[najmahParticipant]

Good advice, thanks Jo. I didn’t think I would be spending most of my Tuesdays having treatment! Naively I thought it would be similar to my husband’s, he had his treatment once a month for 6 months.
Good idea to keep a journal. I sent off for the myeloma diary from here and it’s very comprehensive. I can record my bloods, my progress, write notes etc so very similar to a journal.
Where are you having your treatment? Mine is at the Freeman in Newcastle.
Best wishes.

[najmahParticipant]

Hi Marty, thanks for your reply. I’m being treated at the Freeman too. I’m not having a stem cell transplant though, my age is against me. I agree the team there are brilliant. We already had experience of that department as my husband completed 6 rounds of chemo there in January for Non Hodgkins Lymphoma. (He’s doing well and is now on immunotherapy, an injection every two months).
Glad to hear you are in remission and doing well.

[najmahParticipant]

Thank you for your lovely reply Jo and all of that interesting information. I’m similar in age to you, I’m 73. My mum had myeloma 25 years ago and didn’t live very long after her diagnosis but as my consultant said treatment now is totally different to how it was all of those years ago.

It must be so encouraging to see those numbers drop, makes it all worthwhile. I’m glad to hear that your side effects were manageable and your muscle pain has eased.

I’m similar to you to in that I have a very supportive husband, he’s just come through chemo himself after being diagnosed with Non Hodgkins Lymphoma. He’s fine now and on maintenance therapy, an injection of Rituximab every two months. I’m very close to my two daughters and have a good group of friends.

I have my pre assessment on Tuesday 21st, then treatment starts on 28th April. I was a bit alarmed when my treatment schedule came through the post, my final date of treatment is 15/08/28!

I will definitely keep in touch. Thank you.

[najmahParticipant]

Hi jomjo75. I’ve just found your post and was interested in reading it as I’ve just been diagnosed recently and I’m due to start the same treatment as you on 28th April. How are you finding the side effects now youve been on the regime for a few months? I’m hoping they are not too bad for you but I expect everyone has different reactions.
I hope you are doing well.

[najmahParticipant]

Ian, I’ve read the first 5 chapters of your book. It’s brilliant! My husband said he’s going to read it too when he heard me having a good laugh at your descriptions 😂😂

[najmahParticipant]

Thank you for your reply Ian. Good to know you were on the same treatment but sorry to hear your numbers have gone up. My treatment is due to start on 28th April. (I have to go next Tuesday to see the nurse and watch a video). I’m a patient at the Freeman hospital in Newcastle upon Tyne. I’ll definitely download your book onto my kindle. Thank you.

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