[mhnevillParticipant]

Hi Eve and Slim

What good news that Slim is home – the other side of the SCT. After all the problems you have faced to get to this point, it is great to hear this. AS Dai says, there is a lot more hill to climb, BUT you are on the right side!

Very best wishes to you both.

Mavis x

[mhnevillParticipant]

Hi Paul

In spite of disappointing weather, I hope that you managed a break and that your legs are less jelly like!!! Knowing you, another couple of months and you will be bouncing about.

I'm also suffering with steroid round face – wouldn't mind, but people keep commenting on it – as if I didn't know!!!

Lots of love to you both.

Mavis x

[mhnevillParticipant]

Hi Andy

Just a note to say glad numbers are moving in the right direction, even if slowly. Enjoy your break, hope the weather is kind – and be encouraged that something is working for you.

Very, very best wishes.

Mavis x

[mhnevillParticipant]

Hi Keith

Keep fighting!!! If you were a nursing mother, they'd say take stout for the red cells – do whatever is the MM equivilent!

Best wishes.

Mavis x

[mhnevillParticipant]

Dear Liz and Kev

So sorry to hear your news, but at least the quick resonse should bring good results from the velcade and dex. I do hope there aren't many side effects and that you are able to have a good summer.

Very best wishes.

Mavis x

[mhnevillParticipant]

Dear Eve

I'm so glad, that after so many hurdles, Slim has at last had his SCT. Another few weeks and he will wonder what he was worrying about as he looks forward to his "new life" and that trip to New Zealand.

You know we are all rooting for you both.

Lots of love.

Mavis xx

[mhnevillParticipant]

Hi Dai

I'm also thrilled that Rev and Dex are doing the job! Just sorry you had a tortuous wait to find out they were working, with all the lows that that inevitably caused. What is it about blood results that they can't just give us a print out as a routine thing. I only found my PP level had gone down to 4 by specially asking the nurse to "do me a favour" and find my results. It shouldn't be like that, when as you say, our whole emotional equilibrium is affected by those results.

Dia, I'm so pleased, that after many a false start, they have found the mix that works for you. I know your battle with MM will be long and successful.

Thank you for all your encouragement of the rest of us. We are pleased that it is your turn to be encouraged. Glad your music continues to give such comfort and joy.

Lots of love to you and Janet (what a jewell you have!)

Mavis xx

Mavis xxx

[mhnevillParticipant]

Dear Paul

So sorry that things aren't going as well as we would have hoped. I can understand you being pxxxxx off! We must all get to the point, from time to time, when things aren't goinmg well, of thinking "is it all worth it?" Good job that at heart you are such a fighter. I know things will work for you – do hang on in there. It is just so frustrating that this MM battle doesn't follow the same path for everyone. I do hope this DT Pace does the trick for you. Shame it didn't for Andy.

Like others are saying, hold on in there, the SCT will happen eventually and we will all be praying for a very long remission for you.

Lots of love.

Mavis xxx

[mhnevillParticipant]

Hi Tina

Glad to hear your news.

At the end of round 2 my PP were 5, but I obviously don't feel as good as you. The shingles haven't helped, but do seem to be subsiding. As I lost a week of chemo I am now on day 4 of round 3. I don't seem to be getting the mood swings with CDT, but did have a very low few days, which was obviously the onset of the shingles. Glad to say I feel much brighter now and again feel the battle is worth it!

Keep up the good progress.

Love Mavis xx

[mhnevillParticipant]

Dear Jill

I'm also devastated with the news about Stephen when he has fought such a brave fight against this dreaded MM. I guess he now does need to work out his own way to assimilate this news and work his own way through these next difficult months. I can understand his wish to go to France and be damned! I hope he manages to pull it off.

As for you, what a difficiult time. I do pray you will be given the peace and strength you need.

Love to you both.

Mavis xx

[mhnevillParticipant]

Dear Michelle

May I add my sympathies to you and all the family. You have been able to support your Mum through this very difficult journey and it is good that you were able to with her at the end.

This week will be a very difficult one, but may all the good memories you have of your life together sustain you as well as the thought that "this,life is not all that there is".

Much love.

Mavis xx

[mhnevillParticipant]

Hi Jo

So glad you manged your holiday in Greece and have another planned for IoW later. It is a case of making the most of the chances. I'm so glad your PP levels are keeping stable. You are a real encouragement to me.

Much love.

Mavis xxx

[mhnevillParticipant]

Hi Keith

Like everyone else I hope your readings are just a blip.

Come what may I can't see why you shouldn't get your holiday.

Bdst wishes.

Mavis

[mhnevillParticipant]

Hi Sarah and Henry

So glad you are now beginning a new chapter in your lives. I do hope that your remission goes on and on.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Tina

Sorry you have had such a horrible complication. It's not easy this journey, is it. I'm glad you got such a sympathetic nurse to answer your call because you do feel alone don't you. Have they adjusted your doses? I believe you are on the 28 day cycle (I am on 21 day one).

I went to the consultant yesterday, for what should have been collection of tablets for my third treatment, to get confirmation that the rash I have is shingles! So….. a week's supply of anti shingles drugs, a week off chemo (not too unhappy about that to be honest,) and back again next Wednesday.

I had been greeted at clinic by the news that my Hb was low so I would probably need a blood transfusion next week! However, they did another blood test while I waited. and as it was back up to 10 I don't now have to have one. Dr said my breathlessness could have been caused by low Hb.

I am finding it very difficult to get blood results for myself so I can't really keep a good track of them for myself in spite of waving the Myeloma Diary in front of them at every opportunity. They always promise to come back with them but never do. I have to get the District Nurses to take another blood test on Tuesday so that they are ready when I go to clinic on Wednesday.

Do hope you are beginning to feel better.

Love Mavis x

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