Hi Emma

Welcome from me! You have had so much good advice from the others that there is not more than I can add, but wanted to say hello. I can sympathise with where you are coming from. I am 67yrs, diagnosed two years ago, and have one daughter and two young grandsons. Kate worries so much about them not knowing me as they grow up. Me,…[Read more]

Hi Kate

Glad to hear you are still battling on wothout needing any more treatment.
Good to hear from you again.

Love,

Mavis x

Dear Dai

I am so glad you have at last got through what has obviously been a most horendous episode in your battle. How is it that we can see the very best AND the very worst of the NHS! You wonder if the Policy Makers really appreciate what it is like on the ground. If only we had the collective emotional energy and clout to do something…[Read more]

Hi Mike

Just wanted to welcome you to the site which none of us wanted to know about!!

All best wishes for the Trial. Glad you have so much faith in your Dr. it does help.

Look forward to hearing good progress.

Mavis

Hi David

Good to hear you have another "reprieve"!

I hope you are wrong about your next pp and that they don't rise at all!

Enjoy life and keep encouraging the rest of us as you do so well.

Love Mavis x

Dear Eve and Slim

It is great to get such encouraging news about Slim. It is grezt to think you will be in NZ for Christmas. Who would have thought it this time last year with all you have been through.

Enjoy your new life!!

Lots of love.

Mavis x

Dear Gill

I am so glad you and the family were able to give Stephen such a grand, and appropriate, send off. Just what he would have wanted.

Having been involved in many funerals in my former existence, I always say that the funeral is the last thing that we can do for our loved ones.

Thank you for sharing with us over such a long time…[Read more]

Hi "Ramos"

Welcome to the forum – I do hope you find it the support we all do.

I'm glad to hear that you are not having any treatment at present, but was surprised that, as your problem started in your back, that you are not having pills or infusions for bone strengthening. Has this been mentioned to you? In the nearly 18 months I wasn't…[Read more]

Hi Nicola

Just caught up with your thread about your Dad. My greetings to him. I finished CDT about two months ago and still feel very tired although all my readings are now down. I have been disappointed that I wasn't immediately feeling bouncing about once the treatment finished. In fact I have felt worse. However I went to see my new…[Read more]

Hi all

Interested in discussion as I am waiting for an appointment to come to have two roots out in hospital as dentist can't do it because I am on Zometa. It has proved a real nuisance as I am having quite a bit of discomfort and have already been waiting five weeks to hear.

Best wishes.

Mavis

Hi Mari

Just want to send greetings to Steve. Glad he is well on his way even if it has been a very bumpy road.

Hope Steve's appetite returns soon.

Lots of love.

Mavis x

Hi Nettie

Thanks for this contact. I will try it and let folk know.

Love Mavis x

Hi Janet

Interested that you have the same problem as me. The annoying part is, I didn't have any problem all the time I was on CDT, but since I finished, nearly two months ago now, my hair has thinned alarmingly and, like yours, is very brittle and dry.

Let's hope someone has a solution for us!!!

Best wishes any way.

Mavis x

Dear Judy

So sorry you are having such a hard time although it is very understandable given the circumstances. You are entittled to answers. I do hope someone is helping you to get them. Have you put a complaint in? The Hospital's PALs service should be able to help you if you haven't got anyone else on side.

Have you family to share…[Read more]

Hi Gail

Can't really imagine what you are going through, but wanted to send my condololences. Glad others are able to send practical advice. We are all friends here.

Love.

Mavis x

Hi Dai

Sorry you lost your posts. How frustrating. I do hope you can find the energy to post them again because I've been hoping to hear good news from you!!

Best wishes.

Mavis x

Dear Gill

Like everyone else I am so sorry to hear of Stephen's passing after such a brave battle.

I just hope you can take some real comfort in the fact that he is now beyond all the pain and stress. No one can take away the memories that your great love and support for each other have given you. Death never has the last word.

You and…[Read more]

Hi to all of you,

I knew I could rely on you all to give me some really good suggestions to deal with this wretched condition! I will especially take the movicol advice on board and have started taking Albran each morning. At least i haven't got bunged up again yet!!!

I particularly appreciated the comment by Rosie and Paul about the…[Read more]