[mhnevillParticipant]

Hi Etta

Sorry you have had to join us. All of us can sympathise about the information overload on top of the shock of diagnosis.

I am just starting on Zometa on Tuesday, having taken tablets for my bones so I will let you know how I get on.

Very best wishes for a quick and long remission.

Mavis

[mhnevillParticipant]

Hi Terry

Have been away and just read your post. Like everyone else I am glad you have now found out how to post to this site. I know you will find lots to help you as well as adding to all our knowledge too.

I haven't any experience of Velcade, but can empathise with your efforts to regain your walking ability. I am currently on two crutches with great difficulty to stand up, but i am focussing on it like you did.

All very best wishes.

Mavis

[mhnevillParticipant]

Hi Dai

Great news about the numbers. One thing, as I reckon it you have only two more treatments, and then you will be able to get on with your life, in remission, and hopefully be treatment free for a long long time, and hopefully time for side effects to subside.

Hang on in there, let's hope the next two treatments are much less distressing.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Ivan

Do hope Velcade works out for you. My husband has PN because of diabetes and he gets severe pains in his toes. Hope you are getting some relief now.

Best wishes.

Mavis

[mhnevillParticipant]

Dear Bridget

All best wishes for tomorow.

Love Mavis xx

[mhnevillParticipant]

Hi Gill

Can I also wish Stephen well with his op.

Best wishes.

Mavis

[mhnevillParticipant]

Hi Nettie

Like everyone else i am in awe of the challenge you have set yourself!
Hope you raise lot to make the effort worth while. I'm so glad you are feeling up to doing it.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi Alexis and John

From me too a welcome to you both. Hope John finds it helpful via you Alexis!

Best wishes

Mavis

[mhnevillParticipant]

Hi Aileeen

Like everyone else I welcome you (sadly) to this grand site. You will find the hellp and support you need here.

One thing no one has mentioned yet, but which you might have picked up if you have read earlier posts, is that not everyone starts treatment straight away. Don't be worried if they suggest a "wait and see" stratergy – just be glad to stave off the evil day!!! It occurs to me to say this as it is your GP who has diagnosed this so perhaps you have not progressed too far into MM yet. I do hope so, but if not, as others have said, there are plenty of options for treatment out there and things are not so grim as some sites, not regualrly updated, suggest.

When I read some Web Sites in Hospital, when first diagnosed I was seeing 2 – 5 years prognosis. That just isn't the case now, but many sites are still there saying this.

All best wishes to you "for the journey" do keep in touch.

Mavis

[mhnevillParticipant]

Hi Martin

May I add my condolences too. Your Father fought a good fight and I am sure you are glad that he is now free of pain.

Best wishes to you and all the family.

Mavis

[mhnevillParticipant]

Hi Bridget

What happened here was I answered the door, my cartload of medicines, and then thought I'd lost the message and started again!!!!

I can't even blame it on chemo brain.

Love

Mavis x

[mhnevillParticipant]

Hi Bridget

How much is a girl meant to take? So sorry that RT was so aweful. I was worried it may be. Let's hope and pray next two shots are better adn, like everyone says, work much faster than predicted.

Glad they are working on a taylored next step for you. Hope funding doesn't become a major issue. We could all hold placards if neccessary!!!

I know you will hang in there – know we are all alongside you in the battle.

Just this minute heard so good news. A friend who had .

Dear Bridget

How much is a girl meant to take? So sorry you had such an aweful time yesterday. Do hope it went better today and hope, along with everyone else, that you get some pain relief much sooner than two weeks. I am not greatly enamoured with RTs they don't seem to have the same capacity for empathy as other staff… do they know what two weeks more of pain means to you. I know it might be the truth, hope and pray not, but I only hope they were putting themselves in your shoes as they were telling you that.

So glad to hear they are going to try the new drug. Hope finance doesn't become a problem. We could all hold cyber plackards for you!!!!!

Hold on in there BRidget you are one of the special people.

Much love.

Mavis xxx

[mhnevillParticipant]

Hi Ted and everyone

I wanted to see my GP before I go off on holiday next week. Last time I got fobbed off with a telephone appointment and it was my firest time at a new surgery. Anyway, they can't look in your ear over the telephone so I took the dreaded route – on the phone at 8.00 am on dot, dressed and readyin case offered early appointment, which I hate. After about only what seemed like 100 redials I go through to the long queue just after 8.12am. I said to my husband, "I'm glad it wasn't an emergency!" Did get to see Dr at 11.00am and duly got two lots of new medecine. Then exclaimed "thank God for the NHS!!!" Dread to think what my medicine bill is!

Take care one and all.

Mavis

[mhnevillParticipant]

Hi sandy

Hope all goes well with the SCT!

All best wishes.

Mavis

[mhnevillParticipant]

Hi Sally

Somehow I seem to have missed this thread over the past few weeks! Welcome from me. Glad your Dad is doing relatively well on the Trial. I do hope thst it eventually pushes him into a long remission.

Care for the vulnerable eldery seems to have gone down hill these last few years. I'm sorry that your Mum isn't getting the care package she needs as it will be putting so much of a strain on your Dad and the rest of the family.

How lovely that your Dad can still be involved with his grandson each day. Since I was diagnosed last year i have only been able to see my grandsons when their Mum can make the long journey from south London to Yorkshire. I am really excited that next week I am driving down for the first time to visit them on their territory, although we are staying in a Hotel to avoid stairs.

All best wishes to you and you parents.

Mavis

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