Hi Dave
Sorry can´t help with your specific question but did just want to welcome you to the site as we haven´t met here before.
Sorry that your pp is on the rise but over the years prior to treatment (I have had one SCT) my pp fluctuated quite dramatically usually when I was under stress and as soon as things settled down at work etc. so did t…[Read more]

Hi All
Hope this finds you all as well as you can be.
Strange how chemo changes how our hair is. I ought to update my photo as this one is the "before" and it has now come back curly which makes me look as if I have had a perm if there is any damp at all in the air!
Anyway, I might keep this to encourage me not to chop it off when I am fed up…[Read more]

Hi Vic
Welcome – glad to hear from you but sad that it is under these circumstances. I too have a problem with discs and they are monitoring to I will be interested to hear anything too about this procedure.At the minute I am managing with Tramadol with the occasional top up with a little bit of oramorph but even still I have pain.

Best…[Read more]

Hi Terry
I was on the machine for two days and with the needles in each arm and having been asked to lie flat ant to try not to move around and disturb things I couldn´t do much other than snooze and chat to lovely hubby in between.
The only difficulty I had was a lack of calcium but they gave me an injection and a couple of glasses of milk…[Read more]

Sorry to hear your unwell David. I was told that Kiwi fruit has lots of things in it that helps – anyway I eat one every day and since I started have escaped the usual winter colds etc.
Hope you feel better soon.
Love Carolxxxx

Lovely photo!
Love Carolxxx

Hi Mavis…

Thank you…I will ask for one of those x x

Hi Zoe…

It's tough isn't it?! Melvin, my partner is only 38, so young! How is Dan? He sounds like he is having a tough time of it.

Melvin was diagnosed with a solitary plasmacytoma of the spine in December 2011 and had radiotherapy that helped. He is currently in hospital with multiple fractures..now on the ribs…and is being hit full…[Read more]

Thank you everyone for your lovely kind thoughts and words of encouragement. It's such a tough time for us.

I hope this finds you all well. Please keep in touch x x x

Thank you Bridget,

I hope you are feeling well. Yes, Melvin had radiotherapy for the plasmacytoma on the spine and is having infusions every 4 weeks….however, we are not sure what the next plan is now that he has multiple fractures. He is in hospital at the moment on Iv morphine and antibiotics and the Dr's are having a MDT meeting later…[Read more]

Hi Mavis…Sorry for late reply.

Thank you for your message. I hope you are feeling well.
Melvin is also having bone strengthening infusions every 4 weeks…but he still has these new fractures. His levels seem to have spiked a little but not out of control. He is still in hospital on IV antibiotics and morphine but is having more movement…[Read more]

Hi Tina
Glad your going on the trial as you will be monitored really well and the medications used seem to be having a good impact on the MM for most people.
Regarding the side effects of the treatment and SCT – well, like you I was really worried about the hair loss all the time up until the SCT – my poor husband spent a BOMB on having a wig…[Read more]

Hi and welcome
I think everyone has said it all at present but just wanted to add my very best wishes to you.
This is such a frightening time and my heart goes out to you having been through the mill myself since 2005. I have had the chimo and SCT and at the moment am enjoying a period of relative good health so hang in there! There is so much…[Read more]

Hi Tina
So sorry that we are meeting because of your bad news you must be reeling at the moment. At least you have come to the right place for some support – ask anything at all as anything that worries you is important.
I had my SCT in Feb of 2011 and although my recovery has been slower than I would have liked I am sure that is because I am a…[Read more]

Hello Kerry
Sorry you have both had to join us and that your having such a rotten time at present. I think everyone has said just about everything – thats the big thing about this site, having lovely people share their knowledge and practical advice is such a support.
Hope that the pain is now getting sorted out and that things are a bit calmer…[Read more]

Hi Bridgett and all those others kind enough to reply.

Just to let you know that we have taken the specialist at her word when she said to enjoy what time I had left (we have decided that´s 30 years in my case) and have beggered off to Spain for a holiday. Sunshine is great and it´s a real treat just to sit out and rest (although it´s ra…[Read more]

Hi Phil

Do hope the reduced dose is good for you – I asked on Mnday if they would put me back on a maintenance with a reduced dose but my specialist said that I was "passed that stage now" and says I should just enjoy what level of fitness I have now. Anyway hope all goes well with you and yes, I´m sure that the outside life is helping me…[Read more]

Hi Helen

Had my transplant in February 2011 and we seem to have had a similar recovery history. I don´t know why my specialist thought I was too "fragile" to carry on with Revlimid although I had lost over 10% of my body weight and generally felt rotten and miserable – also tingling feet etc. My dose was 20mg which I felt was too high but we…[Read more]

Hi Amelie and Helan
Yes, I am in the UK Amelie and as Helen explained I was on a drugs trial and so was provided with Revlimid. What treatment are you on Amelie?
To be honest I´m not really convinced that the Revlimid was to blame but I just never seemsd to "bounce back" too well after the SCT but I do remember that I was just beginning to…[Read more]