Hi Bridget

Sorry you are having such a hard time. do hope things start to get better soon. You are such a fighter and a real encourager to others.

God bless.

Mavis xx

Hi Keith

Hang in there! Isn't it difficult trying to drink so much liquid. I don't like the tast of water so am becoming quite an expert on low cal squashes! Isn't it odd when we find ourselves monitoring ourselves by the colour of our wee!!!!
Do hope you settle down on the Velcade and that it helps your numbers.

Very best…[Read more]

Dear Em

Can I also welcome you to the site. Sorry your father is having it so rough, but one thing about being in hospital, hateful as it is, it does mean you are right under their noses and they will want to get things going.

One thong about this site is that you can be honest about how you feel.

All best wishes to you and your father.…[Read more]

Dear Gaye

Have just caught up with these posts. So sorry you are having such a rotten time. I'm sure that in an earlier post you said you were awe of folk. I am certainly in awe of you.

Do hope the RT works well for you.

Love.

Mavis x

Hi Angie and Clara

Sorry for the need to welcome you to this site.

It does seem that things are moving very quickly for your parents. I do hope they feel happy with the pace of things.

All best wishes to all of you.

Mavis

Hi Tanya

Welocme to this Web site, sorry it has to be. So sorry about yoour Dad.
My only daughter has two small children and lives in London, I am in Yorkshire. I know that she can't do much apart from keeping in touch and visiting about every couple of months. Fortunately i do have a husband, but he hasn't brilliant health himself. I thnk…[Read more]

Hi Keith

So sorry you are having trouble with veins on top of everything else. I've been there and have the tee shirt! You are right, it does depend who is doing it. I always wonder why the plebotomists, who get paid very little, in the scale of things, always seem to find a vein first time! My highest score was 15 tries!

Do hope the…[Read more]

Dear Sharon

So sorry you are having such a bad time. Having RT isn't easy when you have such a bad back, even when it is to help things long term.

Before i had an op to remove a plasmatoma from my spine (T12) I was also bed bound, being hoisted onto a badpan is great fun!!! The strange thing, I found, was that after I started taking…[Read more]

Hello Angie and Clara

Welcome to this site which I have found so helpful. I am sure you will too.

Best wishes to your Mum, Angie, and I think it is your Dad, Clara.

Blessings.

Mavis

Hi david

I'm very glad you opened this thread because for all my reading i can't make sense of the different readings. My Consultant just gives me the para protein level and I was just told, when originally diagnosed, that my bone marrow just showed traces of protein. I have been trying to make sense of all this – especially as I read the…[Read more]

Hi Gavin

I was very interested in your decision to go ahead with treatment. I can imagine it was not easy to decide being in not too disimilar position.

From all I read about the dreaded MM it seems the important thing is to make the decisions that seem right to you. It is good that you have got onto a Trial as you will be very closely…[Read more]

Dear Jen

I'm very grateful for your answer, and so promptly. It gives me a much better prospective on things.

I feel for you having to cope on your own. I am very fortunate to have a husband who does all the cooking and fetching and carrying, as I also have chronic arthritis, which was what masked my MM in the beginning.

I do find this…[Read more]

Dear Jen

Just picked up this strand. Sorry I can't help you as I haven't had any chemo yet, but do hope you get the second dose yuou want as it agreed with you.

Can you help my learning? What was the first regime of chemo you had, which didn't agree with you? Also, what numbers of para protein jogged your Consultant into action on each…[Read more]

Dear Gaye

I echoe what everyone else has said. Your posts have been very encouraging to me, anewcomer to all this. Bless you.

Like you say, it is so good that so many of you are beating your "sell by dates"!!! I will never forget how I felt, when diagnosed in hospital, by an almost casual remark, and then looked on the TV web site and it…[Read more]

Hi Kay

Hope things go well. Let us know we will be routing for you.

Love

Mavis

Hi Jenny

Just caught up with this thread. Sad to welcome you to this site on your Dad's behalf. Glad to hear he is making some progress.

Step parents are a problem. My Mother married again at 75 ys, to a relative of my sister-in-law. When she was in the last week of her life my step father siad she was too ill to speak to me on the…[Read more]

Hi Scott

Welcome to this site. I'm a relatively newcome too but have found it really helpful.

I'm aleays interested in anyone else, who like me, isn't keen to rush into chemo. I went to Consultant this week. PP level 7. She says I'm aneamic and might need a blood transfusion. Evidently, radiotherepy, which I've just finished, can…[Read more]

To all you "oldstagers" and trail blazers, (albeit for these titles you pay a very heavy price!)

I just wanted to say how much I appreciate your courage and also your willingness to share your experiences with those of us who now follow you on this horrible journey.

Your willingness to test new drugs and regimes means so much. I hope and…[Read more]

Hi David

How great to hear such good news from you. Do enjoy your "new" life.

Best wishes.

Mavis

Dear Shirley

So glad that you are home with your family. Do hope your recovery goes very well.

Love.

Mavis