Hi Jan.

Thanks for your comments. My husband is only on Aciclovir ( hope I have spelling is correct) to deter shingles. He has in the past had the ones you mention, however, tolerated them well. The rash was definitely Pomalidamide. He has now been on the reduced dose for just over 2 weeks and no sign of a rash. The Heamatologist  is going to…[Read more]

Hi All

Just an update on Husbands treatment. The consultant has prescribed a much lower dose, 1mg instead of the 4 mg daily of pomalidamide. The dose will be increased gradually, but he is going to be monitored on a weekly basis. He has to take anti histamines alongside this and a short burst each week of prednisolone. He hasn’t started as yet as…[Read more]

Poor Chris. My husband had a very nasty  rash with rivlamid. He has just started pomalidamide, same reaction. It looks as though they might restart reduce the dose and take an anti histamine. This new rash subsided within 24 hours after stopping pomalidamide (a derivative of rivlamid) anti histamines and steriod cream. Hope it rights itself soon.…[Read more]

Hi.

My husband has had MM for nearly 18 years now. He does get uptight and sometimes has a short fuse especially when on Dexamethazone. I have learnt to rely on my hobby, painting to emerse myself in something else not related to his myeloma/illness. I actually attend a painting group once a week throughout the year. This is me time and we…[Read more]

Thank you Ellen and Jill. Husbands consultant is on holiday at the moment but back Monday. An appointment has been made for Tuesday to go back and re access treatment. Registrar very helpful and discussed with other Heamotology consultant at hospital, they decided to stop the pomalidamide until he sees his own consultant. She stressed that it was…[Read more]