Hi all, just wondering if anyone has had a long remission when stem cell transplant was not an option?  I was due to get one last October but my treatment has done some damage to my tummy muscles and have been sick since June.  I have had my sct put on hold and I am worried as most of the posts are about how everyone is doing after they have had a…[Read more]

Hi all, just wondering if anyone has had the same or similar side effect.  I had 5 cycles of vct last year and on the 6th cycle started to be sick.  I lost 2 stone and have been in and out of hospital since.  I am now being fed via a tube and liquid feed as I cannot keep anything down.  The doctors think the chemo may have caused nerve damage in…[Read more]

Hi all, I was diagnosed in October 2015 with amyloidosis after a lump was removed from my lymthnode.  After further tests including a bone marrow biopsy it was found by November 2015 I also had Myeloma.  Being told the news, I felt my world was falling apart.  I have had ongoing problems before the diagnosis and had been back and forward to di…[Read more]