[nickinooParticipant]

Thanks for all of your kind words guys! It is a relief to know that it is working.

Pete, good luck for your appointment, 4 years is great! I can only hope that Sam will get 4 years. Sorry to read that you have relapsed though but good on you for remaining positive, I think that it is important to try and be positive.

Much love all,

Nicki x

[nickinooParticipant]

Hehe Tom made me laugh too.

Hope you had a good evening at your "do".

Nicki xx

[nickinooParticipant]

Fingers crossed you manage to avoid the lurgy Dai.

Was nice to see you both the other day.

Nicki xx

[nickinooParticipant]

Thanks Vicki & Colin and Tom, Vicki & Colin fabulous news about the remission!

Sam is currently cleaning the oven, he is bouncing off the walls on the Dex but isn't feeling too bad on the Velcade on the whole. On the plus side I have less housework to do as he is doing it at silly times in the morning like 7am when he can't sleep! He cleaned my car before I left for work the other day! 😀

I hope that everyone is having a nice weekend.

Nicki x

[nickinooParticipant]

Brilliant news! 😀 >:-) 😉

[nickinooParticipant]

Thanks Eve and Liz & Kev for your kind replies.

Eve I am glad that Slim has had a good response to Velcade, I hope that Sam does too.

Liz & Kev, great news about Kev's count!

I worry as I read somewhere that the first period of remission after the SCT is usually the longest, I hope that this proves not to be the case.

I hope that everyone is having a nice weekend.

Nicki xx

[nickinooParticipant]

So sorry, thinking of you and your girls xxx

[nickinooParticipant]

Much love, my thoughts are with you at this very difficult time. xx

[nickinooParticipant]

Hi guys,

Thanks so much for your kind words. So sorry Ozzy, Wendy and Trish to hear about the relapses, it's gutting isn't it, at the time no one told us how long Sam might have before he relapsed but I just thought he might have had longer, given his age (he is 38 now).

Trish I am glad that your mental health is ok now and that you had the support that you needed, I am lucky that I have a good support network around me but I do worry about how I am going to cope with this (I have severe OCD) and Sam's illness as when he was diagnosed the OCD was there but was simmering in the background.

The good thing is that Sam has been referred to a therapist and I also see a therapist so we are both receiving emotional support.

I hope that everyone is ok.

Nicki x

[nickinooParticipant]

Hi there,

My husband Sam has Myeloma and was diagnosed 2 years ago aged 35.

Hi dad sadly passed away from Myeloma, either 10 or 11 years ago, I can't remember exactly how long ago as we weren't together at the time.

He was 58 when he died, I haven't asked a lot of questions about his dad to his mum and Sam was in the RAF and away a lot when he was sick, but I don't think he was diagnosed with it for long before he died, he was one of the classic cases of misdiagnosis, of Osteoporosis (sp) I think.

I have often pondered over this, and have either read somewhere or someone has told me that it is "familiar" but not "hereditary" whatever that is supposed to mean.

Nicki xx

[nickinooParticipant]

Hi Antoinette,

My name is Nicki, I am 29 and my husband Sam is now 37.

Sam was diagnosed with Myeloma 2 years ago on the 17th of May 2010 at the grand old age of 35. We had been married for 10 weeks.

Although I am not the one suffering from this terrible disease, I can completely sympathise with how you must be feeling right now, cancer is not something you expect to be worrying about at this time in our lives. I feel like I have such a heavy burden on my shoulders and I resent friends that have relatively care free lives, however we are fortunate, Sam responded very well to his treatment (6 months of CTD and a Stem Cell transplant), and has only ever gone from strength to strength, BUT the fact of the matter is, Sam still has cancer, and it won't go, and I worry about how young I will be when I become a widow.

BUT despite all of that life goes on, it gets better, Myeloma doesn't occupy every waking thought anymore and we live life to the full, I won't lie about the fact that when Sam was diagnosed I was suicidal, I couldn't bear the thought of what was to come, but in the midst of all that a comment from my sister in law (of whom I get on with but wouldn't say I was close to) when all I could see was blackness still keeps me going at the worst times. She said to me "Nicki, you have to live your lives and not let this win, because if you don't, when Sam does die, whether it be in 2 or 20 years, you will regret it….". I try to make that my motto, and we live life to the fullest.

Two years ago, I thought my life was over, and maybe our old one was, but a new different one was just beginning, and I promise you, one day you will read this back and believe me when I say it is possible to be diagnosed with Myeloma and be happy again.

Much love and positive thoughts.

Nicki xxxx

[nickinooParticipant]

Thanks Lorna I had no idea, it really should mention it in the article.

Thankfully Sam isn't on velcade but it is important for everyone else to know just in case so thanks.

Nicki xx

[nickinooParticipant]

Hey guys!

Thanks for all of your lovely replies, so nice to read about the success stories (so to speak). Sam still gets very anxious in the lead up to his check ups, but I have to remind him to thunk about it logically, if there was a problem they surely would have had him back before his next scheduled appointment.

With regards to the green tea, apparently there is a specific ingredient in it that has been proven to damage myeloma cells but not healthy cells. I will need to find out the name of the ingredient.

Dai, please sent my love to Janet, hope that she is well 🙂
Have a lovely weekend everyone!

Nicki xx

[nickinooParticipant]

Great news David!

Nicki x

[nickinooParticipant]

So so sorry to read the sad news about Peter, my thoughts are with you and your family Min xxx

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