Dear Tina

All best wishes for both SCT and radiotherepy. (I missed reading what this was for.)

Love and prayers.

Mavis x

Hi Andy

Sorry your journey is proving a long one, but at least you are bashing those PPs down.

Keep up the good fight. We are all rooting with you.

Best wishes.

Mavis

Congratulations Wendy!

May this be the first of MANY MM free years! Thanky you for being ready to share your experiences.

Love Mavis x

Dear Pat

We all know whgat a horrible time it is waiting for diagnosis and, unfortunately, with Myeloma, it seems to go on and on!

Sorry you have had to join our group, but hope you find as much support from it as we all do. It is true, you do have to rely on your friends at this time. Aren't we lucky to have good friends and colleagues…[Read more]

Hi Ange

Like everyone else I am sorry you have had to join us. It is very confusing that MM is such an individual disease and it is sometimes particularly confusing if you have high para protein levels but still don't need treatment yet. This will be because you haven't any organ or bone damage. I do hope this situation lasts for a long…[Read more]

Dear Dai

I'm glad you have the emotional energy to take up your complaint this time. So many of us let it go because we can't face the effort needed.

I think some of the weakness inb the system, which allows things to be so dirty, is the division between nursing and cleaning staff, and the division between cleaning staff and staff who…[Read more]

Dear Gill

Like everyone else I am sending good wishes and prayers for you and Stephen. I am so sorry you are having such a difficult and distressing time. I do pray that you find some solution soon. Bless you for your courage.

Lots of love to you both.

Mavis x

Hi Dai

Do hope, that at last, you are really beginning to feel you are winning. I am so sorry that you have been fighting the staff as well as the condition. Why does it have to be so difficult. I often think we would be better organinsing our own meds!!

Best wishes and all my love.

Mavis x

Hi Tina

Have a lovely holiday – you deserve it. I do hope the weather is kind to you.

Lots of love as you prepare for the next stage of the journey.

Mavis xxx

Dear Vicki and Colin

All best wishes as Plan B looms.

Mavis x

Dear Scott

All the best as you go down this new route. I always feel grateful to those of you who are trialing new pathways before the rest of us.

All best wishes for all those trips to hospital!

Mavis

Dear Gill

Hope things continue to go better for you and Stephen.

Dear Eliz, thank you for information about hoist. I am now working on Gordon to give it serious consideration, but you know what men can be like!

Best wishes to all.

Mavis x

Hi Angela

Sorry you have had to join our "merry" band and that you are having to cope with a hip replacement as well as MM.

I have had four hip replacement operations! I had an infected hip so had to have one replacement in two stages!! It is a very straight forward operation. I had all mine by epidural which isn't half as frightenining…[Read more]

Hi Gill

I am so glad that things aren't so grim for Stephen as first feared and that the radiotherepy is offering some hope of considerable improvement.

I do hope Stephen is able to get back driving soon. I have jsut begun driving again after five months. It feel very liberating. I have got as far as 20 miles on one trip. Unfortunately I…[Read more]

Hi Tina

I am just over a week over six rounds of CDT. I still feel very tired, especially in the evenings, but I'm glad to say I am sleeping OK, apart from toilet stops!!

At least my taste is coming back, but, unfortunately, I am having problems with my teeth! Have been to the Dentist twice. If things don't improve I am going to have to…[Read more]

Dear Keith

Sorry that you are having to cope with the glucose discrepancies as well as the MM. Diabetes is a horrible complication I do hope your specialist can offer some helpful suggestions. It is hard to keep our spirits up when things are so difficult. Difficult for those around us!

Hope things get better for you soon.

Mavis

Hi Lynne

So sorry to hear of John's passing, but you must, at least, be glad, that, at last, all his suffering, so bravely borne. is over. Like others, I am so glad you had a special four weeks at the end.

Do be kind to yourself in these coming weeks. You have been a wonderfully supportive wife and now it is time to let family and friends…[Read more]

Hi Paul

So glad to hear the SCT is over and relitively trouble free. As everyone says, do keep free from other folk's germs and hang on there for that break in October.

All best wishes as you wait for your Alo transplant. I have been interested to hear of Jet's progress since hers. Do you read her posts? You are brave souls.

Mavis x

Hi Andy and Steph

I am glad that the second opinion led to a better feeling. At least you were listened to and have been given some options for the future. I'm really glad you got the reassurance about the pp levels as they can be a bit terrifying can't they.

Very best wishes.

Mavis

Hi Vicki

I have only just finished six rounds of CDT, this week, and am not going on to SCT. I am feeling tired and a bit sicky. but at least food tastes better. I just wish I diidn't have some problems with my teeth which IU am getting sorted out.

I also have some pain in my back – where my myeloma also started. (I had to have a tumour…[Read more]