Hi John

From another newcomer, welcome. I do hope that the "wait and see" phase lsts long!

I travelled on an ambulance today with an MM survivor of 11 years so all is not grim.

Best wishes.

Mavis

Dear Lindsey

Although my experiences are not like your Mum's she has my extreme sympathy because I don't think that Drs always do take pain seriously enough.

I think you should ask to see an Orthopeadic Specialist, or a Pain Specialist as morphine probably isn't the answer, or if it is, maybe she need patches. Is your Mum on steroids as…[Read more]

Dear Gavin

I was interested to hear how your diagnosis was reached. It's not boring, because that is the benefit of this site that we can learn by comparing other's experiences.

Hopefully, like me your mobility will gradually improve and I know, from previous nerve damage to my foot following hip surgery, that eventually it does begin to…[Read more]

Dear Shirley

Happy Near Year! So glad to hear things are going well with you. You are very brave.

Your post has answered a question I have been wondering about which is 'does every new regime of chemo lead to hair loss.

Keep cheerful and look forward to that long remission.

Love

Mavis

Dear Gavin
I'm surprised that i didn't pick up on your posting before as I have been asking very simnilar questions to you.

I was diagnosed in Oct 10 at age 65yrs. I had an op to remove a plasmatoma to my spine. There are traces of MM i(now at 10 I believe) in my bone marrow, but like you everything else was fine. MY first meetings with the…[Read more]

Dear Shirley
You are on your way to full remission. Hold onto that thought.
Do hope you are able to experience some of the peace and joy of Christmas tomorrow, in that great "hotel"!!
Go well you are in my thoughts and prayers.
Love
Mavis x

Dear Roz
Your post hadn't appeared before I wrote my last response. So sorry for that but, truthfully, I am relieved for you. You had obviously pushed yourself beyond what was sustainable.
You have been a good and faithful wife and done whatever you could for Michael, at great cost to your own health. these poast few months muct have been…[Read more]

Dear Roz
May I add my thoughts and prayers to everyone elses. Do not beat yourself up. This ia a terrible time that you are going through. Let others' care for you give you the strength you haven't got in yourself. You have given so much that you are runing at under "empty".
My prayer for Michael is that he may soon peacefully pass from…[Read more]

Hi everyone

I'd like to say how much i have appreciated all your postings and have already learnt a lot from you all. I do admire the courage you all show as you move on in your treatment regimes.
May you all know something of the joy and peace of this Christmas season and be surrounded by those who love you.
My special thoughts and…[Read more]

Dear Bridget

I have just caught up with your disappointing news and you are always so encouraging to others. As a newcomer I have been impressed by your posts.

I do hope that the infection has responed enough so that you can have a reasonable Christmas.

I am sorry about the failure of the velcade, but having been reading so much about…[Read more]

Dear Roz
So sorry thigns are moving to a very sad end after such a bravely fought battle against MM. I am so sorry that your own physical problems make supporting Michael as you would hope, so difficult, but i do believe you will be given strength to do this and I know that the positive thoughts of all your friends here will be helping you to do…[Read more]

Hi Shirley
Just catching up on site and saw your posting.
All the very best for your SCT. Strangley enough just read an article about how good it is for young MMs to have one. Will be thinking of you and will look out for news of how you are getting on.

All blessings.

Mavis

Hi David
Glad to get clarifiaction about your postings. Even glader to hear that you are going home today. Go well and enjoy your escape. Just nice timing to regain some strength before Chrsitmas.
Warmest of best wishes.

Mavis

Hi David
You may not be posting but we will all continue to be remembering you.
Love.
Mavis

Dear Roz
My heart goes out to you. You are in that dreadful situation of almost beginning to grieve the loss of Michael before it happens. Of course you will be feeling "I want my husband!" You will also worry away at whether you could have stopped him having more treatment which, in the event, hasn't worked and which has resulted in this…[Read more]

Hi David
So sorry you have had this bad dip. Good job you are a fighter.
Still, it is nearly two weeks till Christmas so you should be well home by then and look forwarde to something better than toast!
I say a little prayer for you when I wake in the night.
Blessings to you and yours.
Mavis x

Hi again, David

Everything is relative isn't it, and I can't believe you are now giving yourself happiness rating 7! Do hope you are headed home soon because after a long stay it does feel like an "escape" and even if it is a bit scary without the immediate help at hand, it always feels good to be in your own place.
My prayer is that, by…[Read more]

* Dear David

Coming back to site after a couple of days it was really good to see you are upto writing your blog again even if you still are faily low with all the side effects of the treatment.

We are still all here cheering you on. Hopefully you will turn the corner soon.

All best wishes.

Mavis

Dear roz

I have been follwing the ssad time you and Michael have been having. My heart goes out to you. I realise how distressing it must be for you that, because of the state of his illness, Michael doesn't realise how much you are trying to do the best for him. Do put it down to MM and not to anything you have done.

I feel very sad that…[Read more]

Hi David

Well, six is more than half way up. And as you say, it's important to be honest with yourself and knid to yourself when, naturally you will be feeling sorry for yourself.
Shame I can't be paying you to loose some weight for me! Enjoy the toast. It was the treat of the day when i was first admitted to my local hospital. The only…[Read more]