Dear Sue and Michael

Just wanted to let you know that you will both be in my thoughts and prayers at this very difficult time. I am sure you will feel better after you have seen the Pallative Care Team. They will really want to take your thoughts and wishes into account aand make things as easy as possible.

No one can predict how long a…[Read more]

Dear Gill

I'm sorry that you have people around who obviously have no idea what it is like to lose someone so close. Two months is no time at all for healing even to begin to happen. YOU be kind to yourself, and don't expect too much from yourself, even if other people are insensitive.

Do keep in touch here.

Lots of love.

Mavis xxx

Hi Pat

Sorry you are having trouble with your silver rings. I wear a lot of silver, but not rings, and I haven't had any trouble!

This is a funny disease. We all react so differently and these seemingly "little" things can tip the balance in making us feel depressed.

Do take care.

Mavis x

Hi Tina

You know I'd admire you for following the CDT with the Transplant. I know, from reading what others have experienced, that it won't be an easy time, but, if like with CDT, you mark off the weeks, I know you are going to come fine. What was your PP reading pre SCT?

I know one of the worse things with all this treatment is how food…[Read more]

Hi you three!

I'd also take my hat off if I wore one!!!!

Love and best wishes to all of you.

Mavis x

Hi "K"

Welcome to the site. Sorry your Mum is having such a trying time. Don't have any specific answers, but just wanted to say that, maybe, given all the circumstances, less treatment is better at her stage. Is your Mum able to discuss this with you? Have you been in touch with the Pallitative Care Team in your area? I find their…[Read more]

Hi David

Good to hear you are now feeling a lot better so don't need to have PP count yet. We are all so used to you being upbeat and cheerful! Keep it up!

Very best wishes.

Mavis x

Hi Dai

I'm so glad the wedding went well. It sounds like the wedding venue was loveluy. Look forward to seeing photos.

Take care of yourself and Janet. I expect, like the rest of us, you are now wondering about Christmas plans. We are very sorry not to be able to make it down to London and the grandchildren this year, but we have got to…[Read more]

Hi Lisa

Welcome to the site. Hope all goes well with your Dad's treatment.

Best wishes.

Mavis

Hi Polly

You came into this MM battle in a similar way to me although I managed about 17 months before I had to start treatment. I had six rounds of CDT which knocked the PP right back, although I haven't been really cracking since the treatment finished about three months ago. I coped very well during the CDT – hope you do as well. I gave…[Read more]

Hi Andy

Just wanted to say Good Luck with finding a match for the All0 transplant. I have been reading about Jet's experieinces and admire those of you who decide to go down that route.

I am jealous of those of you who manage to meet up with others from the Forum, via your various hospital appointments or in a Support Group. It feels…[Read more]

Hi Kerry

From all the reading I have done, and various chats with my Consultant, I get the impression that "Staging" isn't really very helpful as a way of us working out prognosis for our MM. Some people can have heavy symptons and go on and on, and other folk can seem to be doing well and then an infection takes them off.

I do wish Melvin…[Read more]

Dear Vicky

So sorry your Dad has lost his battle againgst the terrible MM. MY sympathy to you, your Mum and all the family.

Lots of love.

Mavis x

Dear Ann

Just wanted to add my sympathy at your loss of John. What a blow for you and the family. You would have every right to be feeling very angry at the unfairness of it all. I just hope you can hold on to all the great memories you must have of your time together.

Much love.

Mavis x

Hi Helen

Just caught up with this thread. Sorry you have been feeling so under the weather. I'm not surprised. I remember when my daughter, then three, had whooping cough, we were up nights on end boiling kettles for steam to help her breathe! Youn ARE a tough cooky to have been working through it all. I hope your employers appreciate what…[Read more]

Hi Sarah Jane

Welcome from me. I am not on a Trial, but have just has basic CDT, but wanted to write and say that I didn't have any bad response to Dex so obviously some of us get lucky. I have had other problems, but that's MM for you!

All best wishes as you adjust to this progressive diagnosis – hope the drugs do the trick for you as…[Read more]

Hi Etta

Glad you have got through your 100 days post SCT so well. It must be difficult for you to contemplate going back on treatment again. I hope that what folk have contributed is helpful. Are you going to go ahead with it? Presunably you get to give your view.

Best wishes and love.

Mavis x

Hi Keith

So glad you are feeling well in yourself, in spite of the low blood results. This is what is important isn't it!

Keep well. Best wishes for next week's readings.

Mavis

Dear Rachel

I was devastated by the news of Paul's death and my heart goes out to you. I had missed it because I don't usually visit the under 50's!

I always felt Paul was a near fellow traveller as we spent 33yrs of our married life in Calderdale. We only moved to Bradford to get adapted housing. As others have said, Paul was always so…[Read more]