mulberry posted an update 1 year, 9 months ago
There is another spam, for vynk music, under general
Jane
mulberry posted a new activity comment 2 years, 3 months ago
We. Have another hack from ‘moseteap’ 6 days ago!
I have ‘spammed’ this person so they shouldn’t be able to reply again. Thanks
davidw and 
mulberry posted a new activity comment 2 years, 8 months ago
We appear to have been hacked, admin please can you remove this new ‘member’.
I have marked this as spam and the ‘member’ will be removed. Many thanks for flagging.
We. Have another hack from ‘moseteap’ 6 days ago!
I have ‘spammed’ this person so they shouldn’t be able to reply again. Thanks
mulberry posted a new activity comment 2 years, 12 months ago
Hi Ned,
I hope you are continuing to do well.
I too had paraprotein apparent before SCT and did not have BMB after SCT. I was told that I had had a Complete Response to the SCT on the basis that paraproteins were not apparent in my blood. I’ve stayed in that state for almost 3 years now.
BMB in theory could detect minimal residual disease, o…[Read more]
Hi Jane,
I really appreciate you for taking time to write me and explain the reason for not having BMB after SCT. I’m fine and I hope you are also continuing to do well.
I think I told you earlier that I’m from Iran and I used to compare the general treatment protocol I received here, to the treatment that other myeloma patients from other…[Read more]
mulberry posted a new activity comment 3 years, 5 months ago
Hi Ned, good to hear that you are doing well, as am I. I havent heard of maintenance being changed to thalidomide after 12 months, and this hasnt been recommended to me by my consultant, so I continue on lenalidomide, now 2 years. I would ring Myeloma UK to ask Ellen Watters, the nurse whether this is protocol, and to generally discuss.
My…[Read more]
Thank you Jane, your response was very helpful and informative as usual. I have another question if you don’t mind.
Before having first SCT, my plasma cell was 5% due to induction therapy. However, my oncologist didn’t prescribe bone marrow aspiration 3 months post SCT for me. When I requested separately from two oncologists, they said no need…[Read more]
Hi Ned,
I hope you are continuing to do well.
I too had paraprotein apparent before SCT and did not have BMB after SCT. I was told that I had had a Complete Response to the SCT on the basis that paraproteins were not apparent in my blood. I’ve stayed in that state for almost 3 years now.
BMB in theory could detect minimal residual disease, o…[Read more]
Hi Jane,
I really appreciate you for taking time to write me and explain the reason for not having BMB after SCT. I’m fine and I hope you are also continuing to do well.
I think I told you earlier that I’m from Iran and I used to compare the general treatment protocol I received here, to the treatment that other myeloma patients from other…[Read more]
mulberry posted a new activity comment 3 years, 9 months ago
I will check my blood test results and come back to you. In terms of length of time to take lenalidomide maintenance, this has been the subject of discussion between the experts. I think the latest idea is to continue it until progression, but their is an increased risk of additional cancers.
myeloma2016 and
mulberry‘s profile was updated 6 years ago
mulberry became a registered member 6 years, 4 months ago
