[mhnevillParticipant]

Hi Chris

Sorry you have had to join us! I feel for you as you come to terms with this life changing diagnosis. I find, now it is over a year since mine that I have come to an easier accomodation with MM. Fortunately, so far, apart from surgery on my back and radiotherepy, and now monthly zometa, for my bones, I haven't had to have any other treatment.

Hope you find some support from someone living nearby. I have always regretted there isn't a Support Group here in Bradford. In fact, I keep thinking of trying to start one up.

This site is really a God send and folk are so generous with sharing their experiences.

Very best wishes for a long and happy future in spite of MM.

Mavis

[mhnevillParticipant]

Dear Keith

I do hope you will have kicked off the worst of this chest infection by Christmas.

It's no wonder everyone is catching things – I'm getting a real down on folk who just sneeze and cough all over the place and never use a hankerchief.

All best wishes.

Mavis

[mhnevillParticipant]

Hi everyone

More love to you all who are struggling so bravely.

Thank you Min for that lovely explanation of grief. I will certainly share it with others. My neighbour was only asking me the other week why she didn't feel better, but worse, having lost her husband 18 months ago.

It certainly takes more time than most people who haven't gone through it realise, to expand your new world experiences enough to feel slightly better.

Much thoughts and prayers.

Mavis xxxx

[mhnevillParticipant]

Hi Min

You do the brain training and have a laugh. I did one on my friend's nintendo last week. I have a brain age of 59 – not bad for a 66 year old! But on one of the tests you had to remember a list of four letter words (all clean of course!)nd I could only remember three. I thought I would get a scor of about a hundred!!!

And David, how I sympathise with you trying to remember about your drugs. Isn't it fascinating how you can eventually work round to remembering something if you go the long way round.

Good job we can take some comfort that we all seem to suffer the same way.

All best wishes.

Mavis

[mhnevillParticipant]

Hi Jean

I have just caught up with these posts. Sorry Frank is having such a bad time and you are having such a lot of worry.

I do hope the MRI doesn't throw up anything sinister. When you describe the pain around his ribs, it is very like the pain I get from time to time. sometimes, like Frank I can hardly move with it. I mentioned it to my Consultant this week and she said she didn't think iot was MM related as if came and went. I haven't had any breathlessness though.

I do hope that Frank feels better by Christmas.

Very best wishes to you both.

Mavis

[mhnevillParticipant]

I want to send special greetings to all of you who have lost loved ones to the dreaded MM this year. It will be very sad, especially on Christmas day, but I am sure i won't be the only one sending up a prayer for all my cyber friends in this sad situatiion.

May you find that strength that you previously generously and lovingly spent on your partners/loved ones, and be able to sense that they have left some of their courage with you.

Lots of love and all blessings.

Mavis xxxxx

[mhnevillParticipant]

I agree Glyn! When I read the first article Min directed us too I wasn't too impressed to read the stark survival expectations.

Let's all prove them wrong, and, David, who knows what is round the corner.

Thank you Ellen for looking out for us.

Love and long remissions to all my cyber friends on site.

Mavis xxxx

[mhnevillParticipant]

Hi Eve

Envy Slim his tan even if drug induced. I am looking decidedly pastey!!

Hope his tooth isn't too painful and that you get it sorted out soon. Just when you thought you could have a break from the medics!!

Lots of love to you both.

Mavis

[mhnevillParticipant]

Hi Bridget

I'm still routing for you!!! Sorry you had such a bad experience. It does seem daft what floors us, isn't it.

Maybe your body is saying it wants a partial rest from all this toxic stuff. It sounds, by what you wrote that you are still on steroids. Whatever, I hope it is enough to keep anything more sinister at bay. Hope the bone pain is still under control.

I hate to say it, in view of all your problems, that I feel better than I have for a couple of years. I go to my Consultant on Monday so hope my blood results confirm this.

Hope you and all the family have a lovely Christmas. Hope someone is helping out with all the food preparations.

Much love.

Mavis x

[mhnevillParticipant]

Hi Mari

Sorry to hear Steve has taken a dive. Glad he can be a bit philosophical about it. Folk on here seem to do well on velcade. I met one of the "Velcade Three" ladies (your name sake – Marie!) on am ambulance to Leeds last year. How grateful we need to be to those who fought the Authorities to make NHS agree to pay for it. And, to think, now things have improved with it being administered by injection rather than infusion.

All very best wishes to Steve and to you.

All the blessings of Christmas.

Mavis

[mhnevillParticipant]

Hi Sue and Michael

So sorry the Trial hasn't worked for you – you will have had such high hopes. I know you won't give up and I have read that refractory patients often respond to drugs that have worked for them earlier in their treatment. Has that been suggested. It maybe that your local Consultant with come up with something, but if not, I agree with others, do get a second opinion.

At least you might have a treatment free Christmas – enjoy!

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Christine

Sorry to have to welcome you to this elite club!! Glad others have been able to answer your specific questions. One thing I have learnt from this site is to concentrate on what you can do, not what you can't. Now you have been diagnosed and are being treated, I'm sure that, like most of us, you will eventually find you can do more than you can now.

All very best wishes. Do keep us informed of your progess.

Mavis

[mhnevillParticipant]

Hi Belles

Great news about your Mum. Here's to a good Christmas and New Year.

Best wishes.

Mavis

[mhnevillParticipant]

Many happy returns Tom!!

Here's to many more years of celebration.

Best wishes.

Mavis

[mhnevillParticipant]

Hi Eve

How good to hear some good news re Slim after such a long, difficult time. I do hope this time leads to a good major treatment holiday!!!

I went onto Zometa three months ago and apart from the shivers the first cycle I have felt really well on it.

Have a great Christmas the two of you.

Mavis

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