[mhnevillParticipant]

Dear Sarah

Like everyone else I am so sorry that after such a long, brave battle, Gordon is at last at peace. But so sorry for you and the family. The MM fight must have taken over your life for the past ten years and leave you absolutely exausted.

I am so in awe of those, like Gordon who walked this hard road before us and who helped give to the knowledge that is helping all of us today.

Much love to you.

Mavis x

[mhnevillParticipant]

Hi Bridget

I am so glad something is going your way after such a rotten few months.
Long may your improvement last. Who knows, those size 12s may get another airing eventually.

I always appreciate your obvious concerna and support of others.

Love

Mavis

[mhnevillParticipant]

Hi Dai

Do hope you got some satisfaction today. So frustrating that your treatment is going well, but that it is your leg that is setting you back.

All the best.

Mavis

[mhnevillParticipant]

Dear Sharon

Just caught up with your post. So sorry you are having such a rotten time with the CTD. Do hope you get an appointment soon and get the help and advice you need.

It's a very hard path you are having to tread so be as kind and forgiving to yourself as you can be, and as others say, make sure you are getting support with the children.

Very best wishes.

Mavis

[mhnevillParticipant]

Hello Ivan

Just caught your post. Sorry about the diagnosis. Do hope you have had a good hospital visit today and felt comfortable with the Consultant.

If they said you should just "wait and see" with regular check ups, don't feel they are fobbing you off. For some folk this is the way ahead and the months without drastic treatment are to be valued.

On the other hand, as others have said, if you are advised to go down the treatment route straight away there are plenty of folk on the site to give you advice and support.

Very best wishes to you and all the family as you all adjust to this thing called MM being in your midst.

Mavis

[mhnevillParticipant]

Hi Dai

It sounds as if quality of life is slightly better for you. Isn't it difficult sometimes to know what is MM and what is down to other factors. Worse when you are older, I can tell you – because then you get "of course, at your age…!"

Do hope reduced level of Velcade does some good and you are able to finish the Course.

Enjoy what life you can – what a blessing you are getting some sleep. Wonder what it is about this combination that has made the dreaded Dex behave itself?!

VERY best wishes.

Mavis

[mhnevillParticipant]

Hi Gill

Like everyone else i am hoping and praying the infection is now under control.

Best wishes to you and Stephen.

Mav is

[mhnevillParticipant]

Hi all

Have one of you who know Gaye better thought to try and contact her off group?

Do hope all is well with her.

Mavis

[mhnevillParticipant]

Hi Peggy

Lots of luck with the trial – let's hope it kicks te dreaded MM into touch very quickly.

Very best wishes.

Mavis

[mhnevillParticipant]

Hi all of your wonderful Carers!

Just wanted you to know what a marvellous job you are all doing. I have always thought it must be worse being the one watching on.

Makes me appreciate my own hubby even if we all like to moan from time to time!

Love

Mavis x

[mhnevillParticipant]

Hi Pam

It must be good news that the MM isn't in your Dad's bones as this is what causes everyon with it so much pain, and because of your Dad's other difficulties would be very difficult to get under control.

I do hope that when the Haematologist looks at his other results they can find some treatment for any symptons without going down the route of chemotherepy drugs.

Love and prayers.

Mavis

[mhnevillParticipant]

Hi Jet

Though I can't offer anything re SCT, not having had one, I just wanted to say that I will be thinking of you at the beginning of August. I think the fact that basically you are so fit to start with will go well for you.

I also like the new look! As Gloria says, you are lucky to ahve such good bone structure.

I shall look forward to your Blogs when you are thorugh the other side!! They are always so hones and enlightening.

Love.

Mavis

[mhnevillParticipant]

Dear Dai and Scott

I'm glad to hear you ahve both got good partial remissions. Hope it makes all the miseries worth while.

I will cheer you on Scott and watch your progress as I too am not overjoyed by the thought of SCT.

Dai, I'm sorry you have to have more treatment, but at least it is well in the right dirrection and looks like Full Remission is a possibility. Glad you said about doing a Gig when you are away. The thought of that must lift your spirits. Do hope you can get back in the car soon as I know how much that contributes to a sense of freedom.

Rooting for you both!

Mavis

[mhnevillParticipant]

Dear Pam

I'm so sorry you and your family are having such a distressing time with the potential diagnoses of your father. I do hope that someone on the site will be able to answer your specific question, but I wanted to point out that not everyone with myeloma needs immediate treatment, so it may be possible that it will just be the results of myeloma that will need attention. I do hope and pray so because your father obviously has enough to cope with.

With all good wishes.

Mavis

[mhnevillParticipant]

Dear Dai

I'm so sorry "you were "really" ill"! You do seem to have gone through the wars lately. Still, if the temperature and all that followed means you get a rest from the Velcade, and then are hopefully approaching the last round, it isn't all bad.

I once had a junior Doctor try about twelve times to get a canula into my arm so I sympathise with you. In the end he gave up and I went without the drip overnight. Next day the Phlebotomist got one in first time!!

Do hope the PN is improving. The guitar awaits its master!!!

Hope some really good months lie ahead for you and you manage to get the holiday everyone thought you were on while you were suffering in Hospital.

Very best wishes.

Mavis

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