[mhnevillParticipant]

Hi Lynne

So sorry to hear of John's passing, but you must, at least, be glad, that, at last, all his suffering, so bravely borne. is over. Like others, I am so glad you had a special four weeks at the end.

Do be kind to yourself in these coming weeks. You have been a wonderfully supportive wife and now it is time to let family and friends show you their love and support.

I do hope that many good memories will help you get through these dark days.

Much love.

Mavis xx

[mhnevillParticipant]

Hi Paul

So glad to hear the SCT is over and relitively trouble free. As everyone says, do keep free from other folk's germs and hang on there for that break in October.

All best wishes as you wait for your Alo transplant. I have been interested to hear of Jet's progress since hers. Do you read her posts? You are brave souls.

Mavis x

[mhnevillParticipant]

Hi Andy and Steph

I am glad that the second opinion led to a better feeling. At least you were listened to and have been given some options for the future. I'm really glad you got the reassurance about the pp levels as they can be a bit terrifying can't they.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Vicki

I have only just finished six rounds of CDT, this week, and am not going on to SCT. I am feeling tired and a bit sicky. but at least food tastes better. I just wish I diidn't have some problems with my teeth which IU am getting sorted out.

I also have some pain in my back – where my myeloma also started. (I had to have a tumour removed.) My Consultant says that this pain is normal because of the thinning of the bones so I am going to talk to the Pain Specialist about increasing the daily dose of morphine.

Hope things go well for Colin.

Best wishes.

Mavis

[mhnevillParticipant]

Hi Pat

Welcome to the forum from me too. Waiting seems to be a regular feature of coping with Myeloma. I do hope that, after this next week, you at least know whether you are coping with myeloma or not. You will then be advised about appropriate treatment. This is when, if it is myeloma, friends on here will really be able to help with advice and support.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Rach

Welcome from me to the forum. I am 67 yrs ans haven't gone down the route of SCT, but have just finished six rounds of CDT. I was interested in your post because I also had cancer of the uterus, but again, with no conection with the subsequent development of myeloma. I am very impressed by your Mum's resislience and the fact she is already doing so much so soon after her SCT. Hope she doesn't push herself too far.

My only daughter is 38yrs. She found it easier to cope with once we found that myeloma isn't neccesarrily an immediate death threat and that, in fact, many people survive, with treatment, for many years. This is where this Forum is such an encouragement.

Best wishes to your Mum and to you.

Mavis

[mhnevillParticipant]

Hi Dai

Sorry it seems to be one thing after another. Let's hope it has disappeared and not just doing that "dentist" type thing of, when you actually get there the tooth ache disappears!!

I just wish you a really clear run for a change so you can really enjoy the family without having to make back up plans.

All best wishes.

Mavis x

[mhnevillParticipant]

Dear Chris

Do hope you are able to get enough cells soon so the SCT can go ahead.

All best wishes.

Mavis

[mhnevillParticipant]

Dear Eve

I am so glad that Slim is making improvements at last. It has been a long haul for you both, but obviously worth it if you can now contemplate booking a holiday! I do hope your plans work out.

Here's to the future!

All best wishes to you both.

Mavis x

[mhnevillParticipant]

Hi Michele

Welcome to the Forum! Your experieinces will be valuable to others. Thank you for being willing to share.

I'm glad that your treatment has been successful. I do hope that this period of remission will be a very long one. As you say, it takes a while to realise, that a diagnosis of Myeloma isn't an instant death threat. I am amazed at how fast treatment options are increasing and I find reading other folk's experiences very helpful.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Tina

Do hope you have a great holiday. All best wishes for your SCT. Do let us know how you get on.

You may remember that I am not going down the SCT route so have had six rounds of CDT. Just 13 days to go and i am finished. The treatment has worked its stuff and my bloods are normal, first time since diagnosis, and PP undetectable. I feel very grateful, but can't wait for treatment to end. My Consultant says, as MM is incurable, they don't refer to it as "remission", but "plateau", but everyone else seems to talk about remission, so I am praying for a long one!!

Very best wishes and love.

Mavis x

[mhnevillParticipant]

Hi Kevin

I am just finishing my first, successful CDT (six rounds!) Certainly, I concur with you, leave the bif stuff off for as long as possible, especially as first CDT obviously did good for you.

All best wishes. Let us know how you get on. I think it is so important that we run our treatment regime not our Consultants. Fortuately, I have had Consultants who have worked with me. I am about to change hospitals, because Airedale is proving too far to travel and Bradford Royal Infirmary is just down the road. I am hoping that things work out for me there. Is there anyone out there being treated in Bradford?

All best wishes to you.

Mavis x

[mhnevillParticipant]

Hi Paul

I haven't posted for a while either, but I am delighted to hear that, at last, you have made it to SCT. I do hope and pray all goes well and that it leads to a very long and healthy remission. Glad you got a break before the treatment.

All very best wishes.

Mavis x

[mhnevillParticipant]

Hi Mike

Like everyone else I am sorry you have had to join us, but take encouragement from us "oldies" that as diagnosis isn't the end of the world.

It is interesting that, at the moment, a lot of folk seem to be being diagnosed because of back problems. Do take care. I am glad your boss is being sympathetic, especially as the majority of people, ourselves included, have probably never heard of myeloma before.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi everyone

I missed Dia's original idea, but wanted to add my love and fond memories of Bridgett whi also supported me so strongly that I felt i knew her so well. I have also shed many tears and had many thoguhts of her greiving family.
May we all take inspiration from Bridgett's generosity and care in our contributions to supporting other's on the site.

Rest in peace our dearly loved friend.

Mavis xx

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