mojo

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  • #124636

    mojo
    Participant

    Hi Rebecca,

    Your post has been very informative, helpful and inspirational, thank you. As soon as David surfaces from his snooze, i’ll let him see it. Although I know everyone is different, having input from other carers and survivors too, is a great help :-).

    Tomorrow morning I’m off to do a wee abseil down the Forth Rail Bridge to raise some funds for Myeloma UK…will be a challenge, but am looking forward to it.

    All the best , Mojo

    #124622

    mojo
    Participant

    Sorry Jules. meant to add that I will  use carers leave and annual leave, but carers leave is limited. x

    #124621

    mojo
    Participant

    Hi Jules, i’m so sorry to hear of your husbands diagnosis. You’re on the right place here for support. The Macmillan nurse that we see is absolutely wonderful and very knowledgeable. The advice she’s given me, as has a colleague who’s husband also has cancer, is perhaps to get signed off by the Doctor. I really don’t like to play that card, as it leaves my colleagues to pick up the slack,  but as has been pointed out to me, and will be more challenging in your case, is that working full time, looking after the household duties/finances and of course the visits to and from the hospital will take more out of you than you think. I did it when David was initially diagnosed in acute kidney failure and i was mentally and physically drained. Add into the mix the phone calls and texts to keep everyone informed, this whole process is a full time job in itself. I ended up off work for a couple of weeks and was prescribed medication to help lighten the load.  Things were quite stable for me until we heard this week that SCT was a month away, and news, although brilliant for David, sent me towards a panic attack with all sorts of worries rattling around my head. You’ve got to look after yourself and your health..you need to be well enough to deal with all that’s ahead. While i would never advocate sick leave from work, I think that in this case, it will probably be the road I will take, and learn not to worry about work and what others think. Fingers crossed that you get things sorted out 🙂 x

     

    #124611

    mojo
    Participant

    Morning and thank you for your responses.

    I think the maximum time I could get from work would be 4 weeks made up of my 2 remaining weeks of annual leave (leave year April to March) and two weeks carers leave (carers leave weeks cant be taken back to back apparently). Both of us have elderly parents, not particularly local, with their own health issues and no family close by. Hubby’s parents will come down on occasion and stay over in a hotel close to the hospital where those visits are concerned, allowing me the odd night off, which would be reluctantly taken, but much appreciated :-). It  is very much a case of wait and see, but my priorities are with my husband, and after having had a nights (slightly broken) sleep, have woken with a clearer idea of perhaps how to deal with the up and coming issues.

    Thanks again, and best wishes to you all. 🙂

    #124608

    mojo
    Participant

    Hi, my husband is due to go for his stem cell transplant in 3 weeks, having responded very well to treatment since diagnosis at Easter. He has been told he is already in remission (paraproteins less than 1) and harvested more that enough cells at the first time of asking. I work full time and, although I know every case is different, I feel ill prepared for what the post transplant period will bring once he is home. I spoke with our lovely MacMillan nurse today expressing my concerns and when I said that I’d have 1 week carers leave and 1 weeks annual leave to take when he comes out, she raised her eyebrows somewhat. I thinks I’ve vastly underestimated how long the recovery after transplant can be….i’d be interested to hear the experiences of others please. Thank you 🙂

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