.

Mavis xxx

Hi Jo

I'm glad that DAi spotted too that things aren't all well for you. I had noticed it in your posting to me and was going to respond. I have always been so encouraged by your postings.

Do hope the new treatment works very quickly so there is no more kidney damage. Also hope the side effects aren't too bad. Are you still able to…[Read more]

Hi Debbie

Welcome to you and your Dad. Sorry you have had to join us and that your Dad has now to start treatment. I would deffinitely advise a holiday before treatment starts because I found my appitite was seriously affected, also, as others as said, even if he does well, there will be "off" days.

As to driving, I started driving again,…[Read more]