Hi Tom

That is very informative and clear. I always read the new articles as they are posted. I am particularly interested in personalized treatment for myeloma patients based on genetic abnormalities, especially as I work in medical genetics. I think there seems to be huge advances now and not having started treatment yet it makes me feel more…[Read more]

Hi Ozzy, sorry you are having such a rough time, I hope they find a way forward for you soon. The one thing I have realised right from the start is how unpredictable myeloma and the treatment can be. There seem to be so many twists and turns for many people but everyone seems so strong and just take each hurdle as it comes. I may bump into you at…[Read more]

Hi SarahJane

I was wondering how you were getting on. Sorry to hear you couldn't have the stem cell transplant on time but it doesn't seem like you have to wait too long. I am still ok but things are progressing so I don't think I will have much longer to wait before starting treatment. Enjoy the sunshine! Take care Andrea xx

Hi Jean and Happy Birthday to Frank! Hope Frank continues to feel better, take care Andrea xx

Hi Ann

Welcome to the forum. Where are you being treated? There are probably other people on the forum close by. I am 51 and was diagnosed last August and will probably start treatment soon. I wish you and your husband luck in your treatment and recovery. Take care Andrea xx

Hi Maria, lovely to hear from you, I have been wondering how you are getting on. Well done getting through the CTD. When do you have to decide about the transplant? My paraproteins are over 40 now so I don't think I will have to wait too much longer to start treatment, I just want to get on with it! Yes it does seeem we have alot in common…[Read more]

Dear Vicky and Colin

That is wonderful news

Ange x

Hi Paul and Gayle, so sorry to hear about your latest results. I have sent you a private message. Take care Andrea xx

Hi Wendy, good luck with your tests. Hope you manage the triathlon! I am a newbie here so find all of you very inspirational. All the best Andrea xx

Hi Sarah Jane

You seem to be in very good hands and coping really well. Good luck with the rest of the treatment and stem cell harvest. My pp are stable at just under 40 and I am still under close observation. I have read in depth about myeloma so feel prepared! Also knowing that everone here is so friendly and supportive is very reasuuring.…[Read more]

Hi Tom

Thank you for posting this information, I would be very interested to read these articles and would be grateful if you could send me a copy. I will send you my email address.

With best wishes

Ange

Hi Sarah Jane

Great news, all sounds good. I hope you continue through your treatment as best as can be expected. Wishing you all the very best, Ange xx

Hi Andy

Just thought how nice your welcoming message was. I joined the forum in August and have attended the Cardiff info day. I am asymptomatic but followed closely at clinic. After reading these posts and meeting people I feel in a much better position to deal with whatever happens in the future knowing there is always someone here who can…[Read more]

Hi Maria

Welcome to the forum, you are in the right place here to get support and advice from lovely people. I too was recently diagnosed and am 51 years old with 4 children, my youngest daughter is 13. I used to work as a medical secretary in biochemistry and I am now a patient in that hospital. At present I work in Medical Genetics at a…[Read more]

We were very impressed by the Cardiff Infoday we attended yesterday. Very well organised by the friendly and helpful Myeloma UK team. The presentations were very informative.I now have a clearer understanding of how the treatment works, the clinical studies etc. Lovely to meet other patients and carers. As a newly diagnosed patient who has not…[Read more]

Hi Paul and Gayle, sorry to hear about your back pain Paul but if you are able to make it I look forward to meeting you. Jenny, that's great, I will look out for you! Best wishes Andrea

Hi Jacquie, great to know that you found the Birmingham one helpful. David – Happy Anniversary for the 24th! I will make the most of the day and report back! Best wishes Andrea

Hi Sarah Jane

Hope you are still coping with your treatment. I sent you a little private message, so hope I did that properly! Take care

Andrea xx

Hi Sarah Jane

So sorry to hear your news. I will be thinking of you and your family and wish you all the very best with your treatment. I am sure there will be lots of support, help and advice here for you. I am still under 'watch and wait' and am attending the Cardiff info day with my husband and son soon.

Take care

Andrea
xx

Hi Sarah Jane

It seems like we are pretty much at the same stage so would be lovely to keep in contact. I hope your MRI scan is clear and that you have a long time smouldering. I try not to get stressed and put it to the back of my mind as there is absolutely nothing I can about it! Easier said than done!

Take care
Andrea xx