[ozzyParticipant]

Hiya Ange
I tried to reply to your email Ange but it came back. We will also try to attend in March -health permitting. Well I have relapsed and will be starting Velcade tomorrow. I have picked up a cold and have a cough so I dont know what they will do and I'm not sure how they give this Velcade.Hope the snow is not too bad for your farm.
Hi Wendy
I have had some back ache and pains up my side but I generally feel ok apart from this cold I've just picked up. My pps started to rise from 4 to 12 in Oct so I guessed something was happening. My consultant said I was unlucky as he thought 5 years was more the norm for the sct so don't panic all of you. Trust me!!!When he hopefully zaps the figures down he mentioned another sct.
Good health to you all
Ozzy

[ozzyParticipant]

Hiya
I too are in the same position my pp have shot up to 48. I had sct in January 2011 and it only lasted 21 months. I have had another BM biopsy last wed and full skeleton xrays. I am seeing the Prof at the hospital tomorrow and last week my consultant mentioned starting Velcade and dex. I will find out my fate tomorrow. What a start to the new year.
All the best
Ozzy x

[ozzyParticipant]

Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from others. The worst in now over for phil and things do get better. All the best to you both and I would like to wish everybody a healthy and happy new year.
Regards Ozzy xxxxx

[ozzyParticipant]

Hi Megan
Just reading your threads brings the whole experience back and its strange how things are done differently over the country. When I had my sct in Jan 2011 at Univ Hospital Cardiff there is a transplant unit with 6 rooms and you spend the 3 weeks in isolation from the start. I found it lonely but realise you must have protection from others. The worst in now over for phil and things do get better. All the best to you both and I would like to wish everybody a healthy and happy new year.
Regards Ozzy xxxxx

[ozzyParticipant]

Hiya Jean
I had my harvest early November 2010 but didn't have my transplant until 8th January 2011 so you might make that footie match after all.
With the sct I stayed in isolation until 29Th Jan and was then went home. I know that I had a clean diet for another month and Gayle banned all visitors until my blood recovered. Every morning she anti bact all door handles, the taps even the kettle handle! I know when I was able to go out we dodged people like they had the plague and I remember asking the consultant could I have fish and chips and he told us to take my own plate not their paper and ask them to cook a fresh fish while Gayle waited.It was hard but I did remain infection free.Good luck for the sct you will be looked after well they watch for everything.
Regards Paul xxx

[ozzyParticipant]

Hiya Ange & Jenny
It was lovely to meet you both at the info day. We too found it very interesting and informative and was encouraged by the positivity. Keep in touch.
Paul & Gayle

[ozzyParticipant]

Hi Jenny & Ange
I've been to the GP today about the back and he thinks its muscular.I'm waiting for another MRI scan so hopefully by Sat things will calm down. Hope to meet you both there.
Paul & Gayle

[ozzyParticipant]

Hiya Ange
We have booked to attend the 24th at the Village Cardiff. I had my sct at the Heath Hospital January 2011 and Dr Keith Wilson is speaking there. I hope we can still go because at the minute I am not feeling too good with backache. Keep a lookout for us we would be pleased to meet you.
Paul & Gayle

[ozzyParticipant]

Hiya
Im Paul's wife Gayle and I work in the Blue Badge section in our local authority.Give your local council a tel call to send you an application form.A new national scheme started April this year and each authority does some bits differently.If you receive DLA high rate for mobility the badge is an automatic acceptance. If you dont have this allowance then complete the parts for walking difficulties. We send to the GP ourselves if necessary some authorities will ask you to take the form yourself for GP signature. We ask if you can provide evidence so maybe your nurse or consultant could give a letter supporting your application( your authority may be different you would have to check the guideline sheet they send). The Macmillan welfare section can help you complete the form or Age concern.
Hope this helps.Regards to all
Gayle xx

[ozzyParticipant]

We are so sorry to hear your awful news this disease does what it likes. Please take care of yourself and our thoughts are with you.
Best Wishes
Ozzy & Gayle xx

[ozzyParticipant]

Hiya

I had to have three teeth out before I had my sct. I had to go to the hospital dentist to check it out first but my normal dentist in town took them out. I am taking Bonefos and wasn't advised to stop taking them.I had no problems with bleeding.

Ozzy

[ozzyParticipant]

Hiya Andrea
I live in South Wales but attend Royal Glam I think you must be attending the Royal Gwent.I started my journey in Jan 2010 and my pp was 22.In May it had risen to 44 and I started 6 courses of CDT. I had the SCT in Jan 2011 at the Univ Hospital Heath and have been in remission since then. My pp level remains at 4 and has been that level since the transplant.Your journey is individual and no journeys are identical.I know it all seems a frightening prospect now of whats ahead but you will get all sorts of good advice on this site and ask anything that is worrying you as someone will have been through the same problem. All the best on your journey and if I can help please do ask.
Best wishes Ozzy

[ozzyParticipant]

Dear David
Just reading your post and would like to wish you all the best in your latest round against the enemy. You can do it – think positive thoughts.
All the best friend.
Ozzy

[ozzyParticipant]

Judy
So sorry about your loss. Our thoughts are with you.
Take care Ozzy & Gayle xx

[ozzyParticipant]

So sorry to hear about the loss of Peter.Our thoughts are with you. Take care Ozzy and Gayle xx

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