https://forum.myeloma.org.uk/members/myeloma2016/activity/ Activity feed for Myeloma2016. Wed, 15 Apr 2026 20:03:51 +0100 https://buddypress.org/?v=2.9.4 en-GB 30 hourly 2 77597b7b80f7cf3da003e1c34159e289 https://forum.myeloma.org.uk/activity/p/138554/#acomment-140134 Sat, 27 Nov 2021 16:08:41 +0000 Hi Jane,
I really appreciate you for taking time to write me and explain the reason for not having BMB after SCT. I’m fine and I hope you are also continuing to do well.
I think I told you earlier that I’m from Iran and I used to compare the general treatment protocol I received here, to the treatment that other myeloma patients from other…[Read more]

In reply to - myeloma2016 posted an update @mulberry hi Jane. hope you are doing fine. I’m now 9 months post (SCT). I have been on lenalidomide 10 mg. So far everything seems ok except my WBC is slightly bellow 3000. I was t […] ]]> 8cd5d2d118e500e40eb0e874dad630f8 https://forum.myeloma.org.uk/activity/p/138554/#acomment-138564 Sat, 19 Jun 2021 09:23:20 +0100 Thank you Jane, your response was very helpful and informative as usual. I have another question if you don’t mind.
Before having first SCT, my plasma cell was 5% due to induction therapy. However, my oncologist didn’t prescribe bone marrow aspiration 3 months post SCT for me. When I requested separately from two oncologists, they said no need…[Read more]

In reply to - myeloma2016 posted an update @mulberry hi Jane. hope you are doing fine. I’m now 9 months post (SCT). I have been on lenalidomide 10 mg. So far everything seems ok except my WBC is slightly bellow 3000. I was t […] ]]> 6ab1998fe466b4cdda09d6a6227455b4 https://forum.myeloma.org.uk/activity/p/138553/#acomment-138557 Sat, 19 Jun 2021 08:45:38 +0100 Hello Kevin,
Thanks indeed for clarification.
I’m now 9 months post (ASCT). This is my first SCT. I was diagnosed when I was 42 years old, now 46. I have been on lenalidomide 10 mg( maintenance medication). So far everything seems ok except my WBC is slightly bellow 3000 (2600) due to lenalidomide.
I know very well that every myeloma patient is d…[Read more]

In reply to - myeloma2016 posted an update @kevin hi Kevin. hope you are doing great. May I know how may years you are in remission after your 3rd ASCT? ]]> 662d23fc37d758fd3c3abce147b7dda7 https://forum.myeloma.org.uk/activity/p/138554/ Fri, 18 Jun 2021 15:23:51 +0100 @mulberry hi Jane. hope you are doing fine. I’m now 9 months post (SCT). I have been on lenalidomide 10 mg. So far everything seems ok except my WBC is slightly bellow 3000.
I was told that ill be on lenalidomide as maintenance therapy for only one year, and second year they will change it to thalidomide. I have not ask further clarification yet a…[Read more]

]]> 4 c1c2cd1bf9b0961741fa5bbcddbfddcb https://forum.myeloma.org.uk/activity/p/138553/ Fri, 18 Jun 2021 13:23:22 +0100 @kevin hi Kevin. hope you are doing great. May I know how may years you are in remission after your 3rd ASCT?

]]> 2 ebc51ce251aee3b5029b8f9c69053d8e https://forum.myeloma.org.uk/activity/p/137646/ Sat, 30 Jan 2021 11:33:24 +0000 0 0eb86e1ec18a89828eec5a333c12f1cd https://forum.myeloma.org.uk/activity/p/137643/ Sat, 30 Jan 2021 10:26:04 +0000 @mulberry Hi Jane
I have been taking lenalidomide 10 mg starting from 11 November 2020 just two months and half after my CST. My WBC are decreasing every two moths I check my blood. Now its 2.6
One of my oncologist advised me to stopped Lenalidomide temporarily for one month. The other one advised me just to continue with the lenalidomide but…[Read more]

]]> 1 b3353a004a8fe46dc513d4a105d02529 https://forum.myeloma.org.uk/activity/p/137466/ Fri, 11 Dec 2020 13:53:26 +0000 Diagnosed with carpal tunnel syndrome on both hands 3 months after SCT

]]> 0 2963a19e42b3ebbc04f497b433c45ae2 https://forum.myeloma.org.uk/activity/p/137248/ Fri, 09 Oct 2020 08:54:45 +0100 0