[mhnevillParticipant]

Hi Susannah and Michael

Just to let you know that i am still rooting for you. Do hope the antibiotics are beginning to do their job and that Michael can be home soon – there is no where like it.

I guess all of us MMers think about our end, from time to time and wonder which way we will go. I am sure we all hope and pray for a gentle release with our dear ones with us, but not too soon! I hope and pray that for Michael too.

Take care of yourself. Like all our carers you are very special.

Lots of love.

Mavis xx

[mhnevillParticipant]

Hiya!

Crept into under 50s group to read your post.

Sorry things aren't going so well for Melvin – ion fact it sound pretty horrible.

Do hope that pain is beginning to be got under control. I am also a great one for recommending asking to see the specialist pain team if you haven't already.

Lots of love to you both.

Mavis x

[mhnevillParticipant]

Hi Lizzy

Welcome from me too. Sorry your Mum has had such a bad time to begin her MM journey with. I do hope she is coming out of the dark tunnel.

The one good thing about the treatment of MM is that there are so many paths to try. Many of us have found CDT, a more traditional treatment, very successful, so don't despair that your Mum hasn't responded to the novel drug combination. You don't say how old your Mum is, I am 67yrs and have just finished six rounds of CDT and am currently completely clear of any PP on my blood.

Do keep us informed of your Mum's progress. We all know how telling it must be on you, your Dad, and the rest of the family.

Lots of love.

Mavis x

[mhnevillParticipant]

Hi Jo,

Just postine here as it may go straight to your email list to say, look at Dia's posting if you haven't already done so!

Lots of love and all blessings.

Mavis xxx

[mhnevillParticipant]

Hi Everyone

Thank you so much for all your good wishes. It is good that we can share joys and soorows here. Good too that there are a good number of us in remission. It must encourage our newer members just when they are really bowled over by the diagnosis.

Lots of love to all my cyber friends – get well and keep well.

Mavis xxx

[mhnevillParticipant]

Hi Jo

I'm glad that DAi spotted too that things aren't all well for you. I had noticed it in your posting to me and was going to respond. I have always been so encouraged by your postings.

Do hope the new treatment works very quickly so there is no more kidney damage. Also hope the side effects aren't too bad. Are you still able to carry on life nearly "as normal" or are you bound to lots of hospital visits?

Lots of love.

Mavis x

[mhnevillParticipant]

Hi Debbie

Welcome to you and your Dad. Sorry you have had to join us and that your Dad has now to start treatment. I would deffinitely advise a holiday before treatment starts because I found my appitite was seriously affected, also, as others as said, even if he does well, there will be "off" days.

As to driving, I started driving again, having stopped because of back trouble, during CTD, and I had no problems. As my mobility is generally bad, driving helps keep my sense of freedom!

All best wishes to your Dad.

Mavis

[mhnevillParticipant]

Dear Sue and Michael

Just wanted to let you know that you will both be in my thoughts and prayers at this very difficult time. I am sure you will feel better after you have seen the Pallative Care Team. They will really want to take your thoughts and wishes into account aand make things as easy as possible.

No one can predict how long a particular life will be. Sorry your Consultant was so unfeeling.

Let your love for each other show in the quietness if you can't always do words! And tears are allowed.

Much love to you both.

Mavis x

[mhnevillParticipant]

Dear Gill

I'm sorry that you have people around who obviously have no idea what it is like to lose someone so close. Two months is no time at all for healing even to begin to happen. YOU be kind to yourself, and don't expect too much from yourself, even if other people are insensitive.

Do keep in touch here.

Lots of love.

Mavis xxx

[mhnevillParticipant]

Hi Pat

Sorry you are having trouble with your silver rings. I wear a lot of silver, but not rings, and I haven't had any trouble!

This is a funny disease. We all react so differently and these seemingly "little" things can tip the balance in making us feel depressed.

Do take care.

Mavis x

[mhnevillParticipant]

Hi Tina

You know I'd admire you for following the CDT with the Transplant. I know, from reading what others have experienced, that it won't be an easy time, but, if like with CDT, you mark off the weeks, I know you are going to come fine. What was your PP reading pre SCT?

I know one of the worse things with all this treatment is how food tastes, and lack of appitite. I do hope yours gets a bit better before Christmas.

Trouble is, now my appitite has come back I have put on weight so am going on a diet today with two of my neighbours. Seven weeks to Christmas so we are each hoping to lose a stone!

Lots of love.

Mavis x

[mhnevillParticipant]

Hi you three!

I'd also take my hat off if I wore one!!!!

Love and best wishes to all of you.

Mavis x

[mhnevillParticipant]

Hi "K"

Welcome to the site. Sorry your Mum is having such a trying time. Don't have any specific answers, but just wanted to say that, maybe, given all the circumstances, less treatment is better at her stage. Is your Mum able to discuss this with you? Have you been in touch with the Pallitative Care Team in your area? I find their approach to pain relief very helpful.

Lots of love to all the family at this difficult time.

Mavis x

[mhnevillParticipant]

Hi David

Good to hear you are now feeling a lot better so don't need to have PP count yet. We are all so used to you being upbeat and cheerful! Keep it up!

Very best wishes.

Mavis x

[mhnevillParticipant]

Hi Dai

I'm so glad the wedding went well. It sounds like the wedding venue was loveluy. Look forward to seeing photos.

Take care of yourself and Janet. I expect, like the rest of us, you are now wondering about Christmas plans. We are very sorry not to be able to make it down to London and the grandchildren this year, but we have got to be sensible. Hopefully they will come up to Yorkshire sometime over the New Year.

Keep well.

Love Mavis x

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