Dear Gina,

A bit late, but may I also send my sincere condolences to you and the family. At least there is some comfort that your Mum hasn't to fight this dreaded disease any longer. She was very brave.

Love

Mavis x

Hi Meera

Glad you can now concentrate on strengthening your back. Some folk seem to do really well quickly. I am 14 months past my op and still need two crutches, but mine is complicated by arthritis.

One thing to be careful of is lifting. I got worse a few weeks ago when my grandsons were staying and I lifted the four year old onto my…[Read more]

Hi Debs

Sorry you are finding the Revlimid so difficult. I do wonder if a lower dose would do as well. At least, would you be able to have a break from it to enjoy Christmas with the family?

So glad you have a wonderful family.

Love Mavis x

Hi Bridget,

I have been wondering how you are. Often lift up a little prayer for you. Sorry the new treatment is having these strange side effects, but see you are coping with your usual fortitude. Have you lost your hair again this time? Not the weather for it!

How did you know the PP levels weren't accurate?

Do hope things get…[Read more]

Hi Tom

What good news! You must really long to be treatment free.

All best wishes.

Mavis

Hi Vicky

Hang on in there for your Dad. At least he is the right side of SCT and, we hope and pray, looking towards a long remission. Let's hope he is over the worse by Christmas and can get a bit of an appitite for his Christmas dinner.

Best wishes to all the family at this very difficult time.

Mavis

Hi Shirley

I share others' disappointment at your breathing complications. Do hope things improve as time passes and that you can really enjoy the Christmas period.

I admire your determination it is sure to pay off in a general improvement.

Love

Mavis

Hi Carol

So glad to read your good news that CDT is having such a good response. What a good thought to take into the Christmas period. Do have a wonderful time with your NZ daughter and the rest of the family. SCT is for another day!

Love.

Mavis

Hi Jo

I too am delighted at your news. I am roooting for much more than 3 years partial remission for you.

Love

Mavis x

Hi only me

Sorry, can't answer the question about SCT, but wanted to send my best wishes to your Mum – she is having a rough time. From what I hear from others, the end to these horrible reactions do come to an end.

Hang in there – good job your Mum has you fighting for her.

Love to you both.

Mavis

Hi Helen

It's strange isn't it! Because of the various side effects of treatment, in your case hair loss, we wish the months away – it's hard isn't it. I do hope the Revlimid maintenance works for you and the side effects diminish. I guess if not you can ask for a lower dose. You have already put up with so much.

Hairs to the…[Read more]

Hi Bridget

Glad to hear your rash is subsiding. Hope your energy levels rise soon. Guess your tum must feel like a pin cushion. Wonder if they will ever get it so that these drugs can be used with drivers diabetics use, which I understand aren't so painful.

Something Dai said a while ago struck a chord with me, and thinking of all you…[Read more]

Hi Jo

I must have missed this post last time I was on site. I am gutted that you have to start treatment again – you were doing so well and so upbeat. However, that will stand you in good stead for this next round of the battle. Your PP levels sound low so was the treatment started just because of your kidney problems? Excuse my ignorance,…[Read more]

Hi Dave and welcome from me too!

Sorry you were diagnosed at such a young age. I also had plasmatoma, September 2010, but was just off my feet for a couple of weeks before having my op. I always refer it as having scaffolding in my spine! I then had 10 shots of radiotherepy early this year. My only treatment since has been, first…[Read more]

Dear Gill

Sorry that Stephen is having to go down this new road. Let's hope and pray it isn't as bad as you fear. Lets hope the reduced Dex isn't as difficult on the nerves – yours as well as his!!!

Hope this will lead to a good long remission and make it all worth while as you have both coped with so much already.

Best…[Read more]

Dear Bridget

Thank you for your kind words. I feel much more cheerful now Kate and the boys have arrived, even if I did have to collect them from Leeds in thick fog!

Sorry about your rash. Hope it soon disappears. These drugs are so powerful aren't they, that they always seem to came with a price (side efects). Still my prayer is that…[Read more]

Hi Bridget

Good to hear how things are going. Sorry about the sickness, but you seem to be managing things with your usual determination and courage.

I was feeling a bit sorry for myself this evening as my general lack of mobility and tiredness were making it very hard to get ready for a vist from my daughter and two grandchildrenou (4 and…[Read more]

Thanks for the info Helen.

Hope whichever arm of the Trial you are put on it works for you. As you know I have every admiration for those of you willing to take part in the Trials.

Here's to a "good hair day" soon!

Mavis

Hi eve and Slim

What a hard road you have both travelled to get to this point. What a relief, at last, to hear some good news that makes all the difficulties of the Velcade treatment worthwhile.

Here's to the next two rounds really knocking this dreaded MM on the head.

All best wishes to you both.

Mavis

Dear Abi

Like the others I wanted to say welcome to the site and to assure you that things are moving fast with the treatment of MM, and as Dai says, many in a similar position to your Dad have responded very well to treatment. It isn't a walk in the park, but neither is diagnosis the end of all hope.

All best wishes for Monday. I do hope…[Read more]