Hi Ann,

I completely agree with you on there not being an option when dealing with high risk myeloma if an allo graft is recommended. The problem for us is that there seems to be different trains of thought amongst consultants on whether an allo graft is a beneficial form of treatment when compared to new targeted treatments; so if the experts…[Read more]

Hi Nicola, sorry for late reply, I haven’t been on here much since xmas. It seems the way we both presented our myeloma is very similar and yet the treatment leading up to SCT was different; apart from the Dex – everyone seems to get Dex.  You may be still in hospital as I write this so I hope it has all gone well for you. Just remember that…[Read more]

Hi Cygnet,

My bone pain did eventually become persistent but it took it about seven months to get to that point. In the beginning the pain would last a few days, then it was weeks and it would be quite severe. My bone pain was mainly in the sternum and the ribs and before treatment started I was also beginning to feel back pain. I worked in a…[Read more]

Hi, I was diagnosed about 18 months ago and so have been where you are now also. A marrow biopsy will happen pretty quick; I had my first one done within a week of my first haematologist appointment. I’ve now had five biopsy’s and have had local every time.

Once the procedure starts it only takes about five minutes and in my experience the pain…[Read more]

Thanks everyone,

Being and remaining positive is very important to your well being. I am feeling so much better now than I did when I was first diagnosed and it’s all about keeping it that way. There are exciting new drugs on the way and survival times are improving all the time. Lots to look forward to.