[nbcParticipant]

Hi Lee

I am in my fifth cycle after which they are planning to do Stem Cell Transplant – time really flew as when I was diagnosed in Oct last year I was worried about the long journey ahead. Side effects of VTD medicines has been my only challenge (and I guess it is the same with some others) but I learnt to cope with them as I progressed through each cycle.

Just keep a positive attitude as that will be big factor in the recovery.

All the very best. Take care and stay safe.

Regards
Naren

[nbcParticipant]

Hello Deano

I am currently in my cycle 2 and the medicines that are part of the VTD Chemo treatment seem to be working quite well. Yes there are some minor side effects but different people have different side effects and if we keep a positive attitude, tolerate the side effects then the medicines do really make a difference in killing the cancerous cells. My daughter is in her A levels and I too used to worry a lot when I was diagnosed on 2-Oct this year but now that the medicines are doing their job, every single day raises the hope and I feel more positive and motivated. Just keep a positive outlook and ask the family to do the same (I know its hard – we have been through this in my family).

I am sure you will be fine and that you will live to see your daughters grow.

Take care and God bless!
Naren

[nbcParticipant]

Hi airman68,

I echo Jane’s comment above. Your journey, experience and in deed positivity does give us all the hope we so desperately need. It has definitely motivated me to be even more positive and look forward to my future 17 years.

All the best with your treatment. I am sure you will win the fight once again.

Take care
Naren

[nbcParticipant]

Thank you Jane. I think I am slowly but surely getting used to the drugs. Now that the major side effects have been treated by doctor I am able to manage with the numbness etc. Will remain positive especially after reading that you are in your sixth cycle now – I am looking forward to mine. 🙂
Take care. Naren

[nbcParticipant]

Thanks Shaun for the kind words and wishes.

Hi Everyone

You may have been wondering where I disappeared. Sincere apologies for a delayed update. There was a problem as I had some side effects. Will share details only if you all OK as my experience with the side effects was not very good and I do not want to scare anyone. On the other hand I think it would be worthwhile knowing how different people react differently to the drugs. Please do let me know if you want to know more.

Things seem to be back on track now but only been few days so it’s a case of wait and watch. Just hoping for the best as I really want the treatment to work.

Take care ALL.
Naren

[nbcParticipant]

Wow, huge thanks Kevin, Jane, Rebecca and Kayle for such encouraging and motivating words. I used to be an overly optimistic person but in the last one week that attitude had taken a massive hit. After reading your experiences I have no choice but to remain positive.

Went in for the first Chemo(VTD) today and discovered that I have 97% abnormal plasma cells in the bone ( this was around 1% in year 2011 so bit of a shocker really ). Yesterday’s MRI results weren’t very positive either. Even though the regular blood tests of the last 9 years showed some abnormal reading for Paraprotein doctors were not overly concerned. It all happened in the COVID lockdown period as I had not given blood for few more months than normal.

Anyway, had the first injection and also came back with a massive bag of all the medicines which I will start taking from tomorrow when I am also having a blood infusion.

In deed the journey ahead is going to be long and challenging so many thanks once again for making me believe that things can get better. 🙂

Take care all.
Naren

[nbcParticipant]

Huge thanks Kayle. I was emotional reading your positive and encouraging words. I have been told that I am already at a critical stage which is why they have started the Chemo within days of telling me about my condition. It’s all happened all of a sudden.

All the best to you and family too.
Take care
nbc

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