Hi Scott.  It is very interesting that you have posted the issue you are having with your eyes.  I too have experienced something very similar.  My eyes struggle to focus and keep up with whatever is going on inside my brain to the point my eyes feel strained.

As a patient of a similar age, I am very interested in your story – how long ago was yo…[Read more]

Hi Liz.  Its tremendous to hear you have made such good progress, it sounds like you went through a lot in 9/10 months but have come through it well.  I am particularly impressed that you are playing tennis again – if there is one thing I am missing it is my sports; I have been doing a lot of walking and some on my exercise bike but that is not th…[Read more]

It does seem slightly different, i had surgery to remove the plasmacytoma as it was wrapping itself around my spinal cord, following that I had the bone marrow biopsy which I gather was ok but my light chains have been steadily climbing since then despite the radiotherapy too.  Yes I am under a haematology specialist at leicester.

All the very best.

Hi Annlyn and thank you so much for your reply and support to my idea.  You are absolutely right, there are some good news stories within the forum, the problem is you have to wade through to find them!!  I hope the idea gets further support.  Great to hear you have been in remission for one year now and that your experience at Newcastle Fr…[Read more]

Thank you for your response Avril.  I will indeed be speaking to my consultant about it but was really looking to gain an idea of other people’s experience of when/what point treatment started in terms of kappa/lambda ratio plus other symptoms (if any).  For example is there a ratio that would be treated even if there are no other symptoms?  …[Read more]