nickinoo replied to the topic Alex: a life fast forward??? in the forum General 13 years, 9 months ago
Hi guys,
I really wanted to watch this, but couldn't bring myself to as programmes like that upset me much more since Sam's diagnosis, he sounds like an inspirational young man though.
xx
nickinoo replied to the topic Just checking in. in the forum General 13 years, 11 months ago
Hi Jet,
Thanks for your kind reply, and I am glad to hear that you found my post uplifting.
I didn't actually speak to you on the day but I did see you at the Myeloma UK Infoday (I recognised you from your pic on here and also your name badge), I hope you found it as interesting as I did xx
nickinoo replied to the topic Abject Misery in the forum General 13 years, 11 months ago
Thinking of you and Peter, Min, and I really hope they come up with something suitable soon.
Nicki xx
nickinoo replied to the topic Just checking in. in the forum General 13 years, 11 months ago
Hi guys,
Thanks so much for all of the good wishes.
It was so lovely to see yourself and Janet and it was really nice for Sam to meet you both as I have told him all about you. David I am so glad to hear that you too are feeling mostly well after your transplant, long may it continue.
Liz, glad to hear that my post has given you a boost,…[Read more]
nickinoo started the topic Just checking in.. in the forum General 13 years, 11 months ago
Hi guys,
Again, I haven't been on here for a while as I have been so busy with work and the new house but it doesn't mean that I don't frequently think about fellow members of this site.
How is everyone doing?
So sorry to read about the recent losses, I am thinking about their families.
All is well at this end, life has returned to…[Read more]
nickinoo replied to the topic Hi all sorry I have not been on here in a while…… in the forum General 14 years, 2 months ago
Thank you guys for your good wishes!
We leave for Edinburgh airport at about 1am, I am used to going to bed about 10pm most nights (boy do I love my bed!) so feeling tired already!
Sam on the other hand is downstairs fit as a fiddle watching Match Of The Day!
Very excited for our little trip as it is the first one that sam has been…[Read more]
nickinoo replied to the topic Hi all sorry I have not been on here in a while…… in the forum General 14 years, 2 months ago
Hi guys,
Thanks for all of your kind words, it really does mean a lot.
Although I haven't posted on here much in the past I follow everyones journeys regularly and this site was truly a god send in the early dark days.
Its Only Me I wish you and your mum and family all the best and please keep us updated on how she is doing.
Eve I also…[Read more]
nickinoo started the topic Hi all sorry I have not been on here in a while……. in the forum General 14 years, 2 months ago
…..life has been manic of late!
Sam is now 16 weeks post transplant and is doing amazingly well, he is no longer on any cancer medication, is happy and feeling well and is due to return to work part time on the 15th of March (thank god! he he!).
I have often nipped on the site briefly to see how everyone is doing but have not posted for a…[Read more]
nickinoo replied to the topic 10 week check up since STC in the forum General 14 years, 2 months ago
Hi David,
So pleased to hear that your results so far are very good, and disappointed for you that you are only on cloud 8 amd cloud 9 🙂
Sam will be 16 weeks post transplant on wednesday and time has flown, his Myeloma wasnt the paraprotein type (if you know what I mean!) but he was told by his consultant last time that he was in a virtual…[Read more]
nickinoo replied to the topic A thought for the New Year in the forum Off topic 14 years, 4 months ago
I love this poem, I found it online shortly after Sam was diagnosed xx
nickinoo replied to the topic Second hurdle starts tomorrow in the forum General 14 years, 4 months ago
Thats so lovely Roz, I too had a little cry when I read it.
Thinking of you xx
nickinoo replied to the topic ALLO TRANSPLANT WENT REALLY WELL in the forum Treatment 14 years, 4 months ago
Pleased to hear the good news Shirley, I hope you continue to make a good recovery!
Nicki xx
nickinoo replied to the topic ONE MORE SLEEP in the forum Off topic 14 years, 4 months ago
Right back at you 🙂
Have a good one!
Nicki xx
nickinoo replied to the topic Had to come home after 7days and nights in the forum General 14 years, 4 months ago
Hi Roz,
Words fail me I am afraid, I just wanted to say how sorry I am that you are going through this, if it is any consolation I think you are so so strong and brave, an inspiration, and you certainly won't be upsetting anyone with your post, we all just feel so very upset for you, Micheal and your family.
Micheal will be so proud…[Read more]
nickinoo replied to the topic Do you forget? in the forum Carers 14 years, 4 months ago
Hi there,
Wanted to reply to this post as saw as I read it as it struck a chord with me but have only just gotten round to it!
When Sam was first diagnosed we were treading on eggshells and it just wasn't normal for us and it really didn't feel right, in fact I think it made things worse. Until his mum, who nursed her husband through Myeloma…[Read more]
nickinoo replied to the topic Musings from Ward 9 in the forum Treatment 14 years, 4 months ago
Hi David,
So glad that you are home and doing well, aside from catching my cold and having to stay in with a temperature Sam is nearly 6 weeks post transplant now and doing well.
Take care xx
nickinoo replied to the topic Michael is dying in the forum General 14 years, 4 months ago
Thinking of you both and your children xxx
nickinoo replied to the topic Musings from Ward 9 in the forum Treatment 14 years, 5 months ago
Good morning David,
Hope you all still a happy 10 on the happiness scale 🙂
Sorry I haven't posted to wish you luck before now, been a busy few days with Sam coming home so haven't been on.
Best of luck and hopefully before you know it you will be recovering at home as Sam now is (thank god!).
Will be following your daily blog with…[Read more]
nickinoo replied to the topic Finally joined new site! in the forum General 14 years, 5 months ago
Hi guys,
Yes Sarah I think our husbands are roughly at the same stage, how is yours doing?
Pleased to report that Sam came home on Wednesday, 16 days after being admitted, and is doing well, he is still pretty exhausted but apart from that he is making a good recovery.
The day before discharge his White Blood Cell count was above 2.5 and…[Read more]
nickinoo replied to the topic SCT in the forum General 14 years, 5 months ago
Hi Judy,
How's things?
My husband Sam was discharged from Fletcher Ward on wednesday after his SCT. He is doing well.
The staff are very nice on the ward and looked after Sam well.
Take care and keep us updated.
Nicki x