[mrsgooseParticipant]

Hi, I have had RA since I was 39. I am now 65. I was diagnosed with MM 7 years ago. I had a SCT and the RA went away. It came back when the MM came back last October. I had 2nd SCT and was fine until 6 weeks ago when I had a flare up and was given a mild steroid injection. I’m now having another flare up and don’t know what the answer is. I can no longer take NSAIDS due to affect it may have on kidneys nor can I take Methotrexate as it has been linked to MM. What treatment is there for me now? Is it a case of regular steroid injections and what long term effects do they have?

 

• This reply was modified 9 years, 3 months ago by  mrsgoose.

[mrsgooseParticipant]

I was 2 weeks, then 6 weeks. Hope your relative is progressing. Its very slow and steady.

Marg

 

 

[mrsgooseParticipant]

Hi I’m almost 7 weeks post 2nd SCT. My first was in 2008. I feel quite weak and shaky a lot of the time and don’t know if this is normal. I recovered in the summer the first time so I was able to get outside and do bits in the garden. I can’t face going out walking in the cold, though we have been to feed our local ducks 3 times.   I don’t know if it is my weakness or perhaps anti sickness drugs making me shaky. Has anyone else had this? I am much better than when I first came home but still find eating a chore . I can agree with most of what Jan Walker says.  I also had a DVT before I went in for transplant. I barley have the strength to put on and remove the compression socks. Thank goodness for my husband, he’s a star. Christmas is at my son’s, hope the turkey goes down well.  I have heard it takes longer to recover from 2nd SCT.

Happy Christmas All

Regards Margaret

 

 

[mrsgooseParticipant]

Hi Tom

Just finished first cycle of Velcade. Bit of PN feel a bit wobbly and weary. Constipation got me down but discovered the miracle of prune juice.

Thanks for reply, stay positive everyone 🙂

 

 

[mrsgooseParticipant]

Hi All

Sorry to hear sorry to hear of all the problems. I relapsed after 6 years and had my first Velcade injection today, How long befor side effects are noticed? I had a really bad reaction to thalidomide last time so hope it’s not the same.

Marg

 

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