[nickbParticipant]

Hi all so good to hear dara as maintenance is working well. I have finished dvd and am getting ready now for second stem cell transplant. Got 12 years remission from 1st one so hoping for another long one.Like you I have tolerated DVD well apart from constipation. My biggest problem was the amount of weight I lost before relapse and trying to regain it since. Wishing everyone all the best for your continuing treatment and keep a positive outlook
Regards Nick

[nickbParticipant]

Hi all I have just relapsed after being treatment free since 2009. After having a PET scan it was found I had a fracture of the T10 vertebrae along with numerous lesions my PPs had risen to 14 also large rise in light chain ratio. Starting DVD tomorrow hoping all goes ok. It’s good to hear you all seem to be coping with the treatment so it can’t be too bad. I was asked about 2nd stem cell transplant and at present it’s a no but I might have a change of heart. Will update later in treatment
Regards to you all
Nick

[nickbParticipant]

Hi Jenny sorry missed your post of  28 04 my last review 9 05 pp 4.6 all bloods ok been stable like this last couple of years. Like You’re dad I worked in heavy industry diagnosed age 54 , on my consultants reccomendation I stayed off work a total of 18 months . I was lucky I still had reasonable mobility and had very few issues throughout my treatment. Unfortunately this disease affects everyone differently, all I can say is tell you’re dad to keep a positive attitude and don’t give in . Regards Nick

[nickbParticipant]

Hi peony

Sorry to hear of your suffering. Like you I have no faith in my gp it took 6months of continual blood tests before referring me to hospital. I have my bloods done every 4 weeks and have a review with my nurse specialist 10 days later. My consultant has recently moved to another hospital but this routine won’t change. Can you not contact your team at the hospital to get checked? I have always been told if I think something is wrong call us and we will see you. If you’re getting bone pain it needs looking into sooner rather than later.

Regards Nick

[nickbParticipant]

Thanks for the link. After reading his story seems he’s been through the mill. His attitude to the disease is like mine, no way was I going to give in to some alien invaders in my body. I have always had a positive attitude and trusted implicitly in my consultant and my team of nurses. This is an awful disease and no two people are affected in the same way but I feel a positive attitude helps in the fight against it

Keep strong everyone Nick

[nickbParticipant]

<p style=”text-align: left;”>Hi Peter</p>
<p style=”text-align: left;”>I know there are many with mm who have survived much longer than I have. I consider myself very lucky that I have had very few issues compared to others who are posting on here.</p>
<p style=”text-align: left;”>My post was to give those newly diagnosed with mm hope for the future</p>
<p style=”text-align: left;”>Regards Nick</p>
<p style=”text-align: left;”></p>

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