[mulberryParticipant]

I understand that some of Natco s manufacturing plants comply with US/EU standards, but that others don’t. How can I find out?

Sue, in hindsight did you need to see a MM consultant in India or could you have obtained the lenalidomide by post? I understand that it is legal to import 3 months supply of drugs for personal use. I’m concerned about traveling as far as India not long after SCT.

Did you have any of the drug analysed in UK? I believe the Terrence Higgins Trust analysed 6 samples of a generic HIV drug from 6 Indian pharmacies and found all were genuine, but this still feels quite an issue for me.

Brian, are you contemplating going down this route?

Jane

[mulberryParticipant]

Was your UK haematologist happy to treat you/test you while you are on lenalidomide from India. Presumably this is a generic version – how did you satisfy yourself about the quality and effectiveness compared with the celgene product?
I am starting treatment with lenalidomide (VRD) under copayments scheme but it look as if I will have to pay VAT. If this is true I fear the financial burden will just be too great for me (apart from the qualms of paying VAT on a life preserving drug).
How did you choose the hospital and haematologist in India?
Hope all is going well for you
Jane

[Author]

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