lawsonmichelle

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Viewing 7 posts - 91 through 97 (of 97 total)
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  • #88832

    michelleakitt29
    Participant

    Hi John

    Nice to meet you

    with love michelle x

    #88715

    michelleakitt29
    Participant

    Hi All

    Update on Mum, she is doing well on antibiotics, but will be on Iv until Monday, and she will be re assessed then, However, she has told them if she is still in nxt wk end that she WILL be going out for the afternoon to see Disney on ice (thats me mum lol 😀 ) on the negative side 🙁 , her myeloma has started to really progress again, we knew that her proteins were creeping up again but have just shot up since the last count, what we need now is for her to start Revlimid asap now, as soon as her chest is good enough they are going to start her on it, she was really upset the other day about this, but i got the lead specialist nurse to chat to her and i think she now feels a lot happier, I think she is just starting to take on board that this illness is terminal and that she needs to think of her well fair now, took its time, and i believe reality is starting to hit her, but at least she still remains positive……So onwards and upwards eh Tom?

    with love michelle x x x

    #88712

    michelleakitt29
    Participant

    Hi Mum was started again on some more IV as she started being really poorly again yday, after 24 hrs back on them she is doing rather well, still very very tired, and got a terrible cough, but doctors pleased with her, she is very determined to be out by next wk as Mum and Me are going to see Disney on ice a wk on saturday and she is really looking forward to it, keep our fingers crossed that she will be well enough to come home.

    Thanks to you all.

    with all my love michelle x x

    #106717

    michelleakitt29
    Participant

    Hi Debs

    At least something is now being done, your life seems to have been hanging in the balance for a long time now.

    Good luck with it all, and to be honest My mum doesn't seem to have much trouble at all while she is on dex, not sure why when I read what everyone else goes through lol, Most people get on relatively well with CDT think the worst thing for mum was perepheral neuropathy.

    with love michelle x x x

    #88694

    michelleakitt29
    Participant

    Hi Roz

    If you are not happy go through PALS, and make a complaint, thats what they are there for, I had to complain last yr about the same hospital and it was dealt with really well, that is the only way that these problems can be stopped. I am so sorry that you are having problems though, love to you both

    with love michelle x x

    #88709

    michelleakitt29
    Participant

    Hi all

    Do you know i can always count on you lot for some support, she is a little better today, it is day 3 of antibiotics tho, they going to do some tests? while she is in to see how the myeloma is progressing as her proteins are creeping up, and hopefully get her on revlimid as soon as possible.

    once again thank you

    with love michelle x x

    #88517

    michelleakitt29
    Participant

    Love the new site, HOWEVER, does anyone know how to change their user name, i thought this was just for login not to show on main screen, I am usually good with computers but i am completely flumuxed on this one lol many thanks michelle x x x

Viewing 7 posts - 91 through 97 (of 97 total)