Hi Dai
So glad things are looking up for you, you've had quite a time of it.
Best wishes
Ozzy

Hiya all
So glad your trip to India is still on. Thanks to you all for your good wishes. I have had four velcade's in the past two weeks and I am finding it really hard. I had an overnight stay in a& e last Sunday(no beds slept on a trolley!!!!) as temp 38.7. Had another one yesterday and temp rising again. I have been sick and have terrible…[Read more]

Dear Jacqui

So sorry to hear this news – this awful disease takes no prisoners,Please be strong and take care of yourself.You are in our thoughts.
Best wishes
Ozzy & gayle

Hiya Maureen
I have started Velade and Dex today but like you Dai the old way with the canula my hospital doesnt do it yet with the injection in the stomach/side. I had 6 courses of CDT originally took poorly on the 2nd course and had pneumonia so I must admit to be a bit nervy this time round. I have a cold and cough already so that worries me.…[Read more]

Hiya Wendy
That's my way of thinking too with the second sct and I dont know whether I really want to go through another.I feel like you fed up that my transplant didnt last long and what the future holds for me. I was hoping to go to Canada this year but there will be no way now. Your holiday is in March so you should be able to make it. When I…[Read more]

Hiya Ange
I tried to reply to your email Ange but it came back. We will also try to attend in March -health permitting. Well I have relapsed and will be starting Velcade tomorrow. I have picked up a cold and have a cough so I dont know what they will do and I'm not sure how they give this Velcade.Hope the snow is not too bad for your farm.
Hi…[Read more]

Hiya
I too are in the same position my pp have shot up to 48. I had sct in January 2011 and it only lasted 21 months. I have had another BM biopsy last wed and full skeleton xrays. I am seeing the Prof at the hospital tomorrow and last week my consultant mentioned starting Velcade and dex. I will find out my fate tomorrow. What a start to the new…[Read more]

Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from…[Read more]

Hiya Jean
I had my harvest early November 2010 but didn't have my transplant until 8th January 2011 so you might make that footie match after all.
With the sct I stayed in isolation until 29Th Jan and was then went home. I know that I had a clean diet for another month and Gayle banned all visitors until my blood recovered. Every morning she…[Read more]

Hiya Ange & Jenny
It was lovely to meet you both at the info day. We too found it very interesting and informative and was encouraged by the positivity. Keep in touch.
Paul & Gayle

Hi Jenny & Ange
I've been to the GP today about the back and he thinks its muscular.I'm waiting for another MRI scan so hopefully by Sat things will calm down. Hope to meet you both there.
Paul & Gayle

Hiya Ange
We have booked to attend the 24th at the Village Cardiff. I had my sct at the Heath Hospital January 2011 and Dr Keith Wilson is speaking there. I hope we can still go because at the minute I am not feeling too good with backache. Keep a lookout for us we would be pleased to meet you.
Paul & Gayle

Hiya
Im Paul's wife Gayle and I work in the Blue Badge section in our local authority.Give your local council a tel call to send you an application form.A new national scheme started April this year and each authority does some bits differently.If you receive DLA high rate for mobility the badge is an automatic acceptance. If you dont have this…[Read more]

We are so sorry to hear your awful news this disease does what it likes. Please take care of yourself and our thoughts are with you.
Best Wishes
Ozzy & Gayle xx

Hiya

I had to have three teeth out before I had my sct. I had to go to the hospital dentist to check it out first but my normal dentist in town took them out. I am taking Bonefos and wasn't advised to stop taking them.I had no problems with bleeding.

Ozzy

Hiya Andrea
I live in South Wales but attend Royal Glam I think you must be attending the Royal Gwent.I started my journey in Jan 2010 and my pp was 22.In May it had risen to 44 and I started 6 courses of CDT. I had the SCT in Jan 2011 at the Univ Hospital Heath and have been in remission since then. My pp level remains at 4 and has been that…[Read more]

Dear David
Just reading your post and would like to wish you all the best in your latest round against the enemy. You can do it – think positive thoughts.
All the best friend.
Ozzy

Judy
So sorry about your loss. Our thoughts are with you.
Take care Ozzy & Gayle xx