MavisNevill

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago

    Hi Vicky – thank you so much for your message. reading what you wrote was like I was telling the story…just how I feel. I have also thought about using all of this in a positive way, maybe volunteering somewhere or studying maybe?! Who knows.

    I hope that Colin is OK at the moment – how are you doing?

    Take care xxx

  • keznmel replied to the topic I feel so miserable! in the forum Newcomers 12 years, 1 month ago

    Hiya Tom – thank you for your message. We have something else in common..In May 2007 I was diagnosed with Fibrosarcoma, cancer of the soft tissue and I finally went into remission in June 2010 ..as Melvin was diagnosed with MM in the December. I have to agree with you regarding the comparison of feelings – I felt more in control when I was the…[Read more]

  • keznmel replied to the topic Still angry in the forum Carers 12 years, 1 month ago

    Hi Lorna..

    My partner Melvin was diagnosed with a Solitary Plasmacytoma on 15th December 2010, so our journey started nearly two years ago. Reflecting back to those days, I felt scared and unsure of what it all meant, I remember that. It was almost like I went through some kind of grieving stage??! Things have really progressed for Melvin now…[Read more]

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • Thank you for your message Jean. Guilt is a very powerful emotion isn't it? I think it can be a visitor in most situations. Unfortunately, I over think absolutely everything too and scrutinize myself..'have I done enough?' etc..

    We have been referred to Counselling, although the last two appointments were cancelled due to the Counselor being…[Read more]

  • Hiya – it seems to be all go for you at the moment. Fingers crossed that they soon find you a match. Best wishes Kerry and Melvin x

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • Today I'm feeling suffocated! I'm frustrated and just feel like going upstairs packing a huge bag and running away so I can 'breathe'! My head is full off so much…'Has Melvin had his meds? How is his pain? What shall I cook for tea? Did I make the dentist appointment for Atlanta (our daughter)? How about the optitions for Dior (our son)? Has the…[Read more]

  • keznmel replied to the topic Possible Myeloma ? in the forum Under 50s 12 years, 1 month ago

    Hello Angelina,

    I'm sorry that we meet this way. You do seem to have a lot to deal with at the moment and i appreciate what a very anxious time this is for you.

    You say that you have had the bone marrow biopsy – have you had the results now? As far as I am aware, this does give an accurate diagnosis of Myeloma. It is my 39 year old partner…[Read more]

  • Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

  • Thank you all so so much for replying to me. You all seem such caring people and I look forward to getting to know each and everyone of you. I'm off to bed in a min, it's been a long day in 'my' world today and I'm so tired. We are having a Care Alert Monitor installed tomorrow..and it's 'my birthday' so need my beauty sleep – 37 years old…[Read more]

  • Hello to you all…

    I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

    My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

  • Hello to you all…

    I have found myself reading so many of your posts on here for weeks, maybe months and it's lovely how much support you all give to each other. I now feel that I could do with some of your shared support – I'm finding things really tough! Here is our story…..

    My name is Kerry and am 37 years old tomorrow – it's my 39…[Read more]

  • Hi Anne
    So sorry to hear your rotten news – I do understand how very distressed you must be feeling – especially in view of your young family.

    I was diagnosed in 2005 and didn´t neet treatment for five years during which time they monitored me and helped with the anemia. I have had chemo and stem cell transplant during the last two years and…[Read more]

  • Hi Cathy

    Just a quick message to let you know that we are thinking of you both and just hoping that Ivan "turns the corner" soon. As everyone keep saying we really all different and my husband remember well the panick setting in as day 28 in isolation, feeling rotten and having constant infections conditions with absolutely no improvement in…[Read more]

  • Hi Cathy
    Sorry I´m rather late in reading your post and am really sorry that you are feeling so worried – often it´s hard for those who have to watch loved ones go through this process.
    It´s quite normal to feel rotten for a while I´m afraid but at least it´s making the cancer cells feel rotten too so it´s not all bad. I was really poorly with…[Read more]

  • Hi Paul
    So very pleased to hear that you have had your STC and can´t believe they let you loose after only sixteen days – fantastic!
    Hope your taking things easy and building yourself up – only once a week to the disco for a while I´m afraid.

    Take good care

    Very best wishes

    Carol xxx

  • CarolBradley1 replied to the topic Good News in the forum General 12 years, 2 months ago

    Yipee!!!!!
    So pleased for you both and thank you so much for sharing it with us all. It really helps to boost us I am sure to hear such super news.
    Have a lovely trip.
    Best wishes
    Carol

  • So glad to hear that things are going well.

    Take care and very best wishes

    Carol

  • Hi Ange
    Just wanted to welcome you although I am so sorry that we all have to meet this way. I was diagnosed in 2005 and after chemotherapy and stem cell transplant I have recuperated quite well and am back doing most of the things I used to. Hope this gives you some encouragement.
    This is a great site with such lovely people who are always…[Read more]

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