[mhnevillParticipant]

Hi Illona

Welcome from me too. Do hope your Dad responds well to the drugs.

Look forward to hearing how things go.

Best wishes.

Mavis

[mhnevillParticipant]

Hi Tony

Sorry you have had to stop treatment early, but it sounds as if it has done a good job if it has got your PP down to three.
Hope you can have a break now to get more back to "normal".

I did full six cycles of CDT and have been in remission for over a year.

Do hope the Parkinson tests come back negative.

Best wishes.

Mavis

[mhnevillParticipant]

Hi Susan

Sounds as if your hair followed the same path as mine. Mine is now back strong and thick and I am having it coloured every six weeks. Like Jo I think what the hell!.

Best wishes.

Mavis x

[mhnevillParticipant]

Hi Maureen

Great news for you and Ian.

All best wishes for a good future.

Love Mavis x

[mhnevillParticipant]

Hi Tanya

Glad you are keeping in touch. Five months isn't long in this bereavement process so you sound to be doing well.

Love yourself and do good things. It is what your dad would want.

Lots of love.

Mavis xxx

[mhnevillParticipant]

Hi Andy

So glad the Greece trip went as well as hoped for and you have more planned!

Do hope they find a drug that really suits soon.

Keep drinking! I guess the stronger stuff can count towards your three litres!

Love

Mavis x

[mhnevillParticipant]

Hi Steph

Sorry you are having such a tough time. I do feel for your dad. What treatment are they giving him for the spinal compression? I had to have an operation to remove a tumour and stabilise my spine.

My longest stay in hospital was four weeks and it seemed like a lifetime. If he can get rid of the infections it is amazing how you can cope at home with very little, or even no mobility. Hope dad gets out soon.

There is life after MM. As Andy always says, it is a case of living one day at a time.

Love.

Mavis x

[mhnevillParticipant]

Hi Trevor

Sorry to hear about your brother. Sorry, don't know anyone in Spain, but just wanted to say they do seem to be able to treat kidney related problems caused by MM. Do hope that is the case with him.

Spanish Consultants seem to contribute to International debates about MM so don't feel it is a benighted country. Just hope he has some Spanish language or else communicating with nurses might be difficult. I think Drs seem to have good English!

Best wishes to you both.

Mavis

[mhnevillParticipant]

Hi Jo

Sorry you have had to join us and sorry your Dad had such a bad experience of the drugs. I wonder they didn't suggest lowering the dose as he has so much pain in his feet.

Like the others, your Dad's numbers still seem very low. Let's hope the next set of blood tests don't show any further rise.

About your Dad's back pain (I have lots of problems with that because of previous arthritis!) it is possible for him to ask for an X-ray of his back to see if the pain is caused by active MM or just degenerative processes. This is what mine turned out to be! The pain continues but my mind was at rest!

You don't say what age your dad is. As you have young children I suspect he is not so old. Have h
They talked about a SCT? Mind you, as I have just said on anther post it isn't the only way to go. Depends on lots of factors.

Lots of love. My only daughter is in Luxembourg so I know all the difficulties of distance, but the phone is a marvellous thing.

Mavis x

[mhnevillParticipant]

Hi David

Welcome from me to. Sorry you havs had to join us!

Iam 69 and have chosen, myself not to have SCT. Be guided by your medical team, but be aware there are other options. My PP levels fell to zero following CDT for six cycles. I have now been drug free for over a year, apart from Zometa infusions for my bones which are very affected by the MM.

Presume MX1 is a Trial. I do hope the combination works well for you. As we all have a different MM journey it would be interesting to know what led to your diagnosis?

All very best wishes.

Mavis

[mhnevillParticipant]

Hi Tina

Good to hear news of you. Glad to hear about remission. Hope you can get back on Revlimid soon. The itching must be awful.

Love.

Mavis x

[mhnevillParticipant]

Hi David

So sorry to hear about your sister in law. Yes, it is going to be hard for your wife coping with the unexpected loss of her sister and worrying about you.

I do hope the Revlimid comes on stream soon for you and is extremely effective.

Keep strong.

Mavis x

[mhnevillParticipant]

Hi Trish

Do hope that Peter is coming round after his infection and that you have a positive Consultation visit in October.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Eve

Love to you both from me too. Sorry can't help with specific questions.

Mavis xx

[mhnevillParticipant]

Hi Graham

You seem to be coping well with the treatment so far so I am sure you will cope with your SCT although, I gather from others who have gone down this road it is no walk in the park.

welcome and very best wishes.

Mavis

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